UK Parkinson's Audit - Transforming Care

The UK Parkinson's Audit is the recognised quality improvement tool for Parkinson's services. It allows measurement of practice against evidence-based standards and patient feedback in a continuous cycle of improvement.

The data collection and submission period for the 2019 Audit has now ended.

Participating services will receive their individual service reports in early 2020, and full Audit findings and reports will be available on this web page soon after. Keep checking back for updates.

You can email [email protected] with any queries.

Your Audit report 

Your submitted Audit data will be compiled and the results available in your Individual Service Report, allowing you to:

  • see how your service shapes up against UK-wide results for your specialty
  • plan a service improvement project - support is provided for service improvement plans through the Excellence Network Service Improvement Team
  • benchmark and measure distance travelled against previous Audit data

Is your service interested in taking part in the 2021 UK Parkinson's Audit?

If your service would be interested in taking part in the next UK Parkinson's Audit, read on to see how the 2019 Audit took shape, including:

  • standards and guidance for participating services in 2019
  • the 2019 Audit timeline
  • Top tips from participating services
  • findings from past Audits
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Elderly care and neurology service standards and guidance

The Standards and Guidance document contains the Audit questions, the standards being audited, and the Audit background and methodology.

Audit and PREM documents

Eligibility criteria

  • Your elderly care or neurology service sees patients with idiopathic Parkinson's who've been referred to you in connection with their Parkinson's.
  • At least 20 of these people will be seen during the 5-month data collection and submission period: 1 May – 30 September
  • Your service is responsible for these people's ongoing management i.e. not seen as a tertiary referral for advice.
  • Your service is able to return at least 10 Patient Reported Experience Measure (PREM) questionnaires. This is a short 11 question paper form which allows patients to express their views of their service. The PREM does not need to be completed by the same patients as those included in the clinical audit.

Note that inpatients should not be included in the Audit.

Definition of a service

An Audit site is a service provided to a geographical area by consultants with (or without) a Parkinson's nurse, regardless of who commissions the constituent parts.

Clinicians are best placed to decide what constitutes a discrete service. Parkinson's nurses should conduct the Audit in collaboration with their patients' consultant service(s) – and vice versa.

Clinicians working across more than one discrete service should register separate services e.g. a consultant working with different Parkinson's nurses in different commissioning/geographical areas.

Contact us with any queries at: [email protected]

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Occupational therapy service standards and guidance

The Standards and Guidance document contains the Audit questions, the standards being audited, and the Audit background and methodology.

Audit and PREM documents

Eligibility criteria

  • Your occupational therapy service sees patients with idiopathic Parkinson's who've been referred to you in connection with their Parkinson's.
  • At least 10 of these people will be seen during the 5-month data collection and submission period (1 May – 30 September) either for a review appointment, active intervention or as newly referred patients undergoing full assessment.
  • Your service is able to return at least 10 Patient Reported Experience Measure (PREM) questionnaires. This is a short 11 question paper form which allows patients to express their views of their service. The PREM does not need to be completed by the same patients as those included in the clinical audit.

Note that inpatients should not be included in the Audit.

Definition of a service

For the purposes of the Audit, a 'service' is that administered from 1 office, regardless of how many different teams and geographical areas feed into their referrals.

Contact us with any queries at: [email protected]

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Physiotherapy service Standards and Guidance

The Standards and Guidance document contains the Audit questions, the standards being audited, and the Audit background and methodology.

Audit and PREM documents

Eligibility criteria

  • Your physiotherapy service sees patients with idiopathic Parkinson's who've been referred to you in connection with their Parkinson's.
  • At least 10 of these people will be seen during the 5-month data collection and submission period (1 May – 30 September) either for a review appointment, active intervention or as newly referred patients undergoing full assessment. The Audit questions relate to the initial physiotherapy assessment, rather than to follow-up appointments for interventions taking place after that initial assessment. This data can be extracted from the patient's notes retrospectively.
  • Your service is able to return at least 10 Patient Reported Experience Measure (PREM) questionnaires. This is a short 11 question paper form which allows patients to express their views of their service. The PREM does not need to be completed by the same patients as those included in the clinical audit.

Note that inpatients should not be included in the Audit.

Definition of a service

For the purposes of the Audit, a 'service' is that administered from one office, regardless of how many different teams and geographical areas feed into their referrals.

Contact us with any queries at: [email protected]

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Speech and language therapy service standards and guidance

The Standards and Guidance document contains the Audit questions, the standards being audited, and the Audit background and methodology.

Audit and PREM documents

Eligibility criteria

  • Your speech and language therapy service sees patients with idiopathic Parkinson's who've been referred to you in connection with their Parkinson's.
  • At least 10 of these people will be seen during the 5-month data collection and submission period (1 May – 30 September) either for a review appointment, active intervention or as newly referred patients undergoing full assessment.
  • Your service is able to return at least 10 Patient Reported Experience Measure (PREM) questionnaires. This is a short 11 question paper form which allows patients to express their views of their service. The PREM does not need to be completed by the same patients as those included in the clinical audit.

Note that inpatients should not be included in the Audit.

Definition of a service

For the purposes of the Audit, a 'service' is that administered from one office, regardless of how many different teams and geographical areas feed into their referrals.

Contact us with any queries at: [email protected]

Audit timeline

  • 18 February to 31 March - online registration was open for new and returning services
  • 1 May to 30 September - Audit data collection and submission period
  • 31 October - deadline for Audit data submission

Top tips - getting the most from taking part in the Audit

Services who participate in the Audit have suggested their top tips for getting the most out of it.

  • Build evidence for business cases and attract funding for service improvement from internal and external sources.
  • Use your service improvement project for a future Excellence Network Awards nomination.
  • Gain recognition within your organisation, and encourage greater multidisciplinary team working.

Past Audits

The 2017 Audit provided the largest ever picture about the state of Parkinson's services.

"A national audit is the only process by which people with Parkinson's can get the uniform and standardised care that is so essential. The audit process initiated and championed by Parkinson's UK ensures a process of national benchmarking, which includes a focus on key outcome measures - motor, non-motor and multidisciplinary - to ensure that the NHS continues to deliver quality care, with personalised medicine for all people with Parkinson's across all age groups."

- Ray Chaudhuri

South London Excellence Network lead, Consultant Neurologist and Professor in Neurology/Movement Disorders at Kings College and Institute of Psychiatry.

See how other services have used the Audit to make a difference to their work.