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The Parkinson's Family Project

Deadline
Who

1000 people with Parkinson’s with either early onset before the age of 45 or a familial diagnosis.

Where

Central London

Location

UCL Institute of Neurology Royal Free Hospital
Pond Street,
Hampsted
London
NW3 2QG
United Kingdom

Contact

Alyssa Costantini

0207 794 0500 ext. 34374

[email protected]

or 

Manuela Tan

[email protected] 

South London

Location

Kings College Hospital
Denmark Hill
Brixton
London
SE5 9RS
United Kingdom

Contact

Dhaval Trivedi 

0203 299 7154

[email protected]

North London

Location

Central Middlesex Hospital
Acton Lane
Park Royal
London
NW10 7NS
United Kingdom

Contact

Agnes Motsi

0203 311 1714

[email protected]

West London

Location

Charing Cross Hospital
Fulham Palace Road
London
W6 8RF
United Kingdom

Contact

Emmima Manoharan or Larahmie Masati

0208 383 3704

[email protected] or [email protected]

South West London

Location

St George's Hospital
Blackshaw Road
Tooting
London
SW17 0QT
United Kingdom

Contact

Thanos Prountzos

0207 848 5015 or 07495780483

[email protected]

Cornwall

Location

The Royal Hospitals NHS Trust
Treliske
Truro
TR1 3HD
United Kingdom

Contact

Ali James

01872 256498

[email protected]

Isle of Wight

Location

St Mary's Hosptial
Parkhurst Road
Newport
PO30 5TG
United Kingdom

Contact

Joy Wilkins

01983 822099 ex: 5748

[email protected]

Basingstoke

Location

Basingstoke and North Hampshire Hospital
Aldermston Road
Basingstoke
RG24 9NA
United Kingdom

Contact

Deborah Dellafera

01256 473202 ext: 6859

[email protected]

Preston

Location

Royal Preston Hospital
Sharoe Green Lane
Fulwood
Preston
PR2 9HT
United Kingdom

Contact

Vicki Fleming

07501227876 or 01772 522031

[email protected]

Poole

Location

Poole Hospital
Longfleet Road
Poole
BH15 2JB
United Kingdom

Contact

Annimieke Fox

01202 263210

[email protected]

Worthing

Location

Worthing & St Richards Hospital
Lyndhurst Road
Worthing
BN11 2DH
United Kingdom

Contact

Sarah House

01903 205111 x 84196

[email protected]

Harrogate

Location

Harrogate District Hospital
Lancaster Park Road
Harrogate
HG2 7SX
United Kingdom

Contact

Caroline Bennett

01423 553738

[email protected]

Sheffield

Location

Royal Hallamshire hospital
Glossop Toad
Sheffield
S10 2JF
United Kingdom

Contact

Rebecca Gregory

01142 713339

[email protected] 

Salisbury

Location

Salisbury District Hospital
Odstock Road
Salisbury
SP2 8BJ
United Kingdom

Contact

Alpha Anthony

01722336262 ext 4447

[email protected]

Romford

Location

Queen's Hosptial
Rom Valley Way
Romford
RM7 0AG
United Kingdom

Contact

Elisa Visentin

01708 435000 ext 6128/2079

[email protected]

Leeds

Location

Leed's General Infirmary
Great George Street
Leeds
LS1 3EX
United Kingdom

Contact

Josephine Harrison

01133 925073

[email protected]

Peterborough

Location

Peterborough City Hospital
Bretton Gate
Peterborough
PE3 9GZ
United Kingdom

Contact

Natalie Temple

01733 673891

[email protected] 

Uxbridge

Location

Hillingdon Hospital
Pield Heath Road
Uxbridge
UB8 3NN
United Kingdom

Contact

Melinda Holden

01895 238282 ext 2826

[email protected]

