What care should I be getting?

Continuing Healthcare campaign victory


13 clinical commissioning groups have backed down on NHS Continuing Healthcare funding policies, after being threatened with legal action by the Equality and Human Rights Commission.

Matina Loizou, Senior Policy Adviser at Parkinson's UK and Chair of the Continuing Healthcare Alliance, said:

"This is a huge step forward for some of the most vulnerable people in England.

"For years, we've been campaigning against inadequate care policies throughout the country, which would see people forced into potentially unsafe care settings.

"The Equality and Human Rights Commission calling out this scandal has held local decision makers to account, with a brilliant result.

"The last thing people with Parkinson’s and other debilitating conditions need is the additional stress and uncertainty of battling to get the care they are entitled to and we hope this development will mean they don’t have to."


For more information, please contact: 

Molly Horsburgh, Senior Media & Press Officer, Parkinson's UK:  

  • 07928 719 921
  • Out of hours: 07961 460248

About Parkinson's

Every hour, 2 people in the UK are told they have Parkinson's. 
It affects 145,000 people in the UK – which is around 1 in every 350 adults.

Parkinson's is a degenerative neurological condition, for which there currently is no cure. The main symptoms of the condition are tremor, slowness of movement and rigidity. 

Parkinson's UK is the UK's leading charity supporting those with the condition. Its mission is to find a cure and improve life for everyone affected by Parkinson's through cutting edge research, information, support and campaigning. 

For advice, information and support, visit parkinsons.org.uk or call our free, confidential helpline on 0808 800 0303.