Become a campaigner

You can become a part of Parkinson's UK's campaign team. Either by joining our community of online campaigners or signing up to become a Campaigns Volunteer!

"We want to make a difference. Parkinson's won't beat us."

Ruth and Tina - Campaigns Volunteers from Peterborough meeting Sir Mike Penning MP

Get inspired: campaigning success stories

People with Parkinson's have access to specialist nurses in South Tyneside, East Riding and Hull, Bristol and North Derbyshire and Erewash because of our campaigning.

Thousands of campaigners have signed petitions, written to decision makers and met with health bodies to push for crucial nurses.

With specialist experience, knowledge and skills, Parkinson's nurses are a lifeline for people throughout the UK.

Over 34,000 supporters signed our petition calling for a fair deal for people living with Parkinson's claiming Personal Independence Payments (PIP).

The government listened and has agreed to stop reassessing people on the highest rate of PIP from when it was introduced.

This means people on the highest rates of PIP won't face stressful reassessments when living with a long-term condition that won't get better.

In July 2015 NHS England agreed to fund Duodopa - a drug that can help control Parkinson's symptoms in cases where all other oral medications have stopped working. 

This was followed by decisions to fund it in 2016 in Scotland, in Northern Ireland in 2017 and finally in Wales in 2018.

For the small number who are eligible it can be life-changing, as it administers dopamine continuously to control symptoms.

In January 2017 the government agreed not to devolve responsibility for Attendance Allowance to local councils in England. We had been campaigning for this since the summer of 2016, with our Campaigns Network members sending over 800 emails to their local decision makers.

Attendance Allowance is a disability benefit that supports 36,000 older people with Parkinson's. If the government's proposal had been implemented, these people would have faced a postcode lottery and may have lost out on access to vital support.

The Scottish government committed to establishing a single Scottish centre for deep brain stimulation (DBS) surgery in Glasgow by Autumn 2016.

People in the North and East of Scotland will now have access to DBS and won't have to travel to England for assessments, surgery and follow up care.

Alongside the Prescription Charges Coalition and Long Term Conditions Alliance in Northern Ireland we kept prescriptions free in 2015.

Our members attended an event at Stormont to lobby politicians to ensure the voices of people with Parkinson's were heard by each political party.

Now, people with Parkinson's can continue to be free from the financial burden of prescription charges.

In June 2015 The European Commission officially rejected a petition to impose a ban on all animal research within the EU.

Our campaigners throughout the UK told their MEPs how vital animal research has been to Parkinson's research.

It's led to increased knowledge of the condition and treatments like deep brain stimulation.

Lightburn hospital, a community facility in Glasgow that offers specialist rehabilitation for people living with Parkinson's, was threatened with closure.

Over 900 supporters signed our petition to keep the hospital open and local campaigners met with MSPs to plead the case. 

This pressure meant the decision to close the hospital was reversed.