Self-management programme

Our self-management programme gives you support and greater confidence to take more control of life with Parkinson's in a way that's right for you.

It's for anyone affected by Parkinson's - people with the condition, partners and current carers. 

You'll share experiences and discuss the practical and emotional impact of the condition with people in a similar situation to you. 

People tell us that as a result of taking part they feel armed with information and knowledge. They're more confident, positive, in control and able to move forward. 

How do I take part?

There are 2 ways to take part:

  • face to face groups over the course of 3 or 6 weeks
  • online groups over the course of 6 weeks

Choose the right programme for you

Download the programme guide

Find out more about our self-management programme and what's involved in face-to-face and online groups.

Document
Media name
Self-management programme guide (PDF, 1MB)
Document
Media name
Self-management programme guide - Welsh and English (PDF, 1MB)
Document

What is self-management?

Our self-management programme gives you support and greater confidence to take more control of life with Parkinson's in a way that's right for you.

FAQs

What happens at a self-management group?

Our self-management programme focuses on the practical and emotional impact of Parkinson's.

Self-management groups meet for 3 or 6 consecutive weeks and it's important that you're able to attend all of the sessions as the topics link together week after week. The programme is free, but you need to register.

The groups are a discussion - not a series of talks by outside experts.

The facilitators and other people in the self-management groups won't be able to answer detailed medical questions.

If you have lots of questions about Parkinson's as a condition please contact our helpline on 0808 800 0303 beforehand.

What topics are covered?

 

  • Making connections with others. Without connections to others you miss opportunities to talk about the challenges of living with Parkinson's personally, and as a partner or carer.
  • Looking ahead. When life changes, it can be easy to shut down and stop looking ahead. Having a strategy for looking ahead is part of the antidote to feeling that life has come to a halt.
  • Looking at relationships. When our individual lives change so do those of the people closest to us. Our relationships, the roles we play, how we spend time together and what we talk about may change.
  • Focusing on what's important to you. People often find that major life-changing events make them think about what's important. It's easy to lose sight of all of the big and small things that make life valuable.
  • Taking care of yourself. To make the most of life now might mean taking more care of yourself than you did - thinking about diet, exercise, learning new ways to unwind and to have fun, but also being kinder to yourself.
  • Planning for the future and taking actions. Making the most of life at any age and with any set of challenges can mean taking actions to enhance your quality of life.

How can I promote the self-management programme?

Parkinson's nurses, clinicians, other NHS staff and local voluntary organisations help us to promote the programme.

If you work directly with people affected by Parkinson's please spread the word if we have a group running nearby.

You can download an introductory guide for you and your colleagues:

If you have further questions please email [email protected] or call 020 7963 3924.

Man looking at a tablet

Any questions?

Please get in touch if you have any questions, want to find out more or want to talk about whether our self-management groups would be right for you.