Make benefits work for people with Parkinson's

People with Parkinson's rely on financial support to stay independent and in control. Working with the Parkinson's community, we're campaigning to make sure the system is fair.

What we believe

There are a variety of benefits that people may be entitled to when they have Parkinson's or care for someone with the condition. This can vary according to whether you're working or retired. 

We want to see a system that enables people with Parkinson's to maintain their wellbeing and independence. That's whether you're receiving Personal Independence Payments (PIP), Employment and Support Allowance (ESA), Attendance Allowance or Universal Credit.

We're campaigning to:

  • Make sure that any new medical assessments are designed to fully take into account the reality of living with Parkinson’s.
  • Make sure benefits assessments are conducted sensitively and by assessors who understand Parkinson's, so that people get the right support the first time round.
  • Make sure that people with Parkinson’s are only moved from older benefits to Universal Credit when it is safe and fair to do so.
  • Make sure Universal Credit works for disabled people. We want to see a disability element added to Universal Credit, the right to appeal against a claimant commitment, a specialist disabled claim line and proper disability awareness training for DWP staff.

  • Reduce waiting times for benefit appeals.

Janet's story

We campaign to help people like Janet. Janet has Parkinson's and relies on her specially built car to help her get around.

When her mobility allowance was stopped, she thought she might lose her car.

We're fighting to stop cuts like these.

Hear about Janet's experience in our short video.

Ask your MP to contact the chancellor about the cost of living

Last year we surveyed the Parkinson's community and found that almost two thirds of respondents said they were struggling to cover their living costs.

And 40% said that their symptoms had been made worse by their financial situation. 

Use our quick and easy form to write to your MP today and share the impact of the problems that many people with Parkinson’s and their families are facing.

People on disability benefits are losing out

We worked together with the Disability Benefits Consortium to look at the impact of the changes made to disability benefits. 

We're deeply concerned to see how the safety net for disabled people has been eroded. Too many people with Parkinson's are finding themselves left without the right financial support to live independently.

This is why we're campaigning to make benefits work for people with Parkinson's.

Download Has welfare become unfair? (PDF, 15.11MB).

Join our Campaigns Network

Join our movement of over 8,000 people. We'll send you updates about our work, including our campaigns to make disability benefits fairer.

With a few clicks you can help make a real difference for people living with Parkinson's.