Campaigners outside Parliament

Ditch disability benefits cuts

People with Parkinson's rely on financial support to stay independent and in control. We're campaigning to stop harmful disability benefits cuts.

Our benefits campaigns

Making Personal Independence Payment work for people with Parkinson's

People with Parkinson's have faced many problems since the Government replaced Disability Living Allowance with Personal Independence Payment (PIP) in England, Scotland and Wales in 2013.

People with Parkinson's have found applying for PIP frustrating, upsetting and stressful. Many believe the anxiety and stress caused by applying has made their condition worse.

That's why we're campaigning to make PIP work for people with Parkinson's.

What's wrong with PIP?

  • Submitting a claim for PIP and providing supporting evidence for your application can be difficult.
  • The assessment can be stressful.
  • The Government recently introduced stricter rules for awarding the 'mobility' component of PIP, which could see people with Parkinson's losing vital support for travel and transport costs.

What changes have we made to PIP?

Since 2013 we have:

  • stopped proposed cuts to PIP
  • educated assessors about the fluctuating nature of Parkinson's
  • improved the assessment process, including the recent announcement that those on the highest rates of PIP won't be regularly reassessed

What other changes do we want?

We're calling on the Government and assessment companies to:

  • review the '20 metre rule', so more people with Parkinson's who have mobility problems can qualify for essential support, such as access to the Motability scheme
  • improve the way that medical evidence is collected, so that people with Parkinson's don't need to go to face to face assessments as often
  • improve assessors' knowledge and understanding of Parkinson's, so that people get the right support first time

How you can help

Campaigning to change the Employment and Support Allowance system

Many people with Parkinson's receive Employment and Support Allowance (ESA) because they're too ill to work.

We believe the eligibility tests for ESA are unfair, crude and simplistic. The system is badly failing people with Parkinson's – but we're campaigning for change.

What's wrong with ESA?

  • People with severe and progressive Parkinson's are still being put in the ESA group where a 'return to work' is expected - and subjected to repeat assessments of their fitness for work.
  • Some people on ESA can only claim this vital support for up to a year, due to changes made by the previous Government.
  • From April 2017, people with Parkinson's who qualify for the 'back-to-work' group for Employment and Support Allowance (ESA) only receive £73.10 per week. This is a reduction of £1,500 a year compared to people who qualified before the change.

With a new Government in place, we have an opportunity to highlight how negatively the system is affecting people with Parkinson's, and what needs to change.

What changes do we want?

  • People who are not expected to return to work in the near future should be awarded ESA for longer.
  • The Government should revise the ESA assessment, to make sure it fully captures the impact of Parkinson's on a person's ability to work.

How you can help

We're concerned about the impact of the current ESA system on people with Parkinson's, and are collecting evidence to fight for change. 

If you're applying for benefits, complete our disability benefits diary (PDF, 473KB) to tell us your story.

PIP campaigning guide

Take part in the summer of action on PIP to improve the benefit for people with Parkinson's. It doesn't matter if you've never met your MP before or if you're at your MP's surgery every week our campaign guide (PDF, 345KB) can help you to as your MP to take action on PIP.

Parkinson's UK Protest at Houses of Parliament on budget day to save ESA
A person with Parkinson's talking to a Parkinson's local adviser

Help us fix Employment and Support Allowance

Employment and Support Allowance is a lifeline for people with Parkinson’s who are too unwell to work, but the broken assessment process is failing them at every turn.

Help us make fixing it a priority.

Get involved

Janet's story

We campaign to help people like Janet, who has Parkinson's and relies on her specially built car to help her get around.

When her mobility allowance was stopped, she thought she might lose her car.

We're fighting to stop cuts like these.