138 people with Parkinson’s.
Unfortunately, those diagnosed with dementia or a mental health condition other than depression or anxiety are unable to take part.
You'll be asked to complete 2 surveys. You can take part online, by post, or by phone.
This research is led by the University of Oxford.
12 people with Parkinson’s and 8 supporters who are affected by communication problems.
The researchers are especially keen to speak with supporters (partners, family or friends) who feel conversations with their loved ones have been affected.
You'll be asked to join a 2 hour group meeting online or in person. This research is led by the University College London.
200 people with Parkinson’s
You'll be asked to complete 1 online survey. This research is led by the Dublin Neurological Institute.
8 to 12 people with Parkinson’s from a South Asian background, who have lived in the UK for at least 5 years before diagnosis.
You'll take part in an interview with the researcher. You can take part online or by phone.
This research is led by Lancaster University.
20 health and care professionals who:
• regularly support or work with people with Parkinson’s
• and live in the UK
You'll take part in 1 online interview.
This research is led by Oxford Brookes University.
80 people with Parkinson’s
You'll be asked to complete 1 survey. You can take part online, by post, or by phone.
This research is led by the Newcastle University School of Dental Sciences.
300 people with Parkinson’s who live in the UK.
The researchers are looking to speak to people who have already had DBS, people who are considering it, and people who haven't thought about DBS before or have been told they're not eligible.
You will be asked to complete 1 survey. You can take part online, by post or over the phone.
This research is led by the University of Sheffield.
50 people without Parkinson’s who are 50 to 80 years old who have:
• a diagnosis of postural hypotension or pure autonomic failure
• or experience frequent episodes of dizziness after standing up which end after sitting
• or take medicine for low blood pressure such as midodrine or fludrocortisone.
And have access to a laptop or computer.
You’ll be asked to complete an online survey and an optional in person visit to London.
This research is led by Queen Mary University of London.
• 24 healthcare professionals working in the NHS who currently diagnose or discuss advanced care planning with people with Parkinson’s
• 28 people with Parkinson’s
• 23 people who support a person with Parkinson’s
• 5 bereaved supporters of a person with Parkinson’s
We want to ensure the resource supports all communities effectively. We're looking for people from Black, Asian, Arab, or Mixed Heritage backgrounds to share their experiences and help shape this resource.
You’ll be asked to take part in a focus group discussion or online interview.
This research is led by the University of Bristol.
17,000 people without Parkinson's aged between 50 and 80
You'll be asked to complete 1 online survey.
This research is led by Queen Mary University London and University College London.
60 people with Parkinson’s, who:
• live within NHS Grampian in Scotland.
• experience freezing when walking and can walk further than 100m with or without a walking aid
• have been taking a stable dose of Parkinson's medication for 3 weeks before starting the research
• and have access to a laptop or tablet
You'll use augmented reality glasses to complete exercises over 6 weeks. You can take part from home. This research is led by Robert Gordon University.
1000 people with Parkinson’s and their supporters who have access to a smartphone or tablet, and an internet connection.
People with Parkinson’s who don’t have a care partner are also eligible to take part.
Unfortunately, those diagnosed with dementia or who are living in a care facility are unable to take part.
You will be asked to use a phone application, complete surveys and take part in an interview.
This research is led by Newcastle University.
12 people with Parkinson’s in the UK who:
• have received 4 or more sessions of mental health support in the last 5 years through a non-Parkinson’s specialist, such as a Cognitive Behavioural Therapist
• accessed this mental health support after being diagnosed with Parkinson’s for at least 1 year
Unfortunately, those who are receiving ongoing mental health support are unable to take part.
You'll be asked to take part in a meeting with the researcher. You can take part over the phone or online.
This research is led by Lancaster University.
People with Parkinson's, Parkinson’s with Dementia and Lewy Body Dementia living in Scotland
You will be invited to sign up for a Scottish research register and complete a survey about yourself. This research is led by CSO NHS Research Scotland.
320 people with Parkinson’s.
Unfortunately, those diagnosed with any other neurological conditions such as dementia or severe mental health issues such as depression are unable to take part.
You'll be asked to complete 1 online survey and may be invited to a follow-up interview.
This research is led by the University of Manchester.
350 people with Parkinson’s
• who are taking Parkinson’s medication
• have recently attended a hospital visit or have a visit planned in the near future
You will be asked to complete one survey per month for 6 months following a hospital visit. The surveys can be completed online or by post.
This research is led by Manchester Metropolitan University.
People with Parkinson's who live in the UK and are aged between 18 to 90 years old.
You will be asked to complete 1 online survey and postal sample collection kits for blood and saliva.