What do we do?
The charities work together to investigate what's wrong with the current continuing healthcare system. We meet with NHS England and other national bodies to share what needs to improve.
We work with local decision makers to recognise the importance of improving continuing healthcare. And we campaign to improve the system, as we don't want anyone left without the support they so desperately need.
What is NHS continuing healthcare?
NHS continuing healthcare – also known as NHS continuing care or NHS CHC – is free healthcare provided outside of hospital that is arranged and funded by the NHS.
It may include paying for care costs typically funded by a local authority under the banner of social care, such as fees for a care home, but where these arise due to a specific health need.
When delivered effectively, it can enable people to go on living as full a life as possible. It can also have the benefit of reducing anxiety and minimising pressure on family and friends.
Who are our members?
These charities provide advice and guidance to their supporters on a range of topics, including NHS continuing healthcare. Follow the links below to find out how you can get support from them.
- Age UK
- Alzheimer's Society
- The British Polio Fellowship
- Carers Trust
- Dementia UK
- Learning Disability England
- Marie Curie
- MS Society
- Motor Neurone Disease Association
- Multiple System Atrophy Trust
- Muscular Dystrophy UK
- The Neurological Alliance
- Parkinson's UK
- Patients Association
- The Polio Survivors Network
- PSP Association (Progressive Supranuclear Palsy – CBD)
- Spinal Injuries Association
- Stroke Association
- Sue Ryder
Ann and Bill's story
Ann's husband Bill was diagnosed with Parkinson's in 1997.
In this animation, she explains the struggles she had in accessing continuing healthcare.
In 2016 we published a report that showed NHS continuing healthcare is failing those who need it. We found multiple issues with the system including:
- A lack of information about the system.
- No consistency or consequences.
- Unacceptable delays.
- Reassessments are stressful.
- Appeals are complex.