Here's our roundup of what you need to know as we continue to live with coronavirus (COVID-19).
This page was last updated on 4 April 2022 at 9.00am to reflect the latest guidance. This advice is updated as new information becomes available.
Jump to the section you're interested in:
- Restrictions and social distancing for people with Parkinson’s
- The coronavirus vaccine
- Testing and isolation
- Living with or caring for someone with Parkinson's
- In-person activities
- Practical help when self-isolating
You can also read our information page about Parkinson's and coronavirus, including the support that's available.
Restrictions and social distancing for people with Parkinson’s
If you have Parkinson’s, or are a friend, family member, or carer for someone with Parkinson’s, you should continue to follow the guidance where you live:
Our Clinical Leadership team does not recommend any additional measures for people with Parkinson’s.
However, you should continue to take measures that feel suitable and right for you. For example:
- Be aware of where you are most at risk from catching coronavirus (indoors, and crowded places with close proximity to others).
- Consider the amount of close contact you have with people from outside your household. You may want to continue to meet outdoors or in smaller groups.
- Consider avoiding busy places at peak times and continue to practice good hand hygiene.
- If it’s not already required by your country's guidance, consider wearing a face covering and keeping a social distance.
- Ask others to wear a face covering and maintain a distance when coming into your home. You may want to keep windows open when guests are round to bring fresh air in.
- You may want to continue to take regular lateral flow tests and ask people you are meeting to test before you get together. Lateral flow tests are no longer free to everyone, so it may be more difficult for some people to access them.
Alongside your government’s guidance, it will be up to you to decide how you want to work, travel and socialise safely.
The coronavirus vaccine
People with Parkinson's, and their carers, should have been offered their vaccination and a booster by now. If not, check the current vaccination arrangements where you live:
There is no charge for the vaccine and the NHS will not ask you to share any financial details.
A spring booster programme delivering a 4th dose of the vaccine to those at highest risk started in March 2022. Not everyone with Parkinson's will be eligible for this booster.
Testing and isolation
Regular testing is being phased out across the UK and free general access to lateral flow tests will stop in April. If you would like to continue testing before visiting people who are at greater risk of coronavirus, you can purchase lateral flow tests from pharmacies.
If you have symptoms of coronavirus or have tested positive, you are strongly encouraged to remain at home and limit your contact with others. People with Parkinson’s may be eligible for ongoing research trials into the effectiveness of antivirals, so should take a test if they start to display symptoms.
To take part you will need to have a positive test result. More information about who can access tests can be found in the guidance for your country:
Living with or caring for someone with Parkinson's
If you’re caring for someone with Parkinson's, you should always follow the guidance where you live. You can reduce your risk of catching or passing on coronavirus by:
- Getting vaccinated.
- Letting fresh air into the house by keeping windows open, or choosing to socialise outdoors instead.
- Wearing a face covering in crowded and enclosed spaces.
- Trying to stay at home if you are unwell.
- Taking a test if you have coronavirus symptoms, and staying at home and avoiding contact with other people if you test positive.
- Washing your hands regularly.
You can find out about different types of support and get advice on creating a contingency plan from Carers UK.
It's really important to look after your own wellbeing and physical health during this time. Read further information on caring for someone with Parkinson's.
For current guidance on visiting care homes, please check with the care home manager.
Some people are meeting up and joining activities in person. Others aren't ready to do this, and are keeping things virtual for now.
Use our local support tool to find out what's available in your area and online.
The pandemic has had a huge impact on people's Parkinson's symptoms, and on their confidence. We're here to support you and help you stay safe, whatever you plan to do.
For people attending in-person activities, we'll always follow the latest guidance on hygiene and social distancing, and ask that you do the same.
If you're feeling anxious, read our article: How to navigate the lifting of coronavirus restrictions.
If you're a local group volunteer, read our advice for volunteers and local groups on restarting activities safely.
Practical help when self-isolating
You can register with your local council for support getting food, medicines and other essential supplies. The GOV.UK website can direct you to your local council's support pages.
If you have Parkinson’s and live in England, you are eligible for help from NHS Volunteer Responders. Register and find out more details on their website.
And we can support you to find more practical help locally. Please call our helpline.
You can also read about how we're fighting for you during the pandemic, all over the UK.
We're here for you
We’re here for you throughout the coronavirus (COVID-19) crisis. Using our support tool, choose the topics that are important to you. We’ll show you the information that matters to you.
Take part in coronavirus drug research
The PANORAMIC trial aims to find antiviral treatments to help people recover faster from coronavirus. We’re encouraging people with Parkinson’s to take part, so researchers can investigate the benefits of the drugs in people who are more vulnerable to coronavirus.