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Patient and Public Involvement (PPI) in your study

Patient and Public Involvement (PPI) is when researchers and people affected by health conditions work in partnership to plan, design, implement, manage, evaluate and disseminate research.

Demonstrating evidence of PPI will give your application the best chance of success.

Alongside other major funders, Parkinson's UK wants to see evidence in applications for funding that people affected by Parkinson's have been or will be involved in the research.

How can we help you?

Whether you are apply for funding or conducting your research, there are many ways we can support you to involve people affected by Parkinson's in a meaningful and timely way.

Guidance and top tips

Download our Patient and Public Involvement: Resource for Researchers (PDF, 1.5MB), which gives you practical tips and advice for involving people affected by Parkinson's, including:

  • what is Patient and Public Involvement?
  • methods of involvement, in both clinical and basic research
  • how to ensure PPI is meaningful

More support and funding

If you want to involve people affected by Parkinson's, but need more help, you can now apply for a Research Involvement Award

Successful applicants will receive hands-on support from staff in developing appropriate PPI activities to meet the specific needs of the research, including;

  • identifying and recruiting people to involve
  • planning the appropriate method for involvement
  • facilitation and funding of the first meeting with PPI contributors
  • feeding back and maintaining relationships

Find out more and how to apply

Connecting you with people affected by Parkinson's

We have lots of people affected by Parkinson's who are willing and ready to be involved in your research.

We can connect you with people affected by Parkinson's by:

  • emailing our Research Support Network, a community of 2,300 people interested in Parkinson's research across the UK
  • putting you in contact with our panel of PPI volunteers or local groups across the UK

Email us to connect with people today

Evidence of the impact of PPI

Last year we ran a pilot project to prove the difference PPI can make to Parkinson's research.

Read our 2 page executive summary to see examples of how PPI had a significant impact on:

  • improving how the researchers communicated
  • making the research design more practical
  • providing a 'reality-check' and motivating researchers
  • conserving time and resources

You can also read the full report (PDF, 160KB) of the findings.

Speak to the team

If you need more help or want to discuss your ideas for PPI, get in touch with the team on researchinvolvement@parkinsons.org.uk.

You can also read more about how we can help in our Research Support Policy (PDF, 344KB).

Please note that researchers seeking involvement are not permitted to approach local groups or post on the discussion forum without prior approval from the Parkinson's UK research team.