Leicester

Location

Leicester Royal Infirmary
Infirmary Square
Leicester
LE1 5WW
United Kingdom

Contact

Cathy Thompson

0116 2586977

[email protected] 

Edgware

Location

Edgware Community Hospital
Burnt Oak Broadway
Edgeware
HA8 0AD
United Kingdom

Contact

Aliki Rizou and Ruth Butler

07785458115 / 07827 081028

[email protected] / [email protected]

Keighley

Location

Airedale General Hospital
Skipton Road
Skeeton
Keighley
BD30 6TD
United Kingdom

Contact

Emma Dooks

01535 292386

[email protected]

Exeter

Location

Royal Devon and Exeter Hospital
Barrack Rd
Exeter
EX2 5DW
United Kingdom

Contact

Emily Rogers

[email protected]

Plymouth

Location

Mount Gould Hospital
Mount Gould Rd
Mount Gould
Plymouth
PL4 7PY
United Kingdom

Contact

Rena Truscott

01752 434498 or 07798 677457

[email protected] 

Taunton

Location

Musgrove Park Hospital
Parkfield Drive
Taunton
TA1 5DA
United Kingdom

Contact

Denise Sharratt and Eliza Foster

01823 34 [3181] / 01823 343638

[email protected] / [email protected]

Yeovil

Location

Yeovil Hospital
Higher Kingston
Yeovil
BA21 4AT
United Kingdom

Contact

Alison Lewis

01935 383017

[email protected]

Llandudno

Location

Llandudno General Hospital
Hospital Road
llandudno
LL30 1LB
United Kingdom

Contact

Dr Pam Martin-Forbes

01248 388719 

[email protected]

 

Shrewsbury

Location

The Royal Shrewsbury Hospital
Mytton Oak Rd
Shrewsbury
SY3 8XQ
United Kingdom

Contact

Johanna Stickley

01743 261000 ext 3964

[email protected]

Middlesbrough

Location

James Cook Hospital
Marton Road
Middlesbrough
TS4 3BW
United Kingdom

Contact

Carol Long

01642 283501

[email protected]

Portsmouth

Location

Queen Alexandra Hosptial
Southwick Hill Road
Portsmouth
PO36 3LY
United Kingdom

Contact

Catherine Edwards

02392 286000 X 4078

[email protected]

Scarborough

Location

Scarborough Hospital
Woodlands Drive
Sarborough
YO12 6QL
United Kingdom

Contact

Emma Temlett

01723 342384

[email protected]

Winchester

Location

St Mary's Community Health Campus
St George's Street
Winchester
SO23 8AH
United Kingdom

Contact

Lisa Hyatt

02392 685295

[email protected]

Wolverhampton

Location

New Cross Hospital
Wolverhampton Road
Wolverhamton
WV10 0QP
United Kingdom

Contact

Angela Wilberry and Angela Stevens

01902 307999 Ex 8607

[email protected] / [email protected]

Staffordshire

Location

Haywood Hospital
High Lane
Burslem
Staffordshire
ST6 7AG
United Kingdom

Contact

Johanne Tomlinson

01782 673506

[email protected]

Sunderland

Location

Sunderland Royal Hospital
Kayll Rd
Sunderland
SR4 7YP
United Kingdom

Contact

Dr Barbara Wilson

0191 208 1337 or 0191 223 2740

[email protected] 

Luton

Location

Luton and Dunstable Hospital
Lewsey Rd
Luton
LU4 0DZ
United Kingdom

Contact

Yvynne Croucher

01582 718300

[email protected] 

The researchers are studying people with early onset or familial Parkinson's and their related affected and unaffected family members, to understand more about the symptoms and genetics of Parkinson's.

Diagnosed for more than 3 years
Diagnosed within 3 years
Biological samples
Questionnaires
Distance: From home

Vision and sense of smell in Parkinson's

Deadline
Who

50 people diagnosed with Parkinson's who would have no other cause for changes to your sense of smell or vision.

