Become a campaigner
Join a community of campaigners all working together for people with Parkinson's.
Campaigning is more important than ever right now. Cost of living. Access to better healthcare. NHS backlogs. We're fighting for people with Parkinson's.
And you can help. In a way that works for you. Fight for high-quality health and social care and a benefits system that helps everyone when they need it.
How can I help?
Ask your MP to join the All-Party Parliamentary Group on Parkinson's and be a champion for the community in Parliament.
Personal stories are essential in raising awareness of what it's really like for people living with Parkinson's, as well as their care partners and families.
Join our team of volunteer campaigners working locally to address the needs of people with Parkinson's.
Join our movement of over 8,000 people. Support in various ways each month and make a real difference.
Get inspired
Campaigners and volunteers are vital to our work. Hear from some of them below on what it means to be involved.
Garth's story
"I have Parkinson’s myself, there’s a high chance I could develop dementia. It’s vital we improve the care for people in our community with the condition.
"I used to be a nurse, I’ve seen first-hand the impact poor care can have on people with Parkinson’s. The training social care workers receive isn’t good enough, it has to improve."
Ann and Andrew's story
"It was really interesting to be at the Conservative Party conference and see how it works. It was a chance to express yourself and raise concerns.
"The MPs we spoke to were interested to learn more about Parkinson’s and the issues we were raising.
"This was a chance to make a real difference."
Ann, Andrew and Clive meeting with Peter Aldous, MP for Waveney at the 2023 party conference.
Barrie's story
"When I started campaigning I wanted to increase understanding and awareness of Parkinson's.
"I've shared my experience about living with the condition with MPs at party conferences, in the media and also the problems I've had with my medication being changed from branded to a generic, with the health and social care committee in Parliament.
"Being able to share my experience is important, as I want things to improve for everyone living with the condition. And it's given me hope for the future!"
Campaigners Barrie (left) and Jeff, meeting with Selaine Saxby MP at the 2022 party conference.
Latest campaign news
Following years of relentless campaigning by our community, NHS England has launched a programme to ensure people with Parkinson's get their medication on time.
The Darzi review, an independent investigation of NHS performance in England, has been published. Here is what it means for people with Parkinson's.
Scottish government outlined their programme of work and shared an important new law that we advocated for, that will enable more people with Parkinson’s to take part in vital research.
We welcome the first release of Lewy body dementia diagnosis data.
Get in touch
We're here to answer any questions and give you any support around campaigning. Email the Campaigns team at [email protected]