Your life, your services survey 2019 now open
We need as many people as possible to complete our 2019 Your life, your services survey, which is about different aspects of life with Parkinson's.
We'll use your answers to find out where changes are needed, and to help us improve care and quality of life for everyone affected by the condition.
Improving standards of Parkinson's care
The survey asks people affected by Parkinson's about their experiences of using health services.
Parkinson's UK, alongside the UK Parkinson's Excellence Network, will use the information to focus on areas where services aren't meeting people's needs, and drive up standards of care.
The information we collect will help build on what we've learned from previous surveys.
More progress needed
Our surveys have reported good progress over the past few years. For example, the percentage of people who said they could access a Parkinson's nurse increased from 75% in 2016 to 82% in 2018. The percentage who said they could access a nurse between scheduled reviews increased too, from 70% to 77%.
However, many challenges remain. We'd really appreciate it if you could take the time to complete the 2019 survey. This will mean we can keep focusing on the areas that need improvement.
We want to know if people affected by Parkinson's are getting the right health and support services. If we know where improvements are needed we can target these areas.
Thank you for your help.