Help researchers adapt their studies

Researchers are taking steps to invite people back to take part in face-to-face studies. To help them make sure their research resumes in a safe, practical, and convenient way, we'd like you to take part in a survey.

This survey closed in August and the result are now available. Discover the top findings or download the full report and recommendations here.

The Parkinson’s community drives our research, every step of the way.

Now, with researchers and companies turning their attention to restarting their face-to-face research, it’s vital that the adaptations they make to current and future work take into account the views of people affected by Parkinson’s.

Restarting clinical research

Across the UK and further afield, many research projects involving face-to-face visits were put on hold due to the coronavirus restrictions. This research is vital to developing better treatments and a cure for Parkinson’s. Any further delays to accelerating breakthroughs and transforming lives are unacceptable.  

Fortunately, clinical research is now restarting and studies are beginning to look for people to take part. There are currently many different opportunities to take part in research on our Take Part Hub - from online questionnaires to trialling new treatments. Whatever you're ready for, you can play your part in developing the treatments of tomorrow, today. 

Taking part in research may look a little different since the coronavirus shut down many studies. Researchers and companies are adapting to ensure the safety and wellbeing of staff and participants. 

Helping to shape research

People with Parkinson's, their families, friends, and carers shape our research every step of the way. For essential research to continue we must capture the views of the Parkinson’s community about how to restart and adapt face-to-face studies.  

We’d like you tell us how you feel about taking part in research, and your views on acceptable adaptations by taking part in this survey. The survey is open until Monday 31 August.

Lesley, Research Volunteer at Parkinson's UK, said: 

“The need for research to continue remains a high priority and therefore adaptations need to be made to make the outside world safer, or bring research into the home.” 

“The role of the patient has never been more important in advising how to avoid putting patients or researchers at risk and also to keep costs in check. Collaboration is essential to keep research progressing.” 

Share your thoughts on restarting face-to-face research

Parkinson’s UK wants to hear from people with Parkinson's, their families, friends, and carers about restarting vital research. Help shape research. Complete our survey by Monday 31 August.

Or for more information and support at this challenging time, visit our coronavirus information.