A toolkit for detecting and managing Parkinson’s dementia

This toolkit aims to provide information on how to detect and manage Parkinson’s dementia in clinic.

Last reviewed
  • Anticipatory / advanced care
  • Mental health
  • Treatments and medication
Resource type
  • Publications
  • All professions
  • Complex
  • Maintenance

What is this toolkit?

The toolkit gives an overview of Parkinson’s dementia (risk factors, symptoms and assessments), treatment strategies, support and considerations to discuss with your patients.

Who is it for?

This toolkit is aimed at movement disorder neurologists, geriatricians, Parkinson’s nurses and other health and care professionals who support people living with Parkinson’s.

It was designed  to help facilitate conversations about Parkinson's dementia in clinic because although dementia is common in Parkinson’s, it is not always talked about enough and people with the condition can be fearful of and reluctant to discuss the topic. Additionally, some health and care professionals may also delay or feel unsure of how best to bring up the topic in clinic. This limits access to treatment and support and makes it harder to carry out research into underlying causes. 

Information for your patients

There is also a complementary patient-facing version of this toolkit, aimed at people living with Parkinson’s, their friends and families, who have experienced or are worried about cognitive changes. View this version here or order it in print.

How was this information developed?

This resource was co-developed as part of a multidisciplinary project, led by Dr Rimona Weil, Consultant neurologist at the National Hospital for Neurology and Neurosurgery and Neuroscientist at University College London (UCL). The project, Patterns of Perception in Parkinson’s (PoP-PD), was co-developed with people living with Parkinson’s and Parkinson’s UK.

The project involved a collaborative core team including:

1. Public engagement experts (based at UCL)

  • Joanne Thomas
  • Cassie Hugill
  • Sian Rose


2. Researchers (based at UCL)

  • Ivelina Dobreva
  • Dr Moïse Roche
  • Charlotte Dore


3. Artists (based at Central Saint Martins)

  • Anne Marr
  • Ruairiadh O’Connell


We thank the many lived experts who contributed to the entire project, and particularly to the lived expert resource.