The term 'advanced Parkinson's' refers to a time when a person's symptoms are more complex and have more of an effect on their day-to-day life.
It is not uncommon for carers of people with any long-term condition to feel isolated or frustrated about their situation. Knowing where you can get support or extra help from is important.
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If you have Parkinson's and you're also a carer, it may be difficult to look after your own health needs when you feel that those of the person you care for are greater than your own.
But it's important that you take time to learn more about your own condition and, like any carer, take time out for yourself when you can.
Make sure that you attend your Parkinson's appointments and do whatever you need to help manage your own condition in the best way possible.
As someone's Parkinson's progresses, you and the person you care for may start thinking about different housing options, including home care and care homes.
"There is a sense of relief...The burden of responsibility has finally been lifted from my shoulders and placed in the hands of many wonderful people. However, in contrast, there is inevitable guilt. I was not able to complete the task I had set for myself."
Frances' husband Mark has advanced Parkinson's and dementia, and recently moved into a nursing home. She shares her candid experiences and feelings on coming to terms with her new situation.
Last updated August 2014. We review all our information within 3 years. If you'd like to find out more about how we put our information together, including references and the sources of evidence we use, please contact us at [email protected]