Latest advice on coronavirus and Parkinson’s

Here's our roundup of what you need to know as we continue to live with coronavirus (COVID-19).

This page was last updated on 13 September 2021 at 2.17pm to reflect the latest guidance. This advice is updated as new information becomes available.

Restrictions and social distancing for people with Parkinson’s

Some restrictions and social distancing guidelines are lifting in all 4 UK nations. If you have Parkinson’s, or are a friend, family member or carer for someone with Parkinson’s, you should continue to follow the guidance where you live:

Our Clinical Leadership team does not recommend any additional measures for people with Parkinson’s.

However, you should continue to take measures that feel suitable and right for you. For example:

  • Be aware of where you are most at risk from catching coronavirus (indoors, and crowded places with close proximity to others).
  • Increase the amount of close contact you have with people from outside your household gradually. You may want to continue to meet outdoors.
  • Consider avoiding busy places at peak times and continue to practice good hand hygiene.
  • If it’s not already required by your country's guidance, consider continuing to wear a face covering and keeping a social distance.
  • Ask others to wear a face covering and maintain a distance when coming into your home.

Alongside your government’s guidance, it will be up to you to decide how you want to work, travel and socialise safely. 

The coronavirus vaccine

People with Parkinson's, and their carers, should have been offered their vaccination by now. If not, check the current vaccination arrangements where you live: 

There is no charge for the vaccine and the NHS will not ask you to share any financial details.

Find out more about the coronavirus vaccine and Parkinson's.

Guidance for people who are clinically extremely vulnerable

Some people are at very high risk of severe illness and hospital admission from coronavirus because of an underlying health condition.

If you’re in this group, you will have received a letter from the NHS or from your GP telling you this. You may have been advised to shield in the past. Often, Parkinson’s alone is not enough to make you clinically extremely vulnerable. 

If you’re affected, check the guidance where you live, which may include some additional measures:  

If you're unsure and need to talk to someone, we're here. Call our helpline on 0808 800 0303.

Testing and isolation

If you have symptoms or a positive lateral flow test, you need to arrange a coronavirus test to confirm if you have the virus. If you're positive, you'll need to self-isolate for at least 10 days.

If you're fully vaccinated or under 18, you no longer need to isolate if you've been in close contact with someone who has coronavirus, unless you start showing symptoms.

While you don't need to isolate, you may be advised to take additional precautions like testing, wearing a mask and limiting your contacts. Check the guidance in your country on your government website. 

Everyone in the UK is now able to access free, at-home rapid lateral flow tests which offer results within 30 minutes. It is recommended that you take these twice a week, as they can detect coronavirus even if you do not have symptoms, helping to keep you and others around you safe.

There may also be occasions where you are required to take a lateral flow test, eg before a hospital appointment or an event.

Wherever you live in the UK, you can order tests to be delivered to your home via the Government website. There are also places across the UK where you can collect tests, which you can find using this NHS postcode look up tool.

Living with or caring for someone with Parkinson's

If you’re caring for someone with Parkinson's, you should always follow the guidance where you live. There are some simple steps you can take to reduce their risk:

  • Work from home if you can.
  • Limit contact with other people.
  • Keep your distance if you go out.
  • Wash your hands and clothes regularly.
  • Let fresh air into the house by keeping windows and doors open whenever possible, without getting too cold.
  • Find out about different types of support and get advice on creating a contingency plan from Carers UK.

If you're the main carer for someone with Parkinson's, you should have been called for a vaccine. If you haven't, find out how to get yours on our vaccine page

It's really important to look after your own wellbeing and physical health during this time. Further information on this is available on our website.

For current guidance on visiting care homes, please check with the care home manager. 

Restarting activities as coronavirus restrictions ease

As restrictions lift across the UK, some people are meeting up and joining activities in person. Others aren't ready to do this, and are keeping things virtual for now. 

Use our local support tool to find out what's available in your area and online.

The pandemic has had a huge impact on people's Parkinson's symptoms, and on their confidence. We're here to support you and help you stay safe, whatever you plan to do.

If you are ready to attend in-person activities again, we'll be following the latest guidance on hygiene and social distancing, and ask that you do the same. We are encouraging everyone to do lateral flow tests twice a week as recommended by the government, to help keep everyone around you as safe as possible.

If you're feeling anxious, read our article: How to navigate the lifting of coronavirus restrictions.

If you're a local group volunteer, read our advice for volunteers and local groups on restarting activities safely.

Practical help when self-isolating

You can register with your local council for support getting food, medicines and other essential supplies. The GOV.UK website can direct you to your local council's support pages.

If you have Parkinson’s and live in England, you are eligible for help from NHS Volunteer Responders. Register and find out more details on their website.

Independent Age, the Scottish government and the Welsh government have lots of useful tips for getting supermarket deliveries during the pandemic. 

And we can support you to find more practical help locally. Please call our helpline

You can also read about how we're fighting for you in this crisis, all over the UK.

We're here for you

We’re here for you throughout the coronavirus (COVID-19) crisis. Using our support tool, choose the topics that are important to you. We’ll show you the information that matters to you.