Become a campaigner
Join a community of campaigners all working together for people with Parkinson's.
Campaigning is more important than ever right now. Cost of living. Access to better healthcare. NHS backlogs. We're fighting for people with Parkinson's.
And you can help. In a way that works for you. Fight for high-quality health and social care and a benefits system that helps everyone when they need it.
How can I help?
Changes to benefits will impact people living with Parkinson’s and other disabled people across the UK.
Sign our open letter so the government knows it needs to urgently rethink its harmful proposals.
Personal stories are essential in raising awareness of what it's really like for people living with Parkinson's, as well as their care partners and families.
Join our team of volunteer campaigners working locally to address the needs of people with Parkinson's.
Join our movement of over 8,000 people. Support in various ways each month and make a real difference.
Get inspired
Campaigners and volunteers are vital to our work. Hear from some of them below on what it means to be involved.
Mark's story
“I'd recommend attending one of the party conferences with Parkinson’s UK.
“The lived experience is integral to helping people in power understand what it’s really like for carers and the cared for, and why our 'asks' are so important.
“It can be a bit nerve-wracking if you haven’t spoken to MPs before, but the staff team are really good at supporting volunteers to get their points across, and the MPs are willing to listen and help where they can.”
Carer Mark Worrall meeting with Justin Madders MP at the 2024 Labour Party conference
Peter's story
"It's more important than ever for the government and MPs hear from people with Parkinson's about challenges they are having with accessing care.
"My wife Laurel (who has been living with Parkinson’s for nearly 11 years) and I met with Sarah Champion, our local Lib Dem MP and her team. We shared our concerns about Parkinson's services in Buckinghamshire and asked her to take action.
"We were delighted that Sarah tabled four written questions in Parliament and also wrote to the Chief Executive of Bucks Healthcare NHS Trust.
"We've thanked her for asking questions and suggested she joins the All-Party Parliamentary Group on Parkinson's. I'd encourage any groups or volunteers to reach out to their MP, and get in touch with the Campaigns Team if you need help."
Christine's story
"It was great to be at the Lib Dem conference in Brighton this year.
"I found it very interesting to meet 4 MPs and be able to talk to them about my experiences of living with Parkinson's, and how they could help us to fulfil some of the priorities Parkinson's UK have this year.
"There was a real buzz at the conference, not least because the Lib Dems gained 72 MPs following the general election.
"Brighton was fun, I even managed to have a paddle!"
Volunteer Christine meeting with Steff Aquarone MP along with Laura Cockram, Parkinson's UK's Head of Campaigns, at the 2024 Liberal Democrat conference
Latest campaign news
A summary of how assisted dying legislation is progressing in Westminster and the Scottish Parliament, and what happens next.
On 1 May MPs debated Parkinson's in Westminster and called on the government to take action to improve services and support for people living with the condition.
In response to the recent UK government announcement of the biggest disability support cuts for a decade, we’re rallying support to stop this attack on income for working age people with Parkinson’s and their families.
The UK government has announced its plans to make Personal Independence Payment (PIP) and the Universal Credit health element harder to access in England and Wales.
Get in touch
We're here to answer any questions and give you any support around campaigning. Email the Campaigns team at [email protected]