Latest advice on coronavirus and Parkinson’s

Here's our roundup of what you need to know as we continue to live with coronavirus (COVID-19).

This page was originally published on 3 March 2020. It was updated on 26 May 2021 at 8am to reflect the latest guidance. This advice is updated as new information becomes available.

The coronavirus vaccine

Most people with Parkinson's, and their carers, should have had their vaccination by now. If not, check the current vaccination arrangements where you live: 

There is no charge for the vaccine and the NHS will not ask you to share any financial details.

Find out more about the coronavirus vaccine and Parkinson's.

Restrictions and social distancing

Some restrictions and social distancing guidelines remain in place. Check the guidance where you live:

You must wear a face covering in many indoor spaces, such as shops and places of worship, and on public transport, unless you are exempt or have a reasonable excuse. 

For face covering exemptions and guidance in different parts of the UK, refer to the specific guidance where you live.

Testing

Arrange a test, and self-isolate for at least 10 days, if you or anyone in your household has coronavirus symptoms.

Everyone in England and Scotland is eligible for free, at-home rapid lateral flow tests twice a week. In Wales and Northern Ireland you can get lateral flow tests for you and your household if you cannot work from home. In Wales you’re also able to get free tests if you volunteer.

Regular testing is in place to help spot cases, even if you don't have symptoms. This is to spot cases where people do not show symptoms, and allow people to go about their normal life with confidence.

These tests offer results within 30 minutes and can be ordered online, by telephone or collected from local pharmacies and test centres. To order your free home testing kit or find where you can collect them in your local area, visit the GOV.UK website.

Living with or caring for someone with Parkinson's

If you’re caring for someone with Parkinson's, you should always follow the guidance where you live. And there are some simple steps you can take to protect them and reduce their risk:

  • Work from home if you can.
  • Limit contact with other people.
  • Keep your distance if you go out (2 metres apart where possible).
  • Wash your hands and clothes regularly.
  • Let fresh air into the house by keeping windows and doors open whenever possible, without getting too cold.
  • Find out about different types of support and get advice on creating a contingency plan from Carers UK.

If you're the main carer for someone with Parkinson's, you should have been called for a vaccine. If you haven't, find out how to get yours on our vaccine page

It's really important to look after your own wellbeing and physical health during this time. Further information on this is available on our website.

Restarting activities as coronavirus restrictions ease

As restrictions start to lift across the UK, some people are meeting up and joining activities in person. Others aren't ready to do this, and are keeping things virtual for now. 

The pandemic has had a huge impact on people's Parkinson's symptoms, and on their confidence. We're here to support you and help you stay safe, whatever you plan to do.

If you're feeling anxious, read our article: How to navigate the lifting of coronavirus restrictions.

If you're a local group volunteer, read our advice for volunteers and local groups on restarting activities safely.

Practical help when self-isolating

You can register with your local council for support getting food, medicines and other essential supplies. The GOV.UK website can direct you to your local council's support pages.

If you have Parkinson’s and live in England, you are eligible for help from NHS Volunteer Responders. Register and find out more details on their website.

Independent Age, the Scottish government and the Welsh government have lots of useful tips for getting supermarket deliveries during the pandemic. 

And we can support you to find more practical help locally. Please call our helpline

You can also read about how we're fighting for you in this crisis, all over the UK.

Guidance for people who are clinically extremely vulnerable

Some people are at very high risk of severe illness and hospital admission from coronavirus (COVID-19) because of an underlying health condition. If you are in this group, you will previously have received a letter from the NHS or from your GP telling you this. You may have been advised to shield in the past. Often, Parkinson’s alone is not enough to make you clinically extremely vulnerable. 

If you are affected, you should follow the guidance where you live:  

If you're unsure and need to talk to someone, we're here. Call our helpline on 0808 800 0303.

We're here for you

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