Where

Bournemouth and the surrounding area

Location

Bournemouth University, Faculty of Health and Social Sciences,
Bournemouth House,
17-19 Christchurch Rd, Lansdowne,
Bournemouth
BH1 3LH
United Kingdom

Contact

Professor Ahmed Khattab

01202 967281

[email protected]

The research aims to explore the relationship between vision and sense of smell in people with Parkinson's. 

Diagnosed for more than 3 years
Diagnosed within 3 years
Questionnaires
Studying symptoms
Distance: From home

UCL BioResource

Deadline
Who

People who are over 5 years old and in London

Where

London

Location

UCL Hospital
235 Euston Rd
Bloomsbury
London
NW1 2BU
United Kingdom

Contact

UCL Bio Resource team

020 3447 5369

[email protected]

The research team aims to create a pool of volunteers with and without health conditions who can be contacted about taking part in research.

Diagnosed for more than 3 years
Diagnosed within 3 years
I don't have Parkinson's
I have a related condition
Biological samples
Questionnaires
Distance: From home

OxQuip; developing tests to measure Parkinson's symptoms

Deadline
Who

200 people with Parkinson's or PSP based in the UK

Where

Oxford

Location

Nuffield Department of Clinical Neuroscience,
Level 6 West wing
John Radcliffe Hospital
Oxford
OX3 9DU
United Kingdom

Contact

Prof. Chrystalina Antoniades

07854 838331

[email protected]

 

This research aims to develop sensitive tests to measure the symptoms of Parkinson's and Progressive Supranuclear Palsy (PSP)

Diagnosed for more than 3 years
Diagnosed within 3 years
I have a related condition
Questionnaires
Studying symptoms
Distance: From home

Investigating the role of inflammation in Parkinson's

Deadline
Who

People with Parkinson's who were diagnosed less than two years ago and are not currently taking Levodopa, or were diagnosed over eight years ago and are on stable medication.

Where

London

Location

Kings College Hospital
Denmark Hill
Brixton
London
SE5 9RS
United Kingdom

Contact

George Dervenoulas

07931509277

[email protected]

This study will test a new imaging technique that could be used to look at inflammation in the brain

Diagnosed within 3 years
Brain scans
Distance: From home

Understanding the loss of brain cells in Parkinson's through PET scans

Deadline
Who

6 people who were diagnosed with Parkinson’s in the last 2 years, who are not taking Parkinson’s medication and who are between 40-80 years of age.

Where

Greater London

Location

Kings College Hospital
Denmark Hill
Brixton
London
SE5 9RS
United Kingdom

Contact

Dr. Gennaro Pagano

07949805013

[email protected]

Dr. Gennaro Pagano wants to try to understand the mechanism behind the loss of brain cells in Parkinson’s through PET brain scans.

Diagnosed within 3 years
Brain scans
Distance: From home

i-PROGNOSIS; early detection and interventions

Deadline
Who

Any Android or Window smart phone user aged between 40-90 years. 

Professor K Ray Chaudhuri and his research team are supporting the investigation into the i-PROGNOSIS app as a device to assist with the early detection of Parkinson's

Diagnosed for more than 3 years
Diagnosed within 3 years
I don't have Parkinson's
I can do at home
Studying symptoms
Distance: From home

Accurately monitoring Parkinson’s using a simple photograph of the eyes.

Deadline
Who

70 people with Parkinson’s between 18-90 years of age who are happy to travel to the research centre.

The researchers are also looking for 30 people with either a diagnosis of Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) or Frontotemporal Dementia (FTD).

Where
Manchester

Hway Lim and Dr Monty Silverdale at the University of Manchester are looking into a new way of monitoring Parkinson’s.

Diagnosed for more than 3 years
Diagnosed within 3 years
I have a related condition
Biological samples
Studying symptoms
Treatments or therapies
Distance: From home

Phase II research trial: a drug to reduce dyskinesia

Deadline
Who

74 people with Parkinson's who experience dyskinesia. 

