On Thursday 1 October campaigners came together for a virtual hand-in of our Get It On Time petition.
We launched the petition last October as part of our Get It On Time campaign. It called on Governments across the UK to:
commit to introducing mandatory training for hospital staff on Parkinson’s
improve their policies and procedures to allow people with the condition (where appropriate) to take their own medication when in hospital.
Decision makers receive the petition
19,266 supporters signed the petition in one year. At the virtual event, we handed it to decision makers who represent the various Parliaments and Assemblies across the UK.
Mary Glindon, MP and chair of the All-Party Parliamentary Group on Parkinson’s in Westminster, shared that she was delighted to be at the virtual event supporting our campaign. Mary was shocked when volunteers, Tina and Ruth, told her about the impact late or missed medication had on someone with Parkinson’s.
Jackie Baillie MSP was inspired to support the campaign because of constituents' concerns raised by local volunteer, Fiona. She committed to working with us to make sure Scottish Government takes action to improve the situation for people with Parkinson’s in hospital.
Vikki Howells, Member of the Senedd, shared her support. She previously hosