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Patient and public involvement (PPI) in your study

Patient and Public Involvement

We believe involving people affected by Parkinson's produces higher quality, more relevant research, which is more likely to receive funding.

There are lots of ways we can help you to involve people affected by Parkinson's in your research

That's why Parkinson's UK, alongside other major funders, are increasingly asking for evidence of Patient and Public Involvement in the planning, design, implementation and dissemination of the research they fund.

We know that sometimes it can be difficult to know how and when you can involve people affected by Parkinson's in your research. That's why we've been working hard to improve how we can support you to do this.

PPI Resource for Researchers

How do I involve?

Download our Patient and Public Involvement: Resource for Researchers, which covers:

  • what is Patient and Public Involvement?
  • methods of involvement, in both clinical and basic research
  • how to ensure PPI is meaningful
  • case study examples

While it is a resource developed for Parkinson's researchers, the content has been designed so that it is applicable to other types of research.

How can we help?

There are many ways we can support you to involve people affected by Parkinson's in a meaningful and timely way.

We can contact people affected by Parkinson's to involve in your research by:

  • emailing our Research Support Network, an online network of people affected by Parkinson's with an interest in research across the UK (or specific area)
  • highlighting your study to our online community
  • putting you in contact with our local groups across the UK

How do I apply?

To apply for help, just complete the Patient and Public Involvement request form (PDF, 94KB) and return it to [email protected].

If you aren't sure where to start, you can email us directly for practical advice and top tips for planning involvement in your research.  

Read more about how we can help in our Policy for supporting your research (PDF, 344KB) document.

We will be in touch within 5 working days to discuss how we might be able to support your research study.

We ask that researchers do not approach our local groups directly but send all enquiries directly to [email protected].

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