Shape our future campaigns

Every year, Parkinson’s UK campaigns on crucial issues that affect people living with Parkinson’s. Issues such as developing better health and social care services, better access to treatments, therapies and the benefits system across the UK, and free prescriptions in England where people are still having to pay.

We’re raising awareness of the challenges faced by people with Parkinson’s, their families and their carers, and are encouraging all UK governments and service planners to make improvements.

The views of people with Parkinson’s, carers and families shape where we campaign and what for.

We listen to what you say on our forum, helpline, at meetings across the UK, and through our information and support service. We want to make sure we’re campaigning on the issues that will have the biggest impact and improve life for people with Parkinson’s, their families and carers. So we’re asking - what issues matter most to you? 

Over to you

Tell us by filling in our online survey now. You can also complete the paper version of this survey and return it to us by 17 May. Please note this date has been extended.

Parkinson’s UK’s Policy and Campaigns team currently works on a number of issues including:


  • Ensuring that everyone has access to high-quality health and social care services that meet their needs, including mental health services.

  • Ensuring that everyone has access to the right treatments at the right time to help them manage their condition.

  • Factoring Parkinson’s into standards and guidelines for the delivery of services by health and care professionals. 

  • Ensuring that people with Parkinson’s, carers and families are supported to demand better services.

  • Ensuring people with Parkinson’s get their medication on time, every time, when in hospital or in a care home. 

  • Making sure people have access to the right benefits and financial support to live independently.

The views of people with Parkinson’s their families, carers, researchers and health and care professionals shape our campaigns. Now you have the opportunity to decide what we campaign for in the future by completing our survey.

Want to find out more?

For more information about this survey or to speak to someone about our campaigns please contact our policy and campaigns team on [email protected] or 020 7963 9349.