Led by national experts, these ambitious multi year programmes draw together teams of clinicians and members of the Parkinson’s community from across the UK. They're gathering data, reviewing insights and championing and supporting step change improvements to health and care services for people with Parkinson’s.
Right now, we're working together to transform Parkinson’s services through better access to Parkinson’s nurses, access to best practice multidisciplinary care, improved management of bone health and medication optimisation and management.
Explore the national priority programmes
Discover the vision of each of the national priority programmes, including reports and tools they’ve produced. More will be added as the programmes progress, so check back for updates.
Chair: Dr Donald Grosset, Senior Research Fellow and Professor of Neuroscience, and Excellence Network Lead for Service Improvement
Be part of improving bone health
During 2023 we'd like to invite new and returning healthcare professionals and services, who provide care for people with Parkinson's, to take part in a further phase of the project.
Chair: Patsy Cotton, Parkinson’s specialist nurse and Excellence Network Clinical Lead for Innovation
In the 2022 UK Parkinson's Audit of the 21.2% of respondents who went to hospital, only 42% always got their medication on time. We want all people with Parkinson’s to receive their medications correctly and on time, every time, when they're in hospital.
We are building on work already done to change hospital practice to bring about a better experience for people with Parkinson's. Since the campaign launched on World Parkinson's Day in 2022, over 100 chief executives of acute healthcare trusts, regional ambulances services, chief nursing officers and other NHS executives across all 4 nations have pledged their support.
We're sharing best practice, rolling out bitesize engagement and training videos and developing a toolkit to help people with Parkinson’s advocate for themselves in hospital. We're also developing a self administration policy.
- Hospital healthcare staff have an understanding of Parkinson’s and seek to ensure that people with Parkinson’s receive their medications on time while in hospital.
- Hospital systems are optimised to support the time critical administration of medications for people with Parkinson’s.
- Tools and resources are available to support the time critical administration of medications for people with Parkinson’s.
- People with Parkinson’s are supported in advocating for Parkinson’s medications on time.
Get It On Time campaign and resources
Find out more about what has already been achieved, and what resources are available through the Get It On Time campaign.
Chair: Rowan Wathes, Associate Director of the Parkinson’s Excellence Network
We have created a clear vision for best practice multidisciplinary care and a new, online induction for therapists. We've also launched a new scheme for pump priming allied health professional (AHP) posts. In September, we're kicking off work with 6 ‘accelerator sites’ who will be transforming their approach to multidisciplinary working and collecting robust evidence on the benefits for people with Parkinson’s and the local health economy.
- Develop a clear vision for person centred multidisciplinary care and achieve consensus around best practice.
- Increase the number of services implementing best practice, including through our partnership with the Flow Coaching Academy.
- Develop and roll out new training opportunities for therapists, including through our new therapist induction.
- Improve understanding of best practice multidisciplinary care among people with Parkinson’s, relatives and carers.
Chair: Professor Annette Hand, Parkinson’s specialist nurse
This programme aims to make access to a Parkinson’s specialist nurse a priority. To date, Parkinson’s UK has pump primed more than 320 nurse posts across the UK. Now with funding administered through the Excellence Network, this will continue until the average caseload for each nurse is no more than 300. We're also working to boost recruitment and retention rates and champion improvements to succession planning.