Caring for someone with Parkinson's
Do you help support or care for a partner, friend or family member with Parkinson's? We're here for you too.
As someone's Parkinson's develops, their care needs may change. We can support you through this.
Sometimes talking to other people who understand what you're going through as a carer, friend or family member can help.
Working and caring for someone at the same time can be challenging, but we can provide information to help you manage.
If you're under 18 years old and help to support a parent, grandparent or relative with Parkinson's, you may consider yourself to be a young carer.
Share your experiences of being a carer during the coronavirus pandemic
Carers UK has launched a survey to understand how the coronavirus pandemic continues to impact the lives of carers.
Your responses will help Carers UK in their ongoing work to influence the Government, highlight carers’ experiences in the media, and ensure their advice and information resources are appropriate for carers’ needs.
The survey will take 15-20 minutes to complete and is open until Sunday 27 September.
Download our carer's guide
If you care for someone with Parkinson's, this guide looks at issues that may affect you.
It offers practical help and advice, whether you provide care and support for someone who has recently been diagnosed, or someone who has been living with Parkinson's for a while.
The carer's guide (PDF, 1.3MB)
We’re currently reviewing our information for family, carers and friends, and would love to hear your feedback. So if there’s anything we’ve missed, or have thoughts on what we could be doing better, then please get in touch.
We're here for you
We’re here for you throughout the coronavirus (COVID-19) crisis. Using our support tool, choose the topics that are important to you. We’ll show you the information that matters to you.
Slice title
Find local services, activities and support
How do you look after yourself if you look after someone with Parkinson’s? What keeps you going? What makes life easier? Here, you share your tips for other family, friends and carers of people with Parkinson's.
Sarah is mum to Alex, who has Parkinson’s, and was diagnosed when he was just 11 years old. Sarah shares her experience of being both a mum and carer to her son.
Slice title
My husband has Parkinson's
"People always say 'How's Ron?', they never say "'How are you?"
Being a carer can be hard, especially if you have a farm to look after too.
Hear about Elizabeth's experiences in our short video.
Slice title
Tahira's story
"As I was the main carer, I needed someone to talk to, and I didn't get that. One day the doctor said 'How are you today?' For the first time I felt human because somebody actually asked how I was."
Tahira shares her experience of being a carer in our short film.
Our helpline and Parkinson's local advisers are here to answer any questions you have about your recent diagnosis and life with Parkinson's.
Call us on 0808 800 0303.
If you care for someone with Parkinson's, you might find it useful to keep a diary.