Take part in research

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Recognising emotion through body language

Deadline
Who

• 33 people with Parkinson’s 

• 33 people with Progressive Supranuclear Palsy 

• 33 people without either of these conditions 

The student is looking for people aged between 55 and 85 who have access to a computer or laptop. 

Where
From home

You will be asked to take part in an online emotion recognition test and complete surveys. This research is led by Durham University.

  • I can do at home
  • Studying symptoms
Distance: From home

Understanding the experience of hearing loss in people with Parkinson’s dementia

Deadline
Who

• 10 people with Parkinson’s dementia who are experiencing hearing loss

• 10 people with Dementia with Lewy Bodies who are experiencing hearing loss

• 10 unpaid carers for people with Parkinson’s dementia or Dementia with Lewy Bodies who are experiencing hearing loss

Everyone taking part must have access to a device that connects to the internet at home such as a computer, smartphone or tablet.

Where
From home

You will be asked to take part in an online hearing test and interview. This research is led by Liverpool University.

  • I can do at home
  • Studying symptoms
Distance: From home

PD Frontline: identifying genes in people with Parkinson's

Deadline
Who

6,800 people with Parkinson's who live in the UK and are aged between 18 to 90 years old. 

The research team is currently prioritising people between the ages of 35 and 75 who have been diagnosed with Parkinson’s in the last 7 years, to be screened to take part in the ASPro-PD research study.

Where
From home

You will be asked to fill out an online survey and complete a postal sample collection kit. You may then be invited to take part in other clinical trials. 

  • Biological samples
Distance: From home

How do changes to face and body movement affect people with Parkinson’s?

Deadline
Who

320 people with Parkinson’s.

Unfortunately, those diagnosed with any other neurological conditions such as dementia or severe mental health issues such as depression are unable to take part.

Where
From home

You will be asked to complete an online questionnaire and may be invited to a follow-up interview. This research is led by the University of Manchester. 

  • Questionnaires
  • Studying symptoms
Distance: From home

Get it on time: Parkinson's medication management while in hospital

Deadline
Who

350 people with Parkinson’s 

• who are taking Parkinson’s medication

• have recently attended a hospital visit or have a visit planned in the near future

Where
From home

You will be asked to complete one survey per month for 6 months following a hospital visit. The surveys can be completed online or by post. 

This research is led by Manchester Metropolitan University. 

  • Care and services
  • Questionnaires
Distance: From home

STEPS 2 - Can electrical stimulation improve walking?

Deadline
Who

234 people with Parkinson’s who:

• have difficulty walking due to Parkinson’s

• can walk 50 metres with walking aids and stand from a sitting position, without assistance from another person

Unfortunately those receiving Deep Brain Stimulation (DBS) or using other active medical implanted devices, such as a pacemaker, are unable to take part.

Where
Salisbury, Leeds, Swansea, Birmingham, Bangor, North Cumbria , Derby, Ipswich Hospital

You will be invited to attend up to 10 visits at your local research site. This research is led by Salisbury District Hospital and The University of Plymouth.

  • Treatments or therapies
Distance: 38.3 miles

Parkinson’s and Movement Disorders Families Project

Deadline
Who

• 2400 people with Parkinson’s, or another movement disorder, who have either:

•  developed the condition before the age of 45,

• or have a family history of other family members with the condition, 

• or who carry a known gene change associated with the condition 

Where
Central London (Hampsted), Central London (Queen Square), South London, North London, East London, West London, Cornwall, Isle of Wight, Basingstoke, Poole, Worthing, Harrogate, Sheffield, Salisbury, Romford, Leeds, Uxbridge, Leicester, Keighley, Exeter, Plymouth, Taunton, Yeovil, North Wales , Shrewsbury, Middlesbrough, Scarborough, Solent, Wolverhampton, Sunderland, Luton, Cumbria, Basildon, Coventry, Birmingham, Pennines, Norwich, Christchurch, Cambridge, Northumbria

Taking part involves 1 research site visit, giving a blood sample, and completing surveys and assessments of your movement. This research is led by University College London. 

  • Biological samples
Distance: 39.3 miles

TOP HAT: Trial of a licensed drug as a Parkinson's Hallucination Treatment

Deadline
Who

306 people diagnosed with Parkinson's or Lewy Body Dementia (LBD) who:

• experience visual hallucinations at least once a week,

• are not taking apomorphine or any anti-psychotic medication, 

• and have been taking a stable dose of Parkinson's or LBD medication for 28 days before starting the research

Where
Belfast, Glasgow, Salford, Bury, Northumbria, Sutton In Ashfield, South East London, Shrewsbury, Romford, Ashford and St Peters, Luton, Dorset, Coventry, Southampton, Penarth, Leeds, Edinburgh, Airdrie, Surrey and Borders, Central London, Reading

Taking part involves taking the research medication or a dummy medication for 12 weeks and taking part in assessment visits.

