Find out what we discovered in our past UK Parkinson's Audits.
The 2017 Audit provided the largest ever picture about the state of Parkinson's services to date. It revealed there have been improvements across many areas of practice, but that work was needed across the 5 areas for improvement shown below.
Data from the 2017 Audit's Patient Reported Experience Measure (PREM) were combined with Parkinson's UK's 2017 Your Life, Your Services (YLYS) survey to make the data accessible to a wider audience. This combined snapshot can be seen on the Improving Quality pages.
2017 audit areas for improvement
Specialised multidisciplinary working
Parkinson's is a complex, chronic condition, and people with Parkinson's receive the best care within specialist Parkinson's or movement disorder clinics.
27.8% of elderly care and neurology services in the Audit operate as 'doctor alone' clinics.
See the PREM and YLYS data on access to multi disciplinary care.
Recording of non-motor symptoms continues to be poor in clinics. For example, blood pressure assessment was only documented in 65.1% of patients by neurology services.
It is still not the norm to use standardised guidance, assessments and outcome measures in occupational therapy, physiotherapy and speech and language therapy.
Anticipatory care planning
Only 36.8% of people with markers of advanced Parkinson's had recorded end-of-life care discussions.
Communication and information sharing
Just 61.1% of patients feel they are given enough information at
diagnosis. Written information about Parkinson's is still not routinely available in 7.7% of outpatient clinics.
See more PREM and YLYS data on information from diagnosis.
When someone with Parkinson's doesn't get their medication at the time prescribed for them their symptoms become uncontrolled.
Less than 50% of those admitted to hospital always got their Parkinson's medication at the right time. Of those who did not always receive their medication on time, 43.7% said this had a negative or significantly negative effect.
See more PREM and YLYS data on medicines management.
Improving the Quality of Parkinson's Healthcare
Find out what people with Parkinson's, their families, friends and carers said about the quality of Parkinson's healthcare in 2017, with our combined Audit and Your Life, Your Services survey data.
More past audits
The 2015 UK Parkinson's Audit gave the first proper overview of the state of Parkinson's services, showcasing good practice but highlighting many areas for improvement.
It was the first to include a Patient Reported Experience Measure (PREM), giving people with Parkinson's a stronger voice in rating the services they receive.
The 2015 Audit identified priorities for change and areas for improvement:
- Access to a full multidisciplinary team
- Timely provision of patient information
- Addressing issues with inpatient management
- Consistent uses of standardised assessments
- Anticipatory care planning
This audit reported on the care provided to 4,079 people with Parkinson's - from elderly care, neurology, occupational therapy, physiotherapy and speech and language therapy services.
Occupational therapy, physiotherapy and speech and language therapy were added in 2011. Previously, the audit focused on neurology care and elderly care services only.
This audit evaluated care given to 6,106 patients with Parkinson's from 325 services (equivalent to 191 Trusts).
We audited 1,880 patients with a suspected Parkinson's diagnosis from 53 Trusts or equivalent organisations.
The first Parkinson's Audit, with 41 centres who provided elderly care or neurology services giving data on 1,256 patients.