UK Parkinson's Audit - Transforming Care

The UK Parkinson's Audit is the recognised quality improvement tool for Parkinson’s services. It allows measurement of practice against evidence-based standards and patient feedback in a continuous cycle of improvement.

register now for the 2019 audit

All of the information your service needs to register for the 2019 UK Parkinson's Audit and begin, or continue, your cycle of improvement can be found here.

If you do need more information, contact us at [email protected].

audit timeline

  • 18 February to 31 March - online registration is open for new and returning services
  • 1 May to 30 September - Audit data collection and submission period
  • 31 October - deadline for Audit data submission

how to register

  1. Use our new, easy online registration tool to register yourself as a User, and then register your service. 2017 Audit participants need to re-register.
  2. Complete a separate registration for each service you wish to register.
  3. Look out for your confirmation email containing your service number, and Patient Reported Experience Measure (PREM) materials pack in the post.

By clicking on the link below you will be leaving the Parkinson's UK website and inputting your data into another website which is collecting the data on behalf of Parkinson's UK. If you have any queries, email [email protected].

Register for the Audit

Service eligibility, standards and guidance

Elderly care, neurology, physiotherapy, occupational therapy and speech and language therapy services can take part in the 2019 Audit. Check your individual service eligibility, Standards and Guidance document and service definition below.

Elderly care and neurology

Eligibility criteria

  • Your elderly care or neurology service sees patients with idiopathic Parkinson’s who’ve been referred to you in connection with their Parkinson’s.
  • At least 20 of these people will be seen during the 5-month data collection and submission period: 1 May – 30 September
  • Your service is responsible for these people’s ongoing management i.e. not seen as a tertiary referral for advice.
  • Your service is able to return at least 10 Patient Reported Experience Measure (PREM) questionnaires. This is a short 11 question paper form which allows patients to express their views of their service. The PREM does not need to be completed by the same patients as those included in the clinical audit.

Note that inpatients should not be included in the Audit.

Elderly care and neurology service standards and guidance

The Standards and Guidance document contains the Audit questions, the standards being audited, and the Audit background and methodology.

Definition of a service

An Audit site is a service provided to a geographical area by consultants with (or without) a Parkinson’s nurse, regardless of who commissions the constituent parts.

Clinicians are best placed to decide what constitutes a discrete service. Parkinson’s nurses should conduct the Audit in collaboration with their patients’ consultant service(s) – and vice versa.

Clinicians working across more than one discrete service should register separate services e.g. a consultant working with different Parkinson’s nurses in different commissioning/geographical areas.

Contact us with any queries. [email protected]

Occupational therapy

Eligibility criteria

  • Your occupational therapy service sees patients with idiopathic Parkinson’s who’ve been referred to you in connection with their Parkinson’s.
  • At least 10 of these people will be seen during the 5-month data collection and submission period (1 May – 30 September) either for a review appointment, active intervention or as newly referred patients undergoing full assessment.
  • Your service is able to return at least 10 Patient Reported Experience Measure (PREM) questionnaires. This is a short 11 question paper form which allows patients to express their views of their service. The PREM does not need to be completed by the same patients as those included in the clinical audit.

Note that inpatients should not be included in the Audit.

Occupational therapy service standards and guidance

The Standards and Guidance document contains the Audit questions, the standards being audited, and the Audit background and methodology.

Definition of a service

For the purposes of the Audit, a ‘service’ is that administered from one office, regardless of how many different teams and geographical areas feed into their referrals.

Contact us with any queries. [email protected]

Physiotherapy

Eligibility criteria

  • Your physiotherapy service sees patients with idiopathic Parkinson’s who’ve been referred to you in connection with their Parkinson’s.
  • At least 10 of these people will be seen during the 5-month data collection and submission period (1 May – 30 September) either for a review appointment, active intervention or as newly referred patients undergoing full assessment. The Audit questions relate to the initial physiotherapy assessment, rather than to follow-up appointments for interventions taking place after that initial assessment. This data can be extracted from the patient's notes retrospectively.
  • Your service is able to return at least 10 Patient Reported Experience Measure (PREM) questionnaires. This is a short 11 question paper form which allows patients to express their views of their service. The PREM does not need to be completed by the same patients as those included in the clinical audit.

Note that inpatients should not be included in the Audit.

physiotherapy service Standards and Guidance

The Standards and Guidance document contains the Audit questions, the standards being audited, and the Audit background and methodology.

Definition of a service

For the purposes of the Audit, a ‘service’ is that administered from one office, regardless of how many different teams and geographical areas feed into their referrals.

Contact us with any queries. [email protected] .

Speech and language therapy

Eligibility criteria

  • Your speech and language therapy service sees patients with idiopathic Parkinson’s who've been referred to you in connection with their Parkinson’s.
  • At least 10 of these people will be seen during the 5-month data collection and submission period (1 May – 30 September) either for a review appointment, active intervention or as newly referred patients undergoing full assessment.
  • Your service is able to return at least 10 Patient Reported Experience Measure (PREM) questionnaires. This is a short 11 question paper form which allows patients to express their views of their service. The PREM does not need to be completed by the same patients as those included in the clinical audit.

Note that inpatients should not be included in the Audit.

Speech and language therapy service standards and guidance

The Standards and Guidance document contains the Audit questions, the standards being audited, and the Audit background and methodology.

Definition of a service

For the purposes of the Audit, a ‘service’ is that administered from one office, regardless of how many different teams and geographical areas feed into their referrals.

Contact us with any queries. [email protected]

your audit report

Your submitted Audit data will be compiled and returned to you in an Individual Service Report, allowing you to:

  • See how your service shapes up against UK-wide results for your specialty
  • Plan a service improvement project. Support is provided for service improvement plans through the Excellence Network Service Improvement Team
  • Benchmark and measure distance travelled against previous Audit data

Top tips - getting the most from taking part in the Audit

Services who participate in the Audit have suggested their top tips for getting the most out of it:

  • Build evidence for business cases and attract funding for service improvement from internal and external sources.
  • Use your service improvement project for a future Excellence Network Awards nomination
  • Gain recognition within your organisation, and encourage greater multidisciplinary team working

Past Audits

The 2017 Audit provided the largest ever picture about the state of Parkinson's services.

Find out more about our past Audits.
Consultant completes paperwork with a patient
The Specialist Parkinson's Team at King's College Hospital standing together for a group photo

"A national audit is the only process by which people with Parkinson's can get the uniform and standardised care that is so essential. The audit process initiated and championed by Parkinson's UK ensures a process of national benchmarking, which includes a focus on key outcome measures - motor, non-motor and multidisciplinary - to ensure that the NHS continues to deliver quality care, with personalised medicine for all people with Parkinson's across all age groups."

Ray Chaudhuri, South London Excellence Network lead, Consultant Neurologist and Professor in Neurology/Movement Disorders at Kings College and Institute of Psychiatry.

See how other services have used the Audit to make a difference to their work.