Young onset Parkinson's
Being diagnosed with young onset Parkinson's can be alienating and confusing. But you're not alone.
Talk to other younger people with Parkinson's
Chatting to others in a similar situation to you can be helpful. This list of UK-wide online support groups, run by and for younger people, will help you to connect with other younger people with Parkinson's.
These groups are independent of Parkinson's UK. We're confident they can be a good source of further support but the charity isn't responsible for their content, services or the accuracy of information provided.
Younger Parkinson's Alliance
The Younger Parkinson's Alliance have lived experience of young onset Parkinson's. They are passionate about ending stigma and creating change.
They also have a series of podcasts talking about the issues that affect them:
Podcast 1: Being diagnosed with Parkinson's
Podcast 2: Parkinson's medication
Podcast 3: Parkinson's and exercise
Podcast 4: Parkinson's and finances
Please email the group for more information.
"The attitude seems to be that they are ‘women’s troubles’ and I just have to put up with them. Obviously this is frustrating. The fluctuations I have in my symptoms around my period challenge my quality of life, which is already a struggle to maintain when you have Parkinson’s.”
Alongside their symptoms, women under the age of 50 with Parkinson’s will have to manage periods, and later, the menopause. Emma and Sally share the challenges they face as younger women with the condition.
Lots of people think the menopause is just hot flushes, but it can be so much more than that.
Dr Rebecca Lewis is a GP, with a special interest in menopause. Here, she explains what the menopause is, how symptoms can be similar to Parkinson’s, and how it can be treated.
Our helpline and Parkinson's local advisers are here to answer any questions you have about being younger with Parkinson's.
Call us on 0808 800 0303.
People with Parkinson's in England who work have to pay for their prescriptions. We don't believe this is right or fair - so we're campaigning for change.
Find local services, activities and support
We've adapted many events and activities so that you can access them safely during the pandemic. Enter your postcode to find out what's available near you.