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PD Frontline - Identifying genes in people with Parkinson's

Deadline
Who

1000 people diagnosed with Parkinson's who live in the UK.

Anyone who has already taken part in RAPSODI does not need to register for PD Frontline as they are linked research trials. The team is currently working on referring those already registered on RAPSODI to PD Frontline, and they will be in touch with you when this is ready.

Where
From home

Professor Anthony Schapira and his research team at Queen Square Institute of Neurology, UCL, are looking to identify a large number of people with Parkinson's who may have small genetic alterations in genes such as LRRK2 or GBA, which are known to be associated with Parkinson's.

  • Biological samples
Distance: From home

An observational study of the effects of social isolation for people with Parkinson's during lockdown.

Deadline
Who

100 people diagnosed with Parkinson's aged over 18 who are happy to use a digital device.

They are also looking for 25 people who do not have Parkinson's.

Where
From home

Pavlos Zinzalias and the research team at King's College Hospital are investigating how social isolation has impacted the health of people with Parkinson's during the coronavirus pandemic.

  • I can do at home
  • Questionnaires
  • Studying symptoms
Distance: From home

Time perception in Parkinson's and the older population.

Deadline
Who

4000 people who are affected by Parkinson's, either diagnosed with or connected to someone who's been diagnosed. You must be over 18, although primarily they are looking for people over 50 years of age. You also need to have access to a computer, tablet or smartphone with a speaker.

Where
From home

Lily Su, a DPhil Student with the Neuro Metrology group at the University of Oxford, is interested in understanding how time perception is affected in people with Parkinson's.

  • I can do at home
  • Studying symptoms
Distance: From home

CAN-PDP - Cannabidiol for Parkinson's Psychosis

Deadline
Who

24 people diagnosed with Parkinson's who are over the age of 40 years.  You will need to be currently experiencing symptoms of psychosis (such as hallucinations or delusions) for at least one month before the first study visit. The team also requires that you have been on a stable dose of your Parkinson's medication and any antipsychotic treatments for at least a month. You must not be taking clozapine.

As part of the research requirements, participants will need to have someone with you who is your main supporter or care giver to provide information and fill out some questionnaires.

Where
From home

Professor Sagnik Bhattacharyya and the research team at King's College London are investigating an new drug treatment for Parkinson's psychosis - when people with Parkinson's experience hallucinations (e.g. seeing things or hearing voices that are not there) or develop delusions (i.e. false beliefs, for example, that someone may be trying to harm them).

  • Treatments or therapies
Distance: From home

Speech and language therapy for slurring of speech (dysarthria) and future treatment directions.

Deadline
Who

100 people diagnosed with Parkinson's or a medical condition that causes slurred speech.  You must be currently or have previously attended speech and language therapy for your slurred speech.

Where
From home

Pasquale Balzan, a PhD researcher at the University of Sheffield is investigating what current therapy people with slurred speech experience and their views on this.

  • Care and services
  • I can do at home
  • Questionnaires
Distance: From home