NICE publishes quality standard on Parkinson’s
Each standard provides a set of statements that can be used to improve services and the treatment of people with Parkinson's.
Professor Richard Walker, Excellence Network Medical Director, member of the NICE Guidelines Development Committee and the Quality Standard Advisory Committee says:
"I am pleased that the quality standard relates to important aspects of care for people with Parkinson's and hope they will help to improve service quality across England and Wales, and empower the provision of services such as specialist therapists."
The standard states that adults with Parkinson's:
- should have a point of contact with specialist services
- should take levodopa within 30 minutes of their individually prescribed time if they live in a hospital or care home
- should be given information about the risk of impulse control disorders if they start dopaminergic therapy.
They should also be referred to a physiotherapist if they have problems with movement or balance, an occupational therapist if they have difficulties with everyday activities such as dressing, cooking and working, and to a speech and language therapist if they have speech problems or problems with swallowing or drooling.
Furthermore, services for adults with Parkinson's should provide access to clozapine and the necessary monitoring to treat hallucinations and delusions.
Parkinson's UK welcomes the statements to help commissioners and professionals improve the treatment and services they provide to people with Parkinson's and their families, friends and carers.
They are particularly pleased to see the statements on:
- Providing information on dopamine agonists prior to starting the treatment and reviewing this annually. We regularly hear the devastating impact these treatments can have on the person with Parkinson's and their family.
The 2015 UK Parkinson's Audit found that only 22.5% of people with Parkinson's were given information about these treatments.
- People with Parkinson's being referred to therapists to help manage their condition and stay independent and well.
- People with Parkinson's having their medication administered within 30 minutes as this is a common problem people with Parkinson’s experience.
The 2015 Parkinson's Audit found that less than 50% of those admitted to hospital always got their Parkinson's medication at the right time.
- Services providing access to clozapine for someone with Parkinson's experiencing hallucinations and delusions as currently there are significant barriers to access across most of the country.
The UK Parkinson's Audit will continue to measure improvements in services, with the latest report due in May 2018.
Resources to improve practice
The UK Parkinson's Excellence Network has a variety of expert resources and learning on how to improve care and treatment for people living with the condition, as well as a dedicated service improvement team.
To find out more, contact [email protected].