We worked with people affected by Parkinson's, their families and professionals. Together, we came up with a list of key priorities for improving everyday life in the shorter term.
Alongside our groundbreaking research to develop better treatments and a cure, we also support research to improve quality of life.
We worked with the James Lind Alliance and researchers at UK universities to carry out a Priority Setting Partnership.
Over 1000 people affected by Parkinson's, carers, and health and social care professionals took part. You can read the findings on the British Medical Journal.
These priority areas will help direct research to improve everyday life with Parkinson’s.
The top 10 priorities
1. Balance and falls
2. Stress and anxiety
3. Uncontrollable movements
4. Personalised treatments
6. Mild thinking and memory problems
7. Monitoring symptoms
10. Urinary problems
Beyond the top 10
Parkinson's is a complex and variable condition. We're keen to support and encourage research that addresses important issues that did not make the top 10, including:
11. What treatments would ensure the medications were equally effective each day (prevented or managed wearing off, variability, on or off states) in people with Parkinson’s?
12. What drug treatments are best for the different stages of Parkinson’s?
13. What interventions are effective for reducing or managing unexplained fatigue in people with Parkinson’s?
14. Would the monitoring of dopamine levels in the body (eg with blood tests) be helpful in determining medication timing and amount (dose)?
15. What is the best treatment for stiffness (rigidity) in people with Parkinson’s?
16. What is the best type and dose of exercise (physiotherapy) for improving muscle strength flexibility, fitness, balance and function in people with Parkinson’s?
17. What best helps prevent or reduce freezing (of gait and in general) in people with Parkinson’s?
18. At which stage of Parkinson’s is deep brain stimulation (a surgical treatment that involves implanting a ‘brain pacemaker’ that sends signals to specific parts of the brain) most helpful?
19. What treatments are helpful in reducing bowel problems (constipation or incontinence) in people with Parkinson’s?
20. What treatments are effective in reducing hallucinations (including vivid dreams) in people with Parkinson’s?
21. What training to improve knowledge and skills do informal carers (family and friends) need in order to best care for people with Parkinson’s?
22. Can medications be developed to allow fewer doses per day for people with Parkinson’s (for example combinations of medications in one pill, slow release pills)?
23. What is the best treatment for pain in people with Parkinson’s?
24. What treatments are helpful for swallowing problems (dysphagia) in people with Parkinson’s?
25. What training, techniques or aids are needed for hospital staff, to make sure patients with Parkinson’s get their medications correctly and on time?
26. What treatments are helpful in reducing tremor in people with Parkinson’s?