This week a new guide has been launched to help charities support patients to have their say on research carried out by the pharmaceutical industry.
A new guide has been launched to help charities support patients to have their say on research carried out by the pharmaceutical industry.
Read the full guide here.
Parkinson’s UK worked alongside other charities, companies and patients to develop the guide to provide urgently needed practical advice on how these groups can work together to deliver research focused on the needs of patients.
Bringing the voice of patients to research
Our pioneering Patient and Public Involvement programme supports researchers to work in partnership with people affected by Parkinson’s to shape their studies.
This ensures that research is relevant to people living with the condition, that clinical trials are designed with patients in mind, and that the treatments developed address the most urgent issues.
One of our volunteers comments:
“For me, it is really important to know that Parkinson’s UK works closely with the pharmaceutical industry. Knowing that my voice can be heard, and listened to means that what is important to me as a person with Parkinson’s becomes important to those companies as well.”
Making drug development patient-focused
Dr Natasha Ratcliffe, Research Involvement Manager at Parkinson’s UK, comments:
“People affected by the condition have valuable insights and experience to bring to all forms of research.
“We’ve been supporting researchers based in universities and hospitals to work with patients for several years but have recently expanded our programme to support pharmaceutical companies too. It’s been a steep learning curve but ultimately a hugely positive experience.
“We were delighted to share our experiences and learnings in the new guide to help other organisations and make research to develop new medicines smarter, faster and more patient centred.”
Use your voice to shape research
To develop truly transformational new treatments we involve people affected by Parkinson's at every stage, from setting priorities for research to making decisions about the research projects we fund. And we help researchers and companies to do the same.
Getting involved is easy. Get started by joining our Research Support Network. We’ll send you emails about all the latest opportunities to support research. Just pick and choose the ones that appeal to you.