Campaigning for change

Together with volunteers across the UK we fight for better support for people affected by Parkinson's. We're building a movement to fight for a fair benefits system and high quality health and social care.

Because of the coronavirus (COVID-19) outbreak, UK governments have introduced new laws, policies and procedures to guide how we live during this pandemic. This includes how NHS services, social care and benefits will be delivered. 

Health, social care, and benefits must meet your needs. Right now, it’s clear that not everyone’s needs are being met. So, we listen to your concerns and experiences. And we talk to the relevant governments and organisations. We demand they take action, to make sure you’re treated fairly.

Here are some of the issues we're fighting for.

What Matters Most

Earlier this year we asked the Parkinson’s community what you thought were the most important issues for us to campaign on through our ‘What matters most?’ survey and our coronavirus poll.

We've published the report and the results told us that our community want us to focus our campaigning for the next four years on:

  • High quality health and social care. 

  • Having access to the right treatments at the right time.

  • Being able to access financial benefits. 

  • Getting medication on time in hospital or a care home. 

Share your story

Personal stories are essential in helping to raise awareness of what it's really like for people living with Parkinson's.

If you are happy to share your story with us, we would love to hear from you.