Our self-management programme is designed to help you navigate your life with Parkinson's.
The aim is to share experiences and discuss the practical and emotional impact of Parkinson’s.
Our self-management groups are for people with Parkinson's, partners and carers.
They're free to attend, but you have to book your place in advance.
I feel as though I'm more in control, I can see a future.
Each self-management group is led by trained volunteer facilitators with first-hand experience of Parkinson's.
The programme offers a time-limited, structured and facilitated chance to talk through some of the bigger questions about life with the condition.
In this way it differs from the really valuable support provided by our branches and local support groups.
What are the benefits?
People tell us that as a result of attending they feel:
- armed with information and knowledge
- more confident, positive, in control and able to move forward
- less alone as a result of meeting others
Participants also say they gain:
- greater self-awareness and insight
- a personal action plan for doing specific things such as exercise, hobbies and therapeutic activities
- improved speech as a result of talking in the group
The groups - Autumn 2017
What is self-management?
"Self-management is about enabling you to take control as best you can and find a path forward in your journey with Parkinson's."
If you have any questions, want to find out more or want to talk about whether our self-management groups would be right for you, you can:
- email [email protected]
- call 020 7963 3924
What happens at the group?
Our self-management programme focuses on the practical and emotional impact of Parkinson's.
Self-management groups meet for 3 or 6 consecutive weeks and it's important that you're able to attend all of the sessions as the topics link together week after week. The programme is free, but you need to register.
The groups are a discussion - not a series of talks by outside experts.
The facilitators and other people in the self-management groups won't be able to answer detailed medical questions.
If you have lots of questions about Parkinson's as a condition please contact our helpline on 0808 800 0303 beforehand.
- Making connections with others. Without connections to others you miss opportunities to talk about the challenges of living with Parkinson's personally, and as a partner or carer.
- Looking ahead. When life changes, it can be easy to shut down and stop looking ahead. Having a strategy for looking ahead is part of the antidote to feeling that life has come to a halt.
- Looking at relationships. When our individual lives change so do those of the people closest to us. Our relationships, the roles we play, how we spend time together and what we talk about may change.
- Focusing on what's important to you. People often find that major life-changing events make them think about what's important. It's easy to lose sight of all of the big and small things that make life valuable.
- Taking care of yourself. To make the most of life now might mean taking more care of yourself than you did - thinking about diet, exercise, learning new ways to unwind and to have fun, but also being kinder to yourself.
- Planning for the future and taking actions. Making the most of life at any age and with any set of challenges can mean taking actions to enhance your quality of life.
Information for referrers
Parkinson's nurses, clinicians, other NHS staff and local voluntary organisations help us to promote the programme.
If you work directly with people affected by Parkinson's please spread the word if we have a group running nearby (see the table above to find out if we do).
We have produced this downloadable introductory guide for you and your colleagues:
If you have further questions please email [email protected] or call 020 7963 3924.
Meet our facilitators
Each self-management group is led by 2 trained volunteer self-management facilitators with first-hand experience of Parkinson's - either as people living with it or as current carers and partners.
Their role is to:
- keep the group moving along
- bring the conversation back if it moves off topic too much
- check everyone is OK with what's being discussed