Our views
We work with decision makers across the UK and the Parkinson's community to improve the lives of people with Parkinson's, their families, friends and carers. Discover our policy work and our views on key issues people with Parkinson's face.
Influencing change
Our policy work is based on discussions with people with Parkinson's and their carers to understand the challenges they face and what needs to change. We also talk to health and social care professionals and other experts.
Discover how our policy work makes sure the Parkinson's community's views are heard and makes change happen.
Improving access to care
People with Parkinson's should have the health services they need to live well, but for many, this is not the reality. Up to 21,000 people are on waiting lists, undiagnosed and unsupported. And 1 in 5 have little or no access to a Parkinson's nurse. We’re working to make sure everyone with Parkinson’s has access to the care they need.
Increasing access to financial support
People with Parkinson's should have access to benefits to help them stay in work, live well and have enough money to live on. But many find the system stressful and feel it doesn't support people whose symptoms change from day to day.
Putting research into practice
The government has underinvested in Parkinson’s research. But researchers are still making progress to understand the condition and find new treatments. The NHS must be ready so people can get these treatments as quickly as possible.
Our Policy Panel
Our Policy Panel is a group of people with experience of Parkinson's as a condition. They help us form our official positions on public policy matters.
Jane Keene, Panel member explains what the Panel means to her:
”Having been involved with Parkinson's UK for over 22 years, I finally feel I have found the best place for my interest, knowledge and experience on the policy panel, as ultimately this is where change can be affected most for people with Parkinson's”.
Share your thoughts
We want to make sure that the Policy Panel continues to reflect the experiences of people from across the UK and from underrepresented groups.
If there is a particular issue you think we should focus on, please let us know.
Contact the Policy team: [email protected]
Share your story
Real stories from people with Parkinson’s and their care partners show decision-makers what life is really like and why change is urgently needed.
If you have a story to share, we'd love to hear it.