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Patient and public involvement (PPI) in your study

We believe involving people affected by Parkinson's produces higher quality, more relevant research, which is more likely to receive funding.

There are lots of ways we can help you to involve people affected by Parkinson's in your research

That's why Parkinson's UK, alongside other major funders, is increasingly asking for evidence of patient and public involvement in the planning, design, implementation and dissemination of the research we fund.

We know that sometimes it can be difficult to know how and when you can involve people affected by Parkinson's in your research. That's why we've been working hard to improve how we can support you to do this.

PPI Resource for Researchers

How do I involve?

Download our Patient and Public Involvement: Resource for Researchers (PDF, 1.5MB), which covers:

  • what is Patient and Public Involvement?
  • methods of involvement, in both clinical and basic research
  • how to ensure PPI is meaningful
  • case study examples

While it is a resource developed for Parkinson's researchers, the content has been designed so that it is applicable to other types of research.

How can we help?

There are many ways we can support you to involve people affected by Parkinson's in a meaningful and timely way.

We can contact people affected by Parkinson's to involve in your research by:

Read more about how we can help in our Research Support Policy (PDF, 344KB).

How do I apply?

If you aren't sure where to start, email a brief description of your research to [email protected] and we can help you plan involvement in your project.

If you're ready to connect with people affected by Parkinson's just complete the Patient and Public Involvement request form (Word, 94KB) and return it to [email protected].

We'll be in touch within 5 working days to discuss how we might be able to support your research study.

Please note that researchers seeking participants or involvement are not permitted to approach local groups or post on the discussion forum without prior approval from the Parkinson's UK research team.

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