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An observational study of the effects of social isolation for people with Parkinson's during lockdown.

Deadline
Who

100 people diagnosed with Parkinson's aged over 18 who are happy to use a digital device.

They are also looking for 25 people who do not have Parkinson's.

Where
From home

Pavlos Zinzalias and the research team at King's College Hospital are investigating how social isolation has impacted the health of people with Parkinson's during the coronavirus pandemic.

  • I can do at home
  • Questionnaires
  • Studying symptoms
Distance: From home

Understanding anxiety in older adults from diverse cultural backgrounds.

Deadline
Who

45 people over 65 years of age who self-identify as a 'worrier' or experience anxiety and stress. Rasha is specifically looking for people who are living in the UK and identify as being white British, South Asian (Pakistani, Indian, Bangladeshi)/British Asian, or African/British African or Caribbean/British Caribbean.

Where
From home

Rasha Alkholy, a PhD student at the University of Manchester, is exploring how anxiety conditions can lead to lower quality of life and other health conditions. She is specifically interested in how this may be different for people from a range of cultural backgrounds.

  • I can do at home
  • Studying symptoms
Distance: From home

Investigating how often hallucinations occur in people with Parkinson's and if they affect thinking tasks.

Deadline
Who

500 people diagnosed with Parkinson's who are over 18 years of age who have access to the internet. You do not need to experience hallucinations to take part in this research.  

The team are also looking for people without Parkinson's who are aged 50 years or older.

Where
From home

Mr Louis Albert, Dr Jevita Potheegadoo and the research team in the Laboratory of Cognitive Neuroscience at EPFL, Switzerland, are investigating the consequences of hallucinations on changes to people's thinking and memory.

  • I can do at home
  • Questionnaires
  • Studying symptoms
Distance: From home

Time perception in Parkinson's and the older population.

Deadline
Who

4000 people who are affected by Parkinson's, either diagnosed with or connected to someone who's been diagnosed. You must be over 18, although primarily they are looking for people over 50 years of age. You also need to have access to a computer, tablet or smartphone with a speaker.

Where
From home

Lily Su, a DPhil Student with the Neuro Metrology group at the University of Oxford, is interested in understanding how time perception is affected in people with Parkinson's.

  • I can do at home
  • Studying symptoms
Distance: From home

A trio of research trials exploring SNCA, Parkin, DJ-1 and PINK1 gene mutations and how it affects serotonin, inflammation and brain scans.

Deadline
Who

As many people as possible who have been told they have an SNCA, Parkin, DJ-1 and PINK1 gene mutation and may or may not be not diagnosed with Parkinson's. If you know of someone who may have had their genes profiled, please do share this information with them.

Where
From home

Dr Edoardo De Natale and the Neurodegeneration Imaging Group at the University of Exeter are investigating how chemical levels in people with the SNCA, Parkin, DJ-1 and PINK1 gene mutations who may and may not be diagnosed with Parkinson's are affected.

  • Brain scans
  • Studying symptoms
Distance: From home

The PD Life Study

Deadline
Who

450 people in total, either diagnosed with Parkinson's or a partner or carer of someone with Parkinson's.

Where
From home

Dr Qian Yue Tan from the University of Southampton and a collaboration of other researchers have created a national survey to understand what day-to-day tasks are required to look after the health of a person with Parkinson's, and what the impact is on them, their partner and/or carer.

  • Care and services
  • I can do at home
  • Questionnaires
Distance: From home