Start referring your patients into Parkinson’s Connect

Parkinson’s Connect is a free, comprehensive new support service for your Parkinson’s patients. It brings together everything they, and their loved ones, need to live better with Parkinson’s.

Parkinson’s Connect is the trusted, expert information and advice Parkinson’s UK have been providing for over 50 years, made more accessible and relevant to your individual patients, and their family and friends.

Register your interest now and we’ll help set up you and your clinical team as a Parkinson’s Connect direct referral site.

Refer your patients for trusted support

You can refer anyone impacted by a recent Parkinson’s diagnosis. We’ll reach out proactively, and securely, to connect them to high quality support. 

What does Parkinson’s Connect offer?

It’s for everyone with Parkinson’s, as well as family, friends and carers. Throughout someone’s journey with Parkinson’s, Parkinson’s Connect offers tailored support, online or offline. 

We’ve co-designed the service with over 300 patients, their families and healthcare professionals to make sure it works for everyone. And we’ll keep developing it based on feedback from the people using it. 

We connect your patients and their loved ones with a whole network of support, including:

  • Easy to understand reliable health information, including expert tips and guidance on everything from work and finances to exercise, relationships and family life. 
  • Someone to listen on the phone or in person, answer questions, and guide people when they don’t know where to start or what to do next. We’ll connect them with our local and specialist adviser teams for more complex support needs.
  • The option to create a profile to get additional tailored support based on the information people choose to share.
  • Recognising and providing tailored support to family, friends and carers.
  • Opportunities to connect with other people with Parkinson’s, families, friends and carers, across the UK and in a local area.

Register your interest to give your patients access to Parkinson’s Connect now.

Who is Parkinson’s Connect for?

We aim to be there for every single person with Parkinson’s and their family. As we roll out and expand the service, we’ll open it to people at all stages of their journey with Parkinson’s.

Right now, as we launch Parkinson’s Connect across the UK, we’re opening part of the service – referrals from healthcare professionals – for recently diagnosed people only. This means anyone who is still coming to terms with their diagnosis and looking for initial information and support. There’s no strict time limit, because we know that getting a Parkinson’s diagnosis affects everyone differently. 

We’ve trialled the referral service with 6 healthcare teams in England and Scotland, who have referred over 370 people since January 2020. As we roll out referrals across the UK and more people start using the service, we’ll keep improving and developing referrals and Parkinson’s Connect together based on what we learn along the way.

How to refer your patients into Parkinson’s Connect

Parkinson’s Connect referrals build on your trusted relationship with your patients. Once someone is referred, with consent, we proactively contact them, or their family and friends, and provide tailored support – building on the support you already provide.

We’ve made the process as simple as possible and we’ll support you with any questions along the way. You just need to complete an online form to register your intention to refer patients.

Once we have your details, we’ll get in touch to establish a lead contact in your team and provide them with an Information Sharing Agreement and supporting documents. Once these are complete, you’ll receive your unique referral link and you’ll be ready to refer patients.

We’ll help you throughout the process of getting set up, and you’ll be able to email or call us if you have any questions. If you choose, you can also receive updates and send us feedback to improve the referral process.

Register your interest to refer your patients

In a few easy steps, you can refer anyone with a recent Parkinson’s diagnosis.