Timms PIP Review Steering Group publishes new report

The Timms Review Steering Group has just published its interim report. Its most important finding is that the current PIP process isn’t good enough. 

The report confirms that the descriptors for both daily living and mobility do not consider fluctuating conditions like Parkinson's enough. And assessments don't show a full picture of how complicated these health problems can be.

The Review points out the need for better assessor training and that currently, assessments can be subjective. 

It also says a fair system shouldn’t depend on people’s ability to navigate complicated processes or talk about their condition in a particular way. 

Read the full report on the GOV.UK website.

Our concerns

We’re concerned by the report’s suggestion that there should be a greater emphasis on participation in society. This includes volunteering, work or social and cultural activities. 

The decision to grant PIP should be based on the impact a condition has on someone’s daily life, not on their ability to take part in these activities.

Our thoughts

David Newbold, Director of Community at Parkinson’s UK, said: 

"We welcome the Timms Review’s recognition that the current PIP system is not working for many disabled people and that it can be particularly difficult for those with fluctuating conditions such as Parkinson’s. It's encouraging to see acknowledgement that assessments do not always capture the full impact of a condition, can be subjective, and that assessor training needs to improve.

“However, we're concerned by the suggestion that there should be a greater emphasis on participation in society, such as volunteering, work or other activities, when considering support. Access to PIP should be based on the impact a condition has on someone’s daily life, not on whether they're able to take part in particular activities.

“We're also disappointed that the Review doesn't go further in addressing unnecessary reassessments for people with progressive conditions such as Parkinson’s. People should not be repeatedly asked to prove the impact of a condition that will only worsen over time.

“We'll continue to work with the Timms Review to help make sure any future changes to PIP work for people with Parkinson’s and lead to a fairer, more consistent system that provides the support people need."

Kristine McGregor, a member of our PIP Review Reference Group, said: 

“As someone living with Young Onset Parkinson’s, I welcome the interim review’s recognition that the current PIP system is no longer fit for purpose, particularly for people with fluctuating conditions. 

“However, recognition alone is not enough. Parkinson’s can change from hour to hour. On one day I may be able to volunteer or speak at an event; on another, I may be unable to get out of bed safely. My disability has not changed, only my symptoms have. PIP must assess the real impact of disability, not what someone manages to achieve on their best days.

“I'm also concerned by any suggestion that participation in society could influence entitlement. Support should never depend on whether someone is able to work, volunteer or contribute to their community. Those activities should be encouraged, not used as a measure of disability.

“This review presents a real opportunity. I hope the final recommendations deliver a PIP system that reflects the reality of progressive and fluctuating conditions, treats disabled people with dignity, and is built on clinical expertise, lived experience and trust.”

Our next steps

Our PIP Review Reference Group will talk about the Review’s report and share any concerns with the Review Steering Group Chair, Sir Stephen Timms MP. 

We’re also keen to know the Review Steering Group’s thoughts on how technology could improve the way PIP gathers evidence for claims. 

Read our news story to find out how we’ve been feeding into the Timms Review so far.