UK Parkinson's Audit - Transforming Care

The UK Parkinson's Audit is the recognised quality improvement tool for Parkinson's services. It allows measurement of practice against evidence-based standards and patient feedback in a continuous cycle of improvement.

Data entry for the 2022 Audit is now open

Registered users can now log in and enter data for enrolled services. New users can also register on the system and review and enter data for enrolled services.

The information below describes what is required of eligible services.

If you need more information, please contact us at [email protected].

Audit timeline:

  • 1 May to 30 September: Audit data collection and submission period.
  • 31 October: deadline for Audit data submission.

Enrolled services: what to do now

Data collection for the 2022 Audit has now started. You can now log in and:

  • complete your Service Audit (this needs to be done once, by one person per service).
  • start entering your patient cases - you can collect this data first on the printable forms in the Standards & Guidance document for your speciality.

You can also start asking your patients to complete the Patient Reported Experience Measure (PREM) questionnaires which you will have received in your audit pack.

If you have not received your pack, please contact [email protected].

A version of the PREM in Welsh is available to download.

Service eligibility, standards and guidance

Elderly care, neurology, physiotherapy, occupational therapy, and speech and language therapy services can take part in the 2022 Audit. Check your individual service eligibility, standards and guidance document and service definition below.

Eligibility criteria

  • Your elderly care or neurology service sees patients with idiopathic Parkinson’s who’ve been referred to you in connection with their Parkinson’s.
  • At least 20 of these people will be seen during the 5 month data collection and submission period: 1 May to 30 September.
  • Your service is responsible for these people’s ongoing management, for example, not seen as a tertiary referral for advice.
  • Your service is able to return at least 10 Patient Reported Experience Measure (PREM) questionnaires. This is a short 10 question paper form which allows patients to express their views of their service. The PREM can be completed by any of your patients with Parkinson’s, even if they haven't been included in the clinical audit.

Note that inpatients should not be included in the Audit.
 

Elderly care and neurology service standards and guidance

The “standards and guidance” document contains the Audit questions, the standards being audited and the Audit background and methodology.

 

Definition of a service

An Audit site is a service provided to a geographical area by a consultant or group of consultants with (or without) a Parkinson’s nurse, or by Parkinson’s nurses alone without consultant input, regardless of who commissions the constituent parts.

Consultants and Parkinson’s nurses are best placed to decide what constitutes a discrete service. 

Clinicians working across more than one discrete service should register separate services. For example, a consultant working with different Parkinson’s nurses in different commissioning or geographical areas.

Contact us with any queries: [email protected]

Eligibility criteria

  • Your occupational therapy service sees patients with idiopathic Parkinson’s who’ve been referred to you in connection with their Parkinson’s.
  • At least 10 of these people will be seen during the 5 month data collection and submission period (1 May to 30 September) either for a review appointment, active intervention or as newly referred patients undergoing full assessment.
  • Your service is able to return at least 10 Patient Reported Experience Measure (PREM) questionnaires. This is a short 10 question paper form which allows patients to express their views of their service. The PREM can be completed by any of your patients with Parkinson’s, even if they haven't been included in the clinical audit.

Note that inpatients should not be included in the Audit.
 

Occupational therapy service standards and guidance

The “standards and guidance” document contains the Audit questions, the standards being audited and the Audit background and methodology.

 

Definition of a service

For the purposes of the Audit, a ‘service’ is that administered from one office, regardless of how many different teams and geographical areas feed into their referrals.

Contact us with any queries: [email protected]

Eligibility criteria

  • Your physiotherapy service sees patients with idiopathic Parkinson’s who’ve been referred to you in connection with their Parkinson’s.
  • At least 10 of these people will be seen during the 5 month data collection and submission period (1 May to 30 September) either for a review appointment, active intervention or as newly referred patients undergoing full assessment. 
  • Your service is able to return at least 10 Patient Reported Experience Measure (PREM) questionnaires. This is a short 10 question paper form which allows patients to express their views of their service. The PREM can be completed by any of your patients with Parkinson’s, even if they haven't been included in the clinical audit.

Note that inpatients should not be included in the Audit.
 

Physiotherapy service standards and guidance

The “standards and guidance” document contains the Audit questions, the standards being audited and the Audit background and methodology.

 

Definition of a service

For the purposes of the Audit, a ‘service’ is that administered from one office, regardless of how many different teams and geographical areas feed into their referrals.

Contact us with any queries: [email protected]

Eligibility criteria

  • Your speech and language therapy service sees patients with idiopathic Parkinson’s who've been referred to you in connection with their Parkinson’s.
  • At least 10 of these people will be seen during the 5 month data collection and submission period (1 May to 30 September) either for a review appointment, active intervention or as newly referred patients undergoing full assessment.
  • Your service is able to return at least 10 Patient Reported Experience Measure (PREM) questionnaires. This is a short 10 question paper form which allows patients to express their views of their service. The PREM can be completed by any of your patients with Parkinson’s, even if they haven't been included in the clinical audit.

Note that inpatients should not be included in the Audit.
 

Speech and language therapy service standards and guidance

The “standards and guidance” document contains the Audit questions, the standards being audited and the Audit background and methodology.

 

Definition of a service

For the purposes of the Audit, a ‘service’ is that administered from one office, regardless of how many different teams and geographical areas feed into their referrals.

Contact us with any queries: [email protected]

Your Audit report

Your submitted Audit data will be compiled and returned to you in an “Individual service report”, allowing you to:

  • see how your service shapes up against UK wide results for your specialty
  • plan a service improvement project. The Excellence Network Service Improvement Team will support you to develop service improvement plans
  • benchmark and measure distance travelled against previous Audit data.

Top tips: get the most from taking part in the Audit

Services who participate in the Audit have suggested their top tips for getting the most out of taking part:

  • Build evidence for business cases and attract funding for service improvement from internal and external sources.
  • Use your service improvement project for a future Excellence Network Awards nomination.
  • Gain recognition within your organisation and encourage greater multidisciplinary team working.

"A national audit is the only process by which people with Parkinson's can get the uniform and standardised care that is so essential. The audit process initiated and championed by Parkinson's UK ensures a process of national benchmarking, which includes a focus on key outcome measures - motor, non-motor and multidisciplinary - to ensure that the NHS continues to deliver quality care, with personalised medicine for all people with Parkinson's across all age groups."

Ray Chaudhuri

South London Excellence Network lead, Consultant Neurologist and Professor in Neurology/Movement Disorders at King's College London and the Institute of Psychiatry.

UK-wide Bone Health Improvement project

During 2021, we launched a UK-wide initiative to improve bone health and invited participation from elderly care and neurology services who took part in the 2019 Audit. 

The project data is currently being analysed and we will publish a report with the findings in mid-2022. You can read about early findings from the project below.

Past Audits

The UK Parkinson's Audit cycle reveals results every 2 years. See the findings from past Audits.