Patient and Public Involvement (PPI)

Patient and Public Involvement (PPI) is when researchers and people affected by conditions work in partnership to plan, design, manage, evaluate and communicate about research.


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We want all Parkinson's researchers to work in partnership with people affected by Parkinson’s as much as possible. 

Whatever your research, there are many ways we can support you to involve people affected by Parkinson's in a meaningful and timely way.

Watch our short film to hear from researchers about the benefits of involving people with Parkinson's in their work.

Request our support

We support all researchers, regardless of who they are funded by or applying for funding from. We also support researchers from companies and the pharmaceutical industry. 

There are lots of people affected by Parkinson’s across the UK who are willing and ready to be involved in your research, including our dedicated group of PPI contributors.

To connect with people affected by Parkinson’s, simply download and fill in our PPI support request form (Word, 280KB) and return it to [email protected].

You can read more about how we can help in our Research Support Policy (PDF, 438KB).

Our top tips

For top tips on working with people affected by Parkinson’s, read our Patient and Public Involvement: Guidance for researchers (PDF, 1.8MB).

Research Involvement Awards

If you want to work with people affected by Parkinson’s but need more hands-on support, you can apply for a Research Involvement Award. Successful applicants will receive hands-on support from staff in developing appropriate PPI activities to meet the specific needs of your research. Find out more here

The impact of PPI

Our blog series - people-powered research - describes how PPI is changing Parkinson’s research for the better, and how we’re supporting researchers across academia and industry to work in partnership with people affected by Parkinson’s. 

Speak to the research team

If you need more help or want to discuss your ideas for Patient and Public Involvement, we'd love to hear from you, please email:
[email protected]