Although Parkinson’s is different for everyone, current UK government advice for people with Parkinson’s is still to stay at home as much as possible. Check the guidance for your local area as this may be different to the advice in the rest of your country.
This page was originally published on 3 March 2020, and was updated on 9 July 2020 at 5.10pm. This advice is updated as new information becomes available.
Our in-person events and activities are still suspended. We’ll continue to monitor the guidance across the 4 nations. And we'll update the advice for face-to-face meetings and activities by Monday 31 August.
What should I do?
Stay at home as much as possible
Following recent briefings from governments in devolved countries, and from the UK government, guidance for people in England, Wales, Scotland and Northern Ireland is to stay at home as much as possible. The Prime Minister said, “There is one certainty: the fewer social contacts you have, the safer you will be.”
The Chief Medical Officers for England, Wales, Scotland, and Northern Ireland have recommended that the alert level be reduced from 4 to 3. They added in a statement that this does not mean the pandemic is over. It means that there has been a steady decrease in all 4 parts of the UK.
Relaxed lockdown guidance for people who are clinically vulnerable, including people with Parkinson’s, says that it’s very important to stay at home as much as possible. The announcements you’ve heard in each of the countries in the UK do not come into effect straight away. And they’re all dependent on the risk of catching the virus staying low. Follow distancing and hygiene guidelines if you do go out.
During this pandemic, it's especially important to take extra care of your wellbeing and mental health. We've published an article on how to cope if you're feeling isolated. And the charity, Mind, have put together some helpful guidance on wellbeing and coronavirus.
Reasons to leave home, and distancing
If you leave the house you should avoid busy times and spaces and keep a distance of 2 metres (6 feet) from people you do not live with.
In Northern Ireland, England, and Scotland, where it is not possible to maintain a 2m distance, 1m is allowed. This is only where extra precautions are in place and may apply to places like offices, supermarkets, cafes. We recommend that you check extra precautions are in place, before you decide if this is safe for you. Extra precautions include proper ventilation, no face to face contact, face coverings, and plastic screens.
Continue to follow good hygiene practices, including regular hand-washing, not sharing crockery and cutlery, and wiping down surfaces. It's still safest not to go into other people’s homes.
Reasons you may leave your home include:
- for work, where you cannot work from home
- going to shops that are permitted to be open, staying 2m apart
- to exercise or spend time outdoors, staying 2m apart
- to socialise outdoors, staying 2m apart (in groups of no more than 6 people in England; 30 people in Northern Ireland; 15 in Scotland, and only 4 households per day; and no more than 2 households at one time Wales)
- to attend drive-through church services or places of worship. In Scotland, and Wales this is limited to individual prayer but services are resuming in England and Northern Ireland with restrictions on numbers.
- any medical need, including to donate blood, avoid injury or illness, escape risk of harm, or provide care or help to a vulnerable person
In England and Scotlandonly:
- 2 households (of any size in England, and up to 8 people in total in Scotland) can meet inside or outside, and can stay overnight in the same household, if you follow social distancing (the only exceptions to distancing are for people in a social bubble or extended household, and for children under 11 in Scotland only).
If you have to be in an indoor space (like a shop or a bus), it’s best to wear a face covering. You may be asked to wear one in certain situations, like a GP appointment, but you should be informed of this before you go. Face coverings on public transport are compulsory in England and Scotland, and become compulsory in shops in Scotland. In Wales, you should use three-layer face-coverings in situations where social distancing measures can be more difficult to achieve.
You can see how to make and wear a face covering here. You can see how to make and wear a face covering here.
You do not need to wear a face covering if you have a good reason not to. If you have a physical or mental illness, or a disability that means you cannot put on, wear or remove a face covering, you do not have to wear one. You do not have to provide medical evidence of your reason for not wearing a face covering. If you feel more comfortable, you can carry a face covering exempt card. This carries a small charge. You can order one one from Hidden Disabilities.
Can I form a support bubble, or extended household?
Support bubbles and extended households are intended to help you if you’re lonely and feeling isolated. You should take particular care when deciding whether to form a support bubble, or extending your household, and any implications this may have on your health. Support bubbles or extended households must be exclusive. You can only join one household and that household must not form a bubble with anyone else.
If you’re shielding (and therefore extremely vulnerable) you should not form a support bubble, or extend your household.
In England and Northern Ireland, if you live by yourself or are a single parent with dependent children, you can form a support bubble with one other household of any size.