Where

London

Location

University College London Hospital
235 Euston Road
Fitzrovia
London
NW1 2BU
United Kingdom

Contact

Emmima Monoharan 

020 3448 4193

[email protected]

Plymouth

Location

Derriford Hospital
1 Roscoff Rise
Plymouth
PL6 5FP
United Kingdom

Contact

Catherine Pitman

01752 431807

[email protected] 

Nottingham

Location

Queens Medical Centre
Academic Neurosciences Dept
Derby Road
Nottingham
NG7 2UH
United Kingdom

Contact

Lani Paterson

01159249924 ext 66517

[email protected]

Bristol

Location

Bristol Brain Centre
Southmead Hospital
Westbury-on-Trym
Bristol
BS10 5NB
United Kingdom

Contact

Sarah Dunn

0117 4148270

[email protected]

North Shields

Location

North Tyneside General Hospital
Department of Medicine
Rake Lane
North Shields
NE29 8NH
United Kingdom

Contact

Steve Dodds

0191 293 4087

[email protected]

Peterborough

Location

Peterborough City Hospital
Bretton Gate
Peterborough
PE3 9GZ
United Kingdom

Contact

Natalie Temple

01733673891

[email protected]

Oxford

Location

John Radcliffe Hosptial
West Wing, Level 3
Headley Way
Oxford
OX3 9DU
United Kingdom

Contact

Charlotte Woodward

01865 231556

[email protected]

Dundee

Location

Clinical Research Centre
Ninewells Hospital and Medical School
James Arrott Drive
Dundee
DD1 9SY
United Kingdom

Contact

Justine Hudson

01382 660111 ext. 54083

[email protected]

Bury

Location

Fairfield General Hospital
Clinical Research Unit
Rochdale Old Road
Bury
BL9 7TD
United Kingdom

Contact

Sanniah Hussain

0161 778 2259

[email protected]

Luton

Location

Luton and Dunstable University Hospital
Lewsey Road
Luton
LU4 0DZ
United Kingdom

Contact

Yvynne Croucher

01582718733

[email protected]

Lincoln

Location

Lincoln County Hospital
Greetwell Road
Lincoln
LN2 5QY
United Kingdom

Contact

Susie Butler

01522 512512

[email protected]

Stoke on Trent

Location

Royal Stoke University Hospital
Newcastle Road
Stoke on Trent
ST4 6QG
United Kingdom

Contact

Claire Everill

01782 715444

[email protected]

Essex

Location

Barking, Havering and Redbridge University Hospital
Brentwood
Essex
CM15 8DR
United Kingdom

Contact

Laura Parker

01708435023

Laura.Parker2[email protected]

Cornwall

Location

Cornwall Partnership NHS Foundation Trust
Trevillis House
Lodge Hill
Liskeard
PL14 4EJ
United Kingdom

Contact

Joanna Ledger 

01209 204020

[email protected]

Torbay

Location

Torbay Hosptial
Horizon Centre
Torquay
TQ2 7AA
United Kingdom

Contact

Janet Palmer

01803 656628

[email protected]

The Clinical Trial Company, is investigating a drug to treat involuntary movements, known as dyskinesia, in people with Parkinson’s.

Diagnosed for more than 3 years
Diagnosed within 3 years
Biological samples
Treatments or therapies
Distance: From home

Rapsodi – Identifying early features of Parkinson’s and Gaucher

Deadline
Who

800 people with Parkinson’s or Gaucher and family members of people with either condition.

Professor Tony Schapira and the research team across the UK have launched a pioneering online research study. The aim is to understand how subtle changes occur prior to the onset of motor symptoms in Parkinson’s.

Diagnosed for more than 3 years
Diagnosed within 3 years
I have a related condition
Biological samples
I can do at home
Questionnaires
Studying symptoms
Distance: From home