The 2019 UK Parkinson’s Audit - driving forward healthcare improvements with data

The latest results from the UK Parkinson’s Audit provide a mixed report on Parkinson’s healthcare services, but show some positives from people with Parkinson’s and their supporters.

Parkinson’s UK conducts the UK Parkinson’s Audit every other year. It’s a standardised way to measure the quality of healthcare provided by Parkinson’s health services. 

During a set period of five months, Parkinson’s healthcare services across the UK are asked to assess the care they provide against evidence-based standards. People with Parkinson’s and their families and friends attending clinics are also asked to complete anonymous questionnaires (called Patient Reported Experience Measures) about their care.

Services are then encouraged to work with Parkinson’s UK to see how they can make service improvements. The improvements should then be recorded in the next audit, two years later.

The thoughts of thousands 

In 2019, doctors and Parkinson’s nurses in Elderly Care and Neurology teams and physiotherapy, occupational therapy and speech and language therapy services across the UK provided data on the care they gave to 10,335 people with Parkinson’s. 

The views of 8,247 people with Parkinson’s and their family and friends were also collected via anonymous Patient Reported Experience Measure (PREM) questionnaires. 

This was the largest UK Parkinson’s Audit to date, meaning we have an even clearer picture of improvements made, as well as the challenges faced by services across the UK.

The results

90.4% of PREM respondents rated the quality of service they receive as excellent or good.

However, data from both health services and people with Parkinson’s left room for improvement.

Results highlight the need for services to work more closely as multidisciplinary teams, using standardised checklists and tests, communication and information sharing, medicines management and more Parkinson’s specific training opportunities, especially for therapy staff.

Next steps

With many healthcare professionals  currently working in different roles to support the NHS through the coronavirus (COVID-19) pandemic, we’ve paused work on improving services for now.

As healthcare teams return to normal working, Parkinson’s UK will support each service who took part in the audit to work on areas for improvement. 

Health services will also be encouraged to join two UK-wide projects. One will focus on bone health, and the other on induction and Parkinson’s training for new therapists.

The full UK Parkinson’s Audit reports, including a list of all services that took part in the Audit, are available on our website. This webpage includes results broken down by profession and the full PREM results. 
The next audit will take place in 2021. We’ll let people affected by Parkinson’s know how they can encourage their health services to take part next year.

Find out more

Learn about the current and past UK Parkinson's Audits. See the full audit results and find out which services took part.