Parkinson's UK welcomes new neurological patient experience survey


A new neurological patient experience survey has opened, to collect vital information about treatment and care received by people affected by neurological conditions in England.

About the survey

The survey is by the Neurological Alliance – an organisation that brings together organisations working to make life better for millions of people in England with a neurological condition. Through the patient experience survey, the Neurological Alliance aims to positively influence the future quality of neurological health and care services.

Too often services fall below the standard expected. This survey aims to help change that. 

Parkinson's UK fully supports the Neurological Alliance in its ambitions. We welcome the survey as an important tool in gathering shared insights across neurological conditions. While you may have recently completed Parkinson's UK's own Your Life Your Services survey, it is important that people with Parkinson's are represented in the broader picture of care for people with neurological conditions. The neurology community is strong when it stands together.

What will happen with the results?

The Neurological Alliance will publish the results in a report in summer 2019. This report will set out a comprehensive picture of the quality of neurological services and care across England and will make recommendations about how it can be improved.

The Neurological Alliance's previous 2 patient experience surveys made a significant impact by:

  • making the case for continued national leadership for neurology by getting the National Neurological Advisory Group set up
  • getting the National Neurological Advisory Group to prioritise care planning and communication with patients as streams of work
  • developing work to address mental health issues for people living with neurological conditions
  • influencing the development of the NICE guideline on suspected neurological conditions

How do I complete it?

The survey is open until 17 January 2019 and is for anyone living with a neurological condition in England. It should take around 25 minutes to complete and all responses are anonymous.

Thank you – each response makes a difference.