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The Parkinson's Family Project

Deadline
Who

1000 people with Parkinson’s with either early onset before the age of 45, a familial diagnosis or who carry a known gene change associated with Parkinson's.

Where
Central London, South London, North London, West London, South West London, Cornwall, Isle of Wight, Basingstoke, Preston, Poole, Worthing, Harrogate, Sheffield, Salisbury, Romford, Leeds, Peterborough, Uxbridge, Leicester, Edgware, Keighley, Exeter, Plymouth, Taunton, Yeovil, North Wales, Shrewsbury, Middlesbrough, Portsmouth, Scarborough, Winchester, Wolverhampton, Staffordshire, Sunderland, Luton, Merseyside, Cumbria, Basildon, Coventry, Birmingham, Pennines, Norwich

The researchers are studying people with early onset or familial Parkinson's and their related affected and unaffected family members, to understand more about the symptoms and genetics of Parkinson's.

  • Biological samples
  • Questionnaires
Find more about the "<span class="field field--name-title field--type-string field--label-hidden">The Parkinson&#039;s Family Project </span> " trial
Distance: From home

Understanding the loss of brain cells in Parkinson's through PET scans

Deadline
Who

6 people who were diagnosed with Parkinson’s in the last 2 years, who are not taking Parkinson’s medication and who are between 40-80 years of age.

Where
Greater London

Dr. Gennaro Pagano wants to try to understand the mechanism behind the loss of brain cells in Parkinson’s through PET brain scans.

  • Brain scans
Find more about the "<span class="field field--name-title field--type-string field--label-hidden">Understanding the loss of brain cells in Parkinson&#039;s through PET scans</span> " trial
Distance: From home

Accurately monitoring Parkinson’s using a simple photograph of the eyes.

Deadline
Who

70 people with Parkinson’s between 18-90 years of age who are happy to travel to the research centre.

The researchers are also looking for 30 people with either a diagnosis of Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) or Frontotemporal Dementia (FTD).

Where
Manchester

Hway Lim and Dr Monty Silverdale at the University of Manchester are looking into a new way of monitoring Parkinson’s.

  • Biological samples
  • Studying symptoms
  • Treatments or therapies
Find more about the "<span class="field field--name-title field--type-string field--label-hidden">Accurately monitoring Parkinson’s using a simple photograph of the eyes.</span> " trial
Distance: From home

Rapsodi – Identifying early features of Parkinson’s and Gaucher

Deadline
Who

800 people with Parkinson’s or Gaucher and family members of people with either condition.

Where
From home

Professor Tony Schapira and the research team across the UK have launched a pioneering online research study. The aim is to understand how subtle changes occur prior to the onset of motor symptoms in Parkinson’s.

  • Biological samples
  • I can do at home
  • Questionnaires
  • Studying symptoms
Find more about the "<span class="field field--name-title field--type-string field--label-hidden">Rapsodi – Identifying early features of Parkinson’s and Gaucher </span> " trial
Distance: From home

Developing a ‘one stop’ assessment of hallucinations and delusions

Deadline
Who

30 people with Parkinson’s who have experienced psychosis and 20 people without Parkinson’s.

Where
London

Yi-Min Wan and her team from King’s College Hospital are conducting research which aims to help healthcare professionals characterise and measure hallucinations and delusions (sometimes called psychosis) in a more reliable way. 

  • Questionnaires
  • Studying symptoms
  • Treatments or therapies
Find more about the "<span class="field field--name-title field--type-string field--label-hidden">Developing a ‘one stop’ assessment of hallucinations and delusions</span> " trial
Distance: From home

Fair Park II – conservative iron chelation as a disease modifying strategy in Parkinson’s

Deadline
Who

40 people diagnosed with Parkinson’s who have not taken any medication for your Parkinson’s.

Where
Cambridge, Newcastle

This is a major EU-Funded research project investigating the effects of Deferiprone, an iron chelation therapy, on the progression of Parkinson’s. Deferiprone is currently used to treat people who have inherited blood disorders.

  • Biological samples
  • Treatments or therapies
Find more about the "<span class="field field--name-title field--type-string field--label-hidden">Fair Park II – conservative iron chelation as a disease modifying strategy in Parkinson’s</span> " trial
Distance: From home

Neuro LTC: Assessing factors and events that influence care needs

Deadline
Who

The researchers would like to hear from people with Parkinson’s and carers (including people who were previously carers). 

Where
From home

Dr Sarah Fearn and Emily Watkins from the University of Southampton are assessing factors and events that influence care needs.

  • Care and services
  • Questionnaires
Find more about the "<span class="field field--name-title field--type-string field--label-hidden">Neuro LTC: Assessing factors and events that influence care needs</span> " trial
Distance: From home

Neurostimulation to improve swallowing in Parkinson's

Deadline
Who

66 people with Parkinson’s between the ages of 35–80 who have difficulties with swallowing.

Where
Salford

Professor Hamdy and the team at Salford Royal Hospital are exploring neurostimulation techniques to see if they can help improve swallowing in people with Parkinson’s.

  • Treatments or therapies
Find more about the "<span class="field field--name-title field--type-string field--label-hidden">Neurostimulation to improve swallowing in Parkinson&#039;s</span> " trial
Distance: From home