PD Frontline: identifying genes in people with Parkinson's
The aim of the research is to identify a large number of people who may have small genetic alterations in genes such as LRRK2 or GBA, which are known to be associated with Parkinson's.
These people may be invited to take part in future clinical trials of drugs that target these specific genes.
4,000 people diagnosed with Parkinson's who live in the UK.
People outside of this bracket are still encouraged to sign up.
You will need to register on the PD Frontline website where you will be asked to complete an online consent form and a short 10-minute survey.
Upon completion of the survey, the study team will assess the information provided in the study questionnaire, and if eligible you will be sent a saliva sample collection kit. This will be posted to you with pre-paid return packaging.
This saliva sample will be used to carry out genetic testing for genes that are known to be associated with Parkinson's.
Once genetic testing is complete, the PD Frontline team will contact people who may be eligible to take part in further research studies, and let them know where to sign up to take part.
Find out more about the study on the PD Frontline website.
Please note, if you have already taken part in RAPSODI, you don't need to register for PD Frontline as they are linked research trials. Participants of both RAPSODI and PD Frontline will be offered the same research and clinical trial opportunities.
Interested in taking part?
Register for the study on the PD Frontline website.
If you have problems accessing the website or have any questions, please phone the research team on 0208 016 8413 or email [email protected].
Please note
Due to a very high number of enquiries, the research team's response time can be up to 3 weeks from receiving your enquiry.
Saliva kits take 2 to 4 weeks to arrive and the genetic testing usually takes up to 6 months, however, there are currently additional delays. The research team apologises in advance for the delay and will contact you once your results are ready.
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