This Black History Month we’re sharing stories from members of the community who are advocating for better inclusion of Black people in Parkinson’s research.
Black History Month is about sharing, honouring and appreciating the invaluable contributions of Black people to the UK. It is also about amplifying voices, sharing stories and challenging inequalities faced by the community.
Through our Race Equality in Research project, we’re working with communities to build relationships and increase representation in research. We’re proud to be partnering with people like presenter and model Linda E, who is helping raise awareness about Parkinson’s by taking part in community events.
When Linda’s dad was diagnosed with Parkinson’s, she felt alone. She didn’t know anyone else in her situation, and was worried about what people might think.
Linda now hopes to change the conversation so that no one has to go through what she and her family did. She said:
"Running events for Black communities is so important because action is always better than words. It gives people the opportunity to reach out and speak to communities with other people in a similar condition. It reminds people that we are not in this alone."
In 2024, we’ll be holding an online event for Black communities to hear more about how to access support, advice and how to live well with Parkinson’s. You can register your interest in the event through this form.
Toussaint, who was diagnosed with young-onset Parkinson’s, has been involved in research and will be at the online event. He said:
"Being part of initiatives that are specific for people who look like me is so important to me. It offers a sense of community as a Parkinson’s diagnosis can sometimes leave you feeling isolated and alone. It is important to have a safe space where people within the Black community can discuss the unique concerns that can arise."
Read more about Linda and Toussaint’s experiences, and find out about our Race Equality in Research work, by clicking through the links below.