  • Treatments or therapies
Distance: 40.3 miles

COBALT: Trial of a combination of 2 drugs as a Parkinson’s dementia treatment

Deadline
Who

300 people with Parkinson’s dementia or dementia with Lewy Bodies 
• who are aged over 55
• have been taking an acetylcholinesterase inhibitor (AChEI) medication (for example, Donepezil also called Aricept) for at least 12 weeks

All participants will be asked to take part with a trial partner such as a loved one or carer. 

Where
West London , Cambridge, Cornwall, Cupar, Fife, Glasgow, North Bristol, Nottingham, Tees, Esk, and Wear Valleys, South London and Maudsley, Southampton, Kent and Medway, Devon and Exeter, Norfolk and Suffolk, Sheffield, Newcastle upon Tyne, Sussex, Oxford, North West London , Edinburgh, Surrey and Borders, South West London, Bradford, Essex, Belfast

You will be asked to take either the study drugs or a placebo drug for 52 weeks and attend 3 in-person visits at your local research hospital or at home. 

  • Treatments or therapies
Distance: 40.9 miles

Scotland Neuroprogressive and Dementia Network

Deadline
Who

People with Parkinson's, Parkinson’s with Dementia and Lewy Body Dementia living in Scotland

Where
Recruitment clinics across Scotland

You will be invited to sign up for a Scottish research register and complete a survey about yourself. This research is led by CSO NHS Research Scotland.

  • Biological samples
  • Brain scans
  • Care and services
  • I can do at home
  • Questionnaires
  • Studying symptoms
  • Treatments or therapies
Distance: 41.1 miles

CAN-PDP: Cannabidiol (CBD) for people with Parkinson's who experience hallucinations or delusions

Deadline
Who

120 people with Parkinson’s who:

• are over 40 years old

• have experienced any symptoms of psychosis for at least one month. This could include seeing, hearing, or feeling things that aren’t there and mistaking objects for other things (hallucinations). For example, a pile of clothes might look like a dog. Symptoms could also include unusual thoughts, beliefs, or worries that aren't based on reality (delusions)

• have been taking any Parkinson’s medications for at least one month

• are not taking clozapine

• and have someone who can attend study visits with them

Where
King’s College Hospital, London, South London and Maudsley, South West London, Bath, Sheffield , Chertsey , Derby , Newport, Llanelli , Wrexham, Bodmin, Cornwall, Pembrokeshire, South Tyneside and Sunderland, Edinburgh, Dundee , Aberdeen, Gateshead, Romford, Sutton-in-Ashfield, Somerset

Taking part involves taking the study treatment (CBD) or a placebo treatment (such as a sugar pill) for 12 weeks, and attending up to 6 assessment visits. Some of these can take place over the telephone or online, and others will need to take place at your local research centre or at your home.

  • Treatments or therapies
Distance: 41.1 miles

Understanding visual hallucinations using brain scans

Deadline
Who

16 people with dementia with Lewy bodies, Parkinson’s Dementia or Parkinson’s who are:

• over 60 years old 

• currently experiencing visual hallucinations

• can be accompanied by a family member or carer

16 people without dementia with Lewy bodies, Parkinson’s Dementia or Parkinson’s who are: 

• over 60 years old 

Unfortunately, those receiving Deep Brain Stimulation (DBS) or using other active medical implanted devices, such as a pacemaker, are unable to take part.

Where
Newcastle

You will be asked to take part in 3 research visits, at your home, Newcastle University and the Edinburgh Imaging Facility. 

  • Brain scans
  • Studying symptoms
Distance: 75.9 miles

The Parkinson’s Progression Markers Initiative: How does Parkinson’s start and change?

Deadline
Who

People who meet the criteria of one of the following groups may be eligible to participate:

• People with Parkinson’s who are over 30 years old and have been diagnosed with Parkinson's in the last 7 years. This can include people who are or aren’t taking medication or intervention for Parkinson's symptoms (including DBS)


• People without Parkinson’s who are over 40 years old. The researchers are especially interested in hearing from people with REM Sleep Behavior Disorder

Where
Newcastle upon Tyne, Oxford, West London, East London

Taking part involves 4 study visits in one year and 2 visits in the second year. At each visit, you will complete physical and neurological exams, memory tests, and brain scans. 

  • Brain scans
  • Studying symptoms
Distance: 75.9 miles

Understanding movement patterns in people with Parkinson’s

Deadline
Who

12 people with Parkinson’s 
• who are aged 40 or over
• and experience freezing of gait 

Unfortunately, those diagnosed with any other neurological conditions, such as dementia, are unable to take part.

Where
Canterbury

You will be invited to visit the University of Kent and take part in movement tests. You will be asked to stop taking your Parkinson’s medication for part of the study.

  • Studying symptoms
Distance: 337.4 miles