UK Parkinson's Audit - Transforming Care
The UK Parkinson's Audit outlines the state of Parkinson's services, and highlights areas for improvement.
What are the findings?
The findings from the 2017 Audit are available for download below. Key areas for improvement are highlighted on this page.
Data from the Audit's Patient Reported Experience Measure (PREM), and Parkinson's UK's 2017 Your Life, Your Services survey (YLYS) have been combined. These data can be found on the Improving Quality page and can help you to improve the quality of Parkinson's healthcare from the perspective of people affected by Parkinson's.
Participating services are now working on action plans in response to Audit results with support from the UK Parkinson's Excellence Network Service Improvement team. Professionals involved in the Audit should contact their local service improvement adviser or email [email protected] to discuss results.
Areas for improvement
The 2017 Audit shows there have been improvements across many areas of practice since 2015. But there is still work needed across the following five areas for improvement to ensure quality services for everyone affected by Parkinson's.
Specialised multidisciplinary working
Parkinson's is a complex, chronic condition, and people with Parkinson's receive the best care within specialist Parkinson's or movement disorder clinics.
27.8% of elderly care and neurology services in the Audit operate as 'doctor alone' clinics.
See the PREM and YLYS data on access to multi disciplinary care.
Recording of non-motor symptoms continues to be poor in clinics. For example, blood pressure assessment was only documented in 65.1% of patients by neurology services.
It is still not the norm to use standardised guidance, assessments and outcome measures in occupational therapy, physiotherapy and speech and language therapy.
Anticipatory care planning
Only 36.8% of people with markers of advanced Parkinson's had recorded end-of-life care discussions.
Communication and information sharing
Just 61.1% of patients feel they are given enough information at
diagnosis. Written information about Parkinson's is still not routinely available in 7.7% of outpatient clinics.
See more PREM and YLYS data on information from diagnosis.
When someone with Parkinson's doesn't get their medication at the time prescribed for them their symptoms become uncontrolled.
Less than 50% of those admitted to hospital always got their Parkinson's medication at the right time. Of those who did not always receive their medication on time, 43.7% said this had a negative or significantly negative effect.
See more PREM and YLYS data on medicinces management.
Improving the Quality of Parkinson's Healthcare
What do people with Parkinson's, their families, friends and carers say about the quality of Parkinson's healthcare?
Get involved now
Participating services are now working on action plans in response to Audit results with support from the UK Parkinson's Excellence Network Service Improvement Team.
To discuss how your services can use the 2017 Audit results to guide benchmarking and service quality improvements now contact the Excellence Network at [email protected]
Taking part in the 2019 audit
Registration for the next Audit will open in February 2019, with data collection running from 1 May to 30 September 2019.
All services are encouraged to register, whether they have previously taken part in the Audit or not.
How does the audit work?
The UK Parkinson's Audit is carried out biannually by the UK Parkinson's Excellence Network.
The Audit assesses care provided to people with Parkinson's by a range of clinical specialties against evidence-based guidelines:
- Patient management – elderly care and neurology (PDF, 280KB)
- Occupational therapy (PDF, 345KB)
- Physiotherapy (PDF, 233KB)
- Speech and language therapy (PDF, 310KB)
People with Parkinson's who took part were also asked to complete a questionnaire to ensure that their views of their Parkinson's service are included in the audit.
The Excellence Network priority areas for improvement were first identified through the 2015 Audit and Hospital Episode Statistics (2011-12 and 2012-13).