Leaving hospital

When you leave hospital, make sure any concerns you have are resolved and that any planned aftercare is right for you.​

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Check with the pharmacy that you will be given enough medication for when you get home – you will usually get a two-week supply.

This is especially important if your medications have been changed during your stay in hospital, as you may not have stocks of this medication in the right doses at home.

If you have been in hospital for a long time or your mobility has changed, it may be possible for an occupational therapist to arrange a home visit with you before you are discharged. The occupational therapist can suggest special aids, equipment, or other plans to make tasks easier.

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You may be able to use the Patient Transport Services if your condition makes it difficult for you to travel to the hospital.

If you live in England or Northern Ireland, your GP will need to book transport for you.

In Scotland, you can arrange your own patient transport by calling 0300 123 1236. In Wales, you can arrange your own transport by calling 0300 123 2303.

If you can’t get free transport, you may be able to claim a refund for the cost of transport from the Healthcare Travel Cost Scheme.

To get a refund you will need to show you are not able to afford the cost of travelling to hospital and do not have a friend or relative that can take you.

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If you are unhappy with the treatment you receive in hospital, you may want to complain. You should raise your concerns with the ward staff first if you are in hospital.

By complaining, you can improve care for both yourself if you go into hospital again, and for other people affected by Parkinson’s.

Complaining will not affect your care. Hospital staff are committed to providing the best possible care for all patients, and complaining can highlight issues.

You may also like to let staff know when things have gone right. If you feel the care you have received was excellent, compliment staff or let them know when you get home.

You should also let Parkinson’s UK know so we can make sure we highlight organisations that offer great care to help spread best practice. 

  • In England - the Patient Advice and Liaison Service (PALS) is based in your hospital and can help you resolve concerns or problems you’re facing with the NHS. They can also give you advice on the NHS complaints procedure. Ward staff will have contact details for them.
  • In Scotland - you can contact the Patient Advice and Support Service (PASS) run by the Citizens Advice Bureau. 
  • In Wales - contact the Community Health Council for the Local Health Board where you are being treated. 
  • In Northern Ireland - the Patient and Client Council (PCC) can help you make a complaint about health and social care you’ve received. 

Healthwatch

Healthwatch is an independent consumer organisation that aims to make sure the views and experiences of people who use health and social care services are heard and taken seriously. Your local Healthwatch can help with complaints you have about services, including those related to your Parkinson’s. 

Medicines and Healthcare products Regulatory Agency (MHRA)

If you want to complain because you did not get your medication on time while you were in hospital, we also encourage you to tell the Medicines and Healthcare products Regulatory Agency (MHRA), using their Yellow Card Scheme. The scheme helps the MHRA monitor how safely medicines are being used. 

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Going into hospital when you have Parkinson's (PDF, 4MB)

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Get It On Time

We're campaigning to make sure that everyone in a care home or hospital gets their medication on time – every time.

Last updated February 2020. We review all our information within 3 years. If you'd like to find out more about how we put our information together, including references and the sources of evidence we use, please contact us at [email protected]