Caring for someone with advanced Parkinson's

As someone's Parkinson's progresses, they may rely on you or others for more support. It's important to know what support is available for you if you're caring for someone with advanced Parkinson's.

The term 'advanced Parkinson's' refers to a time when a person's symptoms are more complex and have more of an effect on their day-to-day life.

Find out more about living with advanced Parkinson's.

It is not uncommon for carers of people with any long-term condition to feel isolated or frustrated about their situation. Knowing where you can get support or extra help from is important.

This could be from:

If you have Parkinson's and you're also a carer, it may be difficult to look after your own health needs when you feel that those of the person you care for are greater than your own.

But it's important that you take time to learn more about your own condition and, like any carer, take time out for yourself when you can.

Make sure that you attend your Parkinson's appointments and do whatever you need to help manage your own condition in the best way possible.

As someone's Parkinson's progresses, you and the person you care for may start thinking about different housing options, including home care and care homes.

Find out more about housing options for people with advanced Parkinson's.

Call companions

Living with Parkinson's, or caring for someone who does, can feel isolating. But you're not alone.

We're working with Re-engage to offer people with Parkinson's, and the people who care for them, a free telephone befriending service.

Last updated August 2014. This information is due for review. If you'd like to find out more about how we put our information together, including references and the sources of evidence we use, please contact us at [email protected]