If you, or the person you care for, has advanced Parkinson's with a high level of healthcare needs, it may be worth looking at whether CHC is available to you.
This care is free, without a means-test and can cover care in a care home or in your own home.
It can enable people with Parkinson's and their family to finance the full package of care they need.
Am I eligible for NHS continuing healthcare funding?
- To be eligible, your care needs must be primarily 'healthcare needs' (and the responsibility of the NHS) and beyond the scope of local authority social care services.
- A diagnosis of Parkinson's does not guarantee CHC funding.
CHC can be a vital resource, but this distinction is one of several complicated aspects.
There is no application form – instead professionals carry out an assessment of the care needs.
This is firstly through the NHS continuing healthcare checklist (Word, 769KB).
Then a team gather the evidence in the Decision support tool for NHS continuing healthcare (Word, 948KB), with a recommendation to the Clinical Commissioning Group, who finally decide.
The knowledge and evidence of family and carers can be vital. If funding is not recommended, you can ask for a review or appeal.
The CCG review the funding after 3 months, and then annually, as it is not permanent funding.
Parkinson's UK partnership with Beacon
We have developed a partnership with Beacon, a not-for-profit agency expert in continuing healthcare, as our helpline regularly takes calls on this topic.
With Beacon's extensive experience and expertise, and our specialist knowledge of living with Parkinson's, we can ensure that callers receive the best quality advice and support.
If you have any questions about continuing healthcare, or other aspects of support with care, please contact our free confidential helpline on 0808 800 0303.
Continuing Healthcare Alliance
The Continuing Healthcare Alliance is a group of charities and organisations who believe that NHS continuing healthcare needs to be improved.
Read our report
Parkinson's UK has produced a report, in association with the Continuing Healthcare Alliance, evaluating the NHS continuing healthcare system and what must be done to improve it.