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Involving service users

Local group members chatting at indoor bowls centre in Edinburgh
The priorities of people affected by Parkinson's are the touchstone for developing high quality services.

The UK Parkinson's Excellence Network offers clear insight from service users to enable health and social care professionals to better meet their needs.

The UK Parkinson's Excellence Network offers clear insight from service users to enable health and social care professionals to better meet their needs.

  • The Patient Reported Experience Measure, part of the UK Parkinson's Audit, lets you understand and benchmark your service from the perspective of your patients and clients.
  • Through the Network you can get access to live feedback from people living with the condition from across the UK. There are tools and expertise available to help you involve service users in shaping services too. 
  • The Network also provides access to resources to equip you to enable people affected by Parkinson's to take control, and get the information, support and opportunities they need to manage their condition and live life to the full.

Our service user involvement group works on involving service users in Parkinson's care.