In Scotland, if you live by yourself or are a single parent with dependent children, you can extend your household with one other person or single person with dependent children. If you have a partner who does not live with you, you can also form an extended household with them, even if neither of you lives alone or only with children under 18.
In Wales, any household can join with one other household to form an extended household.
If you meet the criteria and have Parkinson’s, the government states you can form a support bubble or extend your household. In England only, people who are shielding can form a support bubble if you’d like to. In Scotland only, people who are shielding and who live alone, or only with children under 18, can form an extended household.
Forming a support bubble, or extending with another household, means you can meet – indoors or out – and be closer than 2 metres apart. You can also stay overnight as if you lived with that household.
Shielding measures for people who are extremely vulnerable
Strict shielding measures for people in the UK classed as extremely vulnerable were introduced in March. Shielding is for people at very high risk of severe illness and hospital admission from coronavirus (COVID-19) because of an underlying health condition. If you need to shield, you will have been contacted by the NHS. Only people who were advised by the NHS had to take this precaution.
Guidance is changing across the UK. And countries are starting to adjust their recommendations for people who’ve been advised to shield.
Across the UK people who’ve been following shielding advice should still stay at home as much as possible. Because disease levels are much lower now than when shielding was first introduced, you can now go outdoors with someone you live with.
In Scotland, people who are shielding should continue to stay at home as much as possible. You can leave your home to exercise as a group of up to 8 people from another 2 households. You must stay outside and keep more than 2 metres apart. From 1 August, the advice to shield will be paused. If you live in Scotland and you're shielding, the Chief Medical Officer for Scotland will write to you before 31 July explaining what you should do.
In Northern Ireland from 31 July, if the rate of community transmission stays low, you will no longer need to shield. If you live in Northern Ireland, and you’re shielding, you will receive a letter with details of what the changes mean for you.
In England, you can meet in a group of up to 6 people from 6 July. You must stay outdoors, avoid gatherings, take extra care to maintain 2m distance from people you don’t live with, and practice good hygiene. From 1 August, the advice to shield will be paused. If you live in England and were advised to shield, you will receive a letter with details of what this pause means for you.
In Wales, if you’re shielding, you can meet people from another household, outside. You must follow distancing and hygiene rules.
There is no change for people shielding in Wales until 16 August. The Chief Medical Officer for Wales will contact you before this date with the information you need.
As Jenny Harries, Deputy Chief Medical Officer for England said at the announcement, “It is not just about what it is possible to do, it’s about what it is sensible to do. [...] it’s advisory as we keep saying, it is for individuals to choose.”
You may choose to remain at home if you do not feel comfortable with contact with others. Though time outside in the fresh air, when it's very quiet, is likely to make you feel better in yourself. Parkinson’s is different for everyone and we know that it’s a challenge to balance your mental health, physical health and social wellbeing. If you’re unsure or need to talk to someone, we’re here. Call our advisers on 0808 800 0303.
- You can see the updated guidance on shielding in England in this link on the gov.uk website.
- You can see the updated guidance on shielding in Wales in this link on the wales.gov.uk website.
- You can see the updated guidance on shielding in Northern Ireland in this link on the NI Direct website.
I live with, or care for someone with Parkinson’s - what should I do?
If you’re caring for someone with Parkinson’s, there are some simple steps that you can take to protect them and reduce their risk. Ensure you follow advice including the following:
- Stay at home as much as possible.
- Work from home if you can.
- Limit contact with other people.
- Keep your distance if you go out (2 metres apart where possible).
- Wash your hands and clothes regularly.
- Find out about different sources of support that could be used and access further advice on creating a contingency plan available from Carers UK.
- Look after your own wellbeing and physical health during this time. Further information on this is available on our website.
Self-isolate if you, or anyone, in your household has symptoms.
The person you live with, or care for, might like a booklet with information and support about Parkinson's and coronavirus. You can order a copy of this booklet, free of charge, here.
I volunteer with people with Parkinson’s - what should I do?
We’ve decided that now is not the time to restart any of our face-to-face charity activities. That includes everything we do, from Parkinson’s Cafes, to local groups, to home visits and external meetings. It’s the safe thing to do. We're looking at how to safely restart these activities and will update you as soon as we have a clear plan.
We have a detailed article relating to volunteering during the outbreak on our volunteer portal, Assemble. If you’re a volunteer and haven’t yet joined us on Assemble, this guide shows you how to log in for the first time.
