Information and support for all newly diagnosed people
The information and support from Parkinson's UK is there for all newly diagnosed people.
It's important that people who are newly diagnosed with Parkinson's, and their family and friends, know how to access the right information and support. You should signpost your patients to Parkinson's UK at the point of diagnosis, so that they can access this when they are ready.
Why is signposting from diagnosis so important?
This infographic summarises why it's important to signpost people to the right information and support at the point of diagnosis. Please share it with your colleagues.
Resources for you to use
The Excellence Network has produced a range of resources to help you do this, available to download below. They include:
- text to include in your clinic letters to patients and/or their GPs, so that patients know where they can get ongoing support when they are ready (available in English and Welsh)
- a postcard about information and support from Parkinson's UK which you can give to your patients at diagnosis or include with clinic letters (available in English - order code PK0499, and Welsh - order code PK0500)
You can order the postcards free of charge online, by phone or by email, or view and print the PDFs below:
- Order direct from the Parkinson's UK shop
- Call 0300 123 3689
- Email [email protected] (please include your delivery address and the name and code of the item)
Please choose which resources to use depending on what suits your practice.
FAQ's - Reasons to signpost to Parkinson's UK
People with Parkinson's tell us that having the right information at the right time helps them take control of life with the condition, but some clinicians have told us they feel apprehensive about signposting someone to Parkinson's UK at the point of diagnosis.
The following information provides answers to questions clinicians have posed, and highlights the benefits of signposting people to Parkinson's UK at diagnosis.
Parkinson's UK is for everyone affected by the condition whether they are newly diagnosed, have lived with the condition for many years, or are a family member, friend or carer.
A Parkinson's diagnosis affects people differently, and symptoms vary from patient to patient. We have information and support available for everyone.
We have worked with newly diagnosed people of all ages to develop relevant and appropriate information and support for them, their families and carers. This includes:
- answers to key questions
- support and activities in their local area, including the First Steps programme for newly diagnosed people
- insights into the experiences of other people with Parkinson's
- access to Parkinson's UK staff, who are trained to deliver the right support to people facing a new diagnosis
A Parkinson's diagnosis affects everyone differently.
Some people go through a range of emotions and may feel shocked, overwhelmed and worried about how to cope. Others feel relieved to know what's going on.
But everyone can benefit from having the right information and support at this crucial time.
Information and support from Parkinson's UK helps people manage the condition and carry on with their day-to-day lives.
We offer support online, on the phone, in print or in person - whether they want information about Parkinson's, an answer to a question or to talk to someone about how they're feeling. No question is too big or small.
Professionals like you review all of our information to make sure it follows UK clinical best practice.
We've held the NHS Information Standard since 2010. This means we produce information that:
- is clear, accessible and for everyone affected by Parkinson's
- helps people with Parkinson's make informed decisions about how they manage their condition
- is up to date and evidence based thanks to regular reviews and updates
- We can help your patients connect with other people with Parkinson's for support.
- We know that people with Parkinson's are keen to help find better treatments and a cure – even when they’re newly diagnosed. That’s why we've developed our Take Part Hub – to help people find research in their area that’s right for them.
you need to have
lots of information
and know the options."