Patient and Public Involvement (PPI)

Patient and Public Involvement (PPI) is when researchers and people affected by conditions work in partnership to plan, design, manage, evaluate and communicate about research.

How we support your research

We support all researchers, regardless of who they are funded by or applying for funding from. We also support researchers from companies and the pharmaceutical industry. 

There are lots of people affected by Parkinson’s across the UK who are willing and ready to be involved in your research, including our dedicated group of PPI contributors.

Request our support

To connect with people affected by Parkinson’s, simply download and fill in our PPI support request form (Word, 280KB) and return it to [email protected].

Our top tips

For top tips on working with people affected by Parkinson’s, read our Patient and Public Involvement: Guidance for researchers (PDF, 1.8MB).

Speak to the research team

If you need more help or want to discuss your ideas for Patient and Public Involvement, we'd love to hear from you.

Email us at [email protected].


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What are the benefits of PPI?

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We want all Parkinson's researchers to work in partnership with people affected by Parkinson’s as much as possible. 

Whatever your research, there are many ways we can support you to involve people affected by Parkinson's in a meaningful and timely way.

Watch our short film to hear from researchers about the benefits of involving people with Parkinson's in their work.

Further information about our support