Championing Race Equality in Research
Find out how we're working to make sure everyone is represented in Parkinson's research. And how you can help.
Our Race Equality in Research programme
We believe Parkinson's research should involve, include and represent all members of the community.
We kicked off our project to drive forward race equality in Parkinson's research with the help of our steering group in 2021.
Our aim is to achieve meaningful representation of people from Black, Asian, Arab, and Mixed Heritage backgrounds throughout Parkinson's research.
The Race Equality in Research steering group identified priority areas that we are working towards to acheive this aim. Take a look at our progress so far on our research blog.
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Hear from our community
The Research Support Network is a community that's helping push promising research forward, and bringing us closer to better health, support and care.
Members of our community share why getting involved in research through the Research Support Network is important to them. Read their stories below:
Get involved
The monthly meeting is a safe space with and for people with Parkinson's from Black, Asian, Arab, and Mixed Heritage backgrounds and their families.
Find culturally sensitive support, connect with community, and learn from Parkinson's experts.
Our Race Equality in Research steering group is made up of people affected by Parkinson's, community leaders, and health and research professionals.
They are guiding our work to ensure that people from Black, Asian, Arab and Mixed Heritage backgrounds are meaningfully included and represented at every stage of research. Get in touch if you'd like to join us.
Our Get involved with Research leaflet provides information to help you take the first step to becoming involved with research. You can order the leaflet in 7 languages, for free, via our online shop.
INVISIBLE: addressing inequalities in health research
If health research does not represent people from global majority groups, it can mean that healthcare treatments and services are less safe, accessible, and effective. We joined health charities that came together to work with Egality, community organisations, and people with lived experience to co-produce an awareness raising film.
Our aim is to ensure everyone is represented and actively involved in shaping health research, to ultimately improve treatments and services. The spoken word film focuses on why diversity in health research matters for people, families, and communities.