Signposting from diagnosis

We've worked with people who are newly diagnosed with Parkinson's to develop this range of resources.

They will help you to signpost people to the right information and support at the point of diagnosis.

Information and support for all newly diagnosed people

The information and support from Parkinson's UK is there for all newly diagnosed people.

It's important that people who are newly diagnosed with Parkinson's, and their family and friends, know how to access the right information and support. You should signpost your patients to Parkinson's UK at the point of diagnosis, so that they can access this when they are ready.

Resources for you to use

The Excellence Network has produced a range of resources to help you do this, available to download below. They include:

  • text to include in your clinic letters to patients and/or their GPs, so that patients know where they can get ongoing support when they are ready (available in English and Welsh)
  • a postcard about information and support from Parkinson's UK which you can give to your patients at diagnosis or include with clinic letters (available in English - order code PK0499, and Welsh - order code PK0500)

You can order the postcards free of charge by phone or email:

  • Call 0300 123 3689
  • Email [email protected] (please include your delivery address and the name and code of the item)

Please choose which resources to use depending on what suits your practice.

 

Resources to help you signpost at diagnosis

The English postcard (order code PK0499) and Welsh postcard (order code PK0500) below can be ordered for you to hand to your patients at diagnosis.

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Signposting from diagnosis postcard - English (PDF, 1MB)
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Signposting from diagnosis postcard - Welsh bilingual (PDF, 2.35 MB)
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Signposting from diagnosis - clinic letter text (PDF, 105 KB)
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FAQs

Sometimes clinicians feel apprehensive about signposting someone to Parkinson's UK at the point of diagnosis.

We've answered some of the most frequently asked questions below, to explain the benefits of signposting from diagnosis.

Who can Parkinson's UK help?

Parkinson's UK is for everyone affected by the condition – at every age and every stage – whether they are newly diagnosed, have lived with the condition for many years, or are a family member, friend or carer.

A Parkinson's diagnosis affects people differently, and symptoms vary from patient to patient. We have information and support available for everyone.

Is Parkinson's UK relevant and appropriate for newly diagnosed people?

Yes. We have worked with newly diagnosed people of all ages to develop  relevant and appropriate information and support for them, their families and carers. This includes:

  • answers to key questions
  • support and activities in their local area
  • insights into the experiences of other people with Parkinson's
  • access to Parkinson's UK staff, who are trained to deliver the right support to people facing a new diagnosis

What does Parkinson's UK offer?

Information and support from Parkinson's UK helps people manage the condition and carry on with their day-to-day lives.

We offer support online, on the phone, in print or in person - whether they want information about Parkinson's, an answer to a question or to talk to someone about how they're feeling. No question is too big or small.

When should I start telling my patient about Parkinson's UK?

People with Parkinson's tell us that having the right information at the right time helps them take control of life with the condition.

The signposting from diagnosis resources make it easy for you to signpost your patients to our information and support from diagnosis. We're here to help from the very beginning of someone's journey.

Is Parkinson's UK's information trusted and evidence based?

Professionals like you review all of our information to make sure it follows UK clinical best practice.

We've held the NHS Information Standard since 2010. This means we produce information that:

  • is clear, accessible and for everyone affected by Parkinson's
  • helps people with Parkinson's make informed decisions about how they manage their condition
  • is up to date and evidence based thanks to regular reviews and updates

Find out more about our information and the Information Standard.

How do people feel when they're diagnosed with Parkinson's?

A Parkinson's diagnosis affects everyone differently.

Some people go through a range of emotions and may feel shocked, overwhelmed and worried about how to cope. Others feel relieved to know what's going on.

But everyone can benefit from having the right information and support at this crucial time.

What else does Parkinson's UK do?

  • We can help your patients connect with other people with Parkinson's for support.
  • We know that people with Parkinson's are keen to help find better treatments and a cure – even when they’re newly diagnosed. That’s why we've developed our Take Part Hub – to help people find research in their area that’s right for them.
Infographic about why it's important to signpost people to the right information and support

Why is signposting from diagnosis so important?

This infographic summarises the FAQs above and shows why it's important to signpost people to the right information and support at the point of diagnosis.

See the infographic (PDF, 1MB)