Sign our petition to help people with Parkinson’s in hospital get their medication on time

We know that medication is a lifeline for people living with Parkinson’s and that if they don't get it on time it can seriously impact their health.

We know that medication is a lifeline for people living with Parkinson’s and that if they don't get it on time it can seriously impact their health.

That’s why today, we have launched a new report and our petition that asks the NHS to take action to improve medication management for people with Parkinson’s in hospital. 

The findings in the report highlight the unsafe reality of going into hospital for people living with the condition. These findings include:

  • Nearly two thirds of people who have Parkinson’s don’t always get their medication on time in hospital.

  • More than three quarters of people with Parkinson’s that we asked reported that their health deteriorated as a result of poor medication management in hospital. 

  • Only 21% of respondents told us they got their medication on time without having to remind hospital staff.

Hospitals not providing staff adequate training and support

As part of preparing the report, we got in touch with every hospital in the UK to find out what they are doing to ensure people with Parkinson’s get their medication on time. 

The responses we received show not all hospitals are doing enough to ensure care for people with Parkinson’s is safe. These findings include:

  • Only 44% of hospital trusts/health boards offer mandatory training for staff on Parkinson’s

  • 26% of hospital trusts/health boards don’t have a policy that would allow people with Parkinson’s to take their own medication, if they are able, once admitted.

  • 57% of hospital trusts/health boards have no system that alerts a patients specialist team when they have been admitted to hospital.

Support our work to improve hospital care 

Our new report contains recommendations for the NHS, the care regulator and the government. We believe these changes will ensure that more people with Parkinson’s get their medication on time, every time when in hospital.

Carole Buckingham, who has Parkinson’s and didn’t get her medication on time when she was in hospital, said: “I have to take 36 tablets a day at five different times but whilst I was in hospital I was never given my medication at the time I needed it, I felt ignored and like the staff didn’t understand Parkinson’s and the severity of the situation. 

"A few months on and I still haven’t fully recovered. I don’t feel myself. I’m feeling anxious and like I don’t want to leave the house."

Lloyd Tingley, Senior Policy and Campaigns Adviser at Parkinson’s UK said: "Our new report highlights the devastating consequences when people with Parkinson’s don’t get their medication on time in hospital, and what the NHS and Government need to do to fix it.

 "The NHS can improve care and save money by ensuring their staff are trained in how to safely treat people with Parkinson’s, alert specialists when someone with the condition is admitted to hospital and empower their staff to support people to take their medication, if they’re able.

"Help us to deliver these vital improvements for people with Parkinson’s in hospital by asking your friends, family and networks to sign our petition, so we can ensure that everyone with the condition gets their medication on time, every time." 

More information

To find out more about our campaign or to order any Get It On Time resources please visit our web pages

If you’d like a paper copy of the petition or to share your experience of getting your medication on time in hospital please email [email protected] or call 020 7963 9349.

Read the full report

See our Get It On Time report

Share your experience

Have you had a good or bad experience with your medication when you have gone into hospital?

Or do you want to get involved in this area of our work? Contact [email protected] or 020 7963 9349 to find out more.

Get It On Time resources

Please see our resources that you can use in hospital to help get your medication on time