Volunteer Wesley Vernon, in sunglasses outside

Shaping 'Parkinson's Is'

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People with Parkinson's have told us that they don't feel understood - we know from research that the public doesn't think that Parkinson's is a serious condition. In 2019 and beyond, we're working hard to change this.

We need everyone to see Parkinson's as the serious health condition that it is, and the major impact it has on everyday life - and for people to want to do something about it. To do this, we're using World Parkinson's Day on 11 April to launch 'Parkinson's Is', an attention-grabbing marketing campaign. This campaign will show the reality of life with Parkinson's through hard-hitting online video and stories in the media.

Not Just the Shakes

The campaign video has been shaped by feedback from people affected by Parkinson's, like Wesley, who volunteers with his Local Development Team in Cheshire and Merseyside, and on the Macclesfield and district branch committee.

Wesley says:

"The public need to hear about the harsh reality of life with Parkinson's. It's the everyday I would want people to know about, what living with Parkinson's really is about – for example the difficult task of getting up in the morning.

"The lack of understanding we are fighting against can be illustrated by a situation my son in law handled when working as a pub manager. He was looking for sponsors for my daughter who was running a marathon for Parkinson's UK. A customer commented that he wouldn't donate to this (Parkinson's) as it's "not like cancer, it’s just a condition where you shake."

Feedback like this has shaped the campaign, as Zohra Vermani, marketing manager – brand, explains:

"This campaign spotlights real people living with Parkinson's and shows some stark truths about what it’s really like to live with the condition. Together, we want to grow a movement of people who want to end Parkinson's – even if they aren't affected by it. This campaign is a catalyst to start this change."

"This is an ambitious and brave campaign for us – and one I'm excited about. It's sad to know that unless you're impacted by Parkinson's, you can often trivialise the impact of living with it. 

Keep an eye on the campaign webpage to learn more about 'Parkinson's Is' as it develops. 

Ambitious plans ahead in 2019

Last year our board of trustees signed off the charity's ambitious plans for 2019 and beyond. Chief Executive Steve Ford shares an update.