Most people with the condition are aged 50 or over, but younger people can get it too. Young onset Parkinson’s, early onset Parkinson’s, young onset Parkinson’s disease (YOPD) all mean the same thing. You have Parkinson's, but have been diagnosed at an early age.
Getting a diagnosis of young onset Parkinson’s affects everyone differently. Some people go through a range of emotions, from feeling overwhelmed to feeling relieved.
Talk to other younger people with Parkinson's
Chatting to others in a similar situation to you can be helpful. This list of UK-wide online support groups, run by and for younger people, can help you to connect with other younger people with Parkinson's.
These groups are independent of Parkinson's UK. We're confident they can be a good source of further support but the charity isn't responsible for their content, services or the accuracy of information provided.
Young onset Parkinson's podcast
This podcast series explores the experiences of people with young onset Parkinson's, and the issues that affect them. They also offer advice for anyone who has recently been diagnosed with the condition.
Alongside their symptoms, women under the age of 50 with Parkinson’s will have to manage periods, and later, the menopause. Emma and Sally share the challenges they face as younger women with the condition.
Nick was diagnosed with Parkinson’s in 2014. He reflects on his diagnosis and how support from other young people with Parkinson's and staying active has helped him.
Simon is 41 and was diagnosed with Parkinson’s 6 years ago. The news was life-changing, but Simon’s adapting and learning that life hasn’t got to stop. “You have to take each day as it comes and don’t let it get you down,” he says.
Kuhan described himself as a happy-go-lucky chap before he was diagnosed with Parkinson’s, aged just 38. The shock was seismic. But a decade on, Kuhan has a new sense of perspective.
Helpline and Parkinson's advisers
Our helpline and Parkinson's advisers are here to answer any questions you have about being younger with Parkinson's.
Call us on 0808 800 0303.