Supporting people with Parkinson’s as symptoms progress
Recent research has helped find ways to predict the prognosis of Parkinson’s, which is how the condition is likely to change and develop over time. Researchers want to hear your experiences of receiving or providing a prognosis, and what support you would find helpful.
• 28 people with Parkinson’s
• 23 people who support a person with Parkinson’s
• 5 bereaved supporters of a person with Parkinson’s
• 24 healthcare professionals working in the NHS who currently diagnose or discuss advanced care planning with people with Parkinson’s
People with Parkinson’s and people who have supported a person with Parkinson’s will be asked about their experiences and views of receiving a prognosis, through either:
• a 2 hour focus group, in person in Aberdeen or Bristol, or online
• or a 1 to 1 interview can be arranged if needed, either in your own home or online, for 1 hour.
Healthcare professionals will be asked about their experiences and views of prognosis in a 2 hour online focus group.
Travel expenses will be reimbursed and you’ll also receive a gift voucher for taking part.
For more information:
• Read the participant information sheet for people with Parkinson’s and supporters.
• Read the participant information sheet for healthcare professionals.
Interested in taking part?
Register your interest as a person with Parkinson’s or a supporter of someone with Parkinson’s.
Register your interest as a healthcare professional.
If you have any questions or want to take part online, contact Ryann Sowden by email [email protected] or call 0117 455 8097.
The deadline for taking part in this research is 31 March 2026.
National Institute for Health and Care Research