Excellence Network national priority programmes

The Excellence Network national priority programmes were launched in response to service improvement priorities identified by the UK Parkinson’s Audit.

Led by national experts, these ambitious multi year programmes draw together teams of clinicians and members of the Parkinson’s community from across the UK. They're gathering data, reviewing insights and championing and supporting step change improvements to health and care services for people with Parkinson’s.

Right now, we're working together to transform Parkinson’s services through better access to Parkinson’s nurses, access to best practice multidisciplinary care, improved management of bone health and medication optimisation and management.

Discover the vision of each of the national priority programmes, including available reports and tools they’ve produced. More will be added as the programmes progress, so keep checking back for updates.

Chair: Dr Donald Grosset, Consultant Neurologist and Excellence Network Lead for Service Improvement

People with Parkinson’s are more than twice as likely to have osteoporosis and fractures than those without the condition. Yet many are not routinely assessed for fracture risk.

We've been running a national multi centre service improvement project with 44 services across the UK. The treatments introduced in this project alone would be expected to prevent around 3 vertebral and 2 non vertebral fractures.

We're now working to improve awareness of bone health among people with Parkinson’s and increase confidence in assessment and management among clinicians.

 

Contact [email protected] to find out more.

Chair: Patsy Cotton, Parkinson’s specialist nurse and Excellence Network Clinical Lead for Innovation

Currently only around 50% of people get their Parkinson’s medications on time in hospital. We want to significantly increase this so that all people with Parkinson’s receive their medications correctly and on time, every time, when they're in hospital. 

We are building on work already done to change hospital practice to bring about a better experience for people with Parkinson's. So far, 52 NHS chief executive officers (CEOs) have pledged support.

We're sharing best practice, rolling out bitesize engagement and training videos and developing a toolkit to help people with Parkinson’s advocate for themselves in hospital. We're also developing a self administration policy. 

Programme objectives

  • Hospital healthcare staff have an understanding of Parkinson’s and seek to ensure that people with Parkinson’s receive their medications on time while in hospital.
  • Hospital systems are optimised to support the time critical administration of medications for people with Parkinson’s.
  • Tools and resources are available to support the time critical administration of medications for people with Parkinson’s.
  • People with Parkinson’s are supported in advocating for Parkinson’s medications on time.

Get It On Time campaign and resources

Find out more about what has already been achieved, and what resources are available through the Get It On Time campaign.

Contact [email protected] to find out more.

Chair: Rowan Wathes, Associate Director of the Parkinson’s Excellence Network

We have created a clear vision for best practice multidisciplinary care and a new, online induction for therapists. We've also launched a new scheme for pump priming allied health professional (AHP) posts. In September, we're kicking off work with 6 ‘accelerator sites’ who will be transforming their approach to multidisciplinary working and collecting robust evidence on the benefits for people with Parkinson’s and the local health economy.

Programme objectives

  • Develop a clear vision for person centred multidisciplinary care and achieve consensus around best practice.
  • Increase the number of services implementing best practice, including through our partnership with the Flow Coaching Academy.
  • Develop and roll out new training opportunities for therapists, including through our new therapist induction.
  • Improve understanding of best practice multidisciplinary care among people with Parkinson’s, relatives and carers.

Vision statement

Read the vision statement (PDF 320KB)

 

Contact [email protected] to find out more.

Chair: Professor Annette Hand, Parkinson’s specialist nurse and Excellence Network Clinical Lead for Nursing

This programme aims to make access to a Parkinson’s specialist nurse a priority. To date, Parkinson’s UK has pump primed more than 320 nurse posts across the UK. Now with funding administered through the Excellence Network, this will continue until the average caseload for each nurse is no more than 300. We're also working to boost recruitment and retention rates and champion improvements to succession planning.

Contact [email protected] to find out more.
 

Want to know more?

Do you want to learn more about the national priority programmes, or even find out how your service could get involved? Contact the Excellence Network Team with your questions.

Keep up to date

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