We know that support and friendship from group activities is important. We’re working with our volunteers and local networks to keep people connected.
Parkinson's and coronavirus (COVID-19)
I have Parkinson’s - am I more at risk of coronavirus and what precautions should I take?
If you have Parkinson's, you have no increased risk of getting coronavirus.
While the government has said people with Parkinson’s are more at risk of complications if they get coronavirus, the advice for people with Parkinson’s is the same as for anyone who is not advised to shield.
Why do people with Parkinson's have an increased risk of severe illness from coronavirus?
Parkinson’s can cause respiratory issues for some people. If you have advanced Parkinson’s or have lived with the condition for a long time, you’re more likely to have breathing and respiratory difficulties. Coronavirus affects your lungs and airways. This is why people with Parkinson's are described as being at greater risk of severe illness if they get coronavirus.
What are the symptoms?
Coronavirus (COVID-19) affects your lungs and airways. Normally, it starts with a fever and dry cough which can lead to a shortness of breath.
Be alert for the following symptoms:
- a high temperature – over 37.8 degrees. If you don’t have a thermometer, check if you feel hot to touch on your chest or back.
- a new, continuous cough – this means coughing repeatedly for a long period.
- sudden loss of smell or taste – while loss of smell can be an early symptom of Parkinson’s, it’s important to rule out coronavirus (COVID-19) before exploring other diagnoses.
If you, or someone you live with, experiences these symptoms, follow NHS guidance on how long you should stay at home and self-isolate.
How might coronavirus affect Parkinson’s medication?
If you do become unwell with a virus of any kind, it’s important to keep taking the medication prescribed to you for Parkinson’s.
Our Clinical Director, Dr Donald Grosset, advises: “You should not suddenly stop taking your prescribed medication for Parkinson’s, as that can cause additional problems. However, missing a small number of doses – because of vomiting, for example – will not cause you harm.
“Follow the advice given to you by your health professional who might adjust your tablets or dose, depending on your condition.”
Support and self-isolation
I'm staying at home or isolating and I need practical help – what are you doing to support me?
We can support you to find practical help - locally. Please call our helpline.
Staying up to date on coronavirus around the UK
Coronavirus testing and contact tracing - what do I do?
Each country in the UK has announced systems for coronavirus testing and contact tracing to control the spread of the virus. The system in Northern Ireland is already running. In England and Scotland it started on 28 May, and in Wales the system is due to start on 1 June.
Testing and tracing means that, if you have symptoms, you can arrange a test. If your test comes back positive, you will be asked about who you’ve been in close contact with in the 2 days before, and 7 days after, developing symptoms. Close contact means:
- people you’ve spent 15 minutes or more with at a distance of less than 2 metres.
- people you've had direct contact with - such as sexual partners, household members or people with whom you’ve had face-to-face conversations at a distance of less than 1 metre.
Those people will be notified by phone, email, or text that they should isolate for 14 days. They won’t be told who they were in contact with who had the virus.
If you are notified that you may have been in contact with the virus, you must self-isolate for 14 days even if you do not have symptoms.
How will I know if a notification is genuine?
If you've been advised by one of the country testing and tracing services to isolate, please do so. Trace callers will never ask you for details that could put your privacy or finances at risk.
The BBC have shared advice on how to avoid scams here.
Where can I find up to date information and guidance?
- England - follow advice from the NHS and Government
- Scotland - follow advice from NHS Inform and Government
- Wales - follow advice from Public Health Wales and Government
- Northern Ireland - follow advice from NI Direct
These sources reflect the most up-to-date information and will be updated as the situation progresses.
Join our Facebook group
Many people are feeling concerned or more anxious because of coronavirus. We know that some of the government advice means a lifestyle change. This group is a place to connect while you're spending less time with others. You don't have to have Parkinson’s to be part of this community. It’s for friends and family too.
We're here for you
We’re here for you throughout the coronavirus (COVID-19) crisis. Using our support tool, choose the topics that are important to you. We’ll show you the information that matters to you.
Help us be here when you need us most
During this crisis, we’re sending out printed information on coronavirus and Parkinson’s, and making wellbeing check in calls to people who aren’t online. There are tailored, online exercise-classes, and we’re building the Facebook community. We’re connecting you to the support you need, right now. But we can’t stop. The pandemic isn’t over.
You can help us to support everyone through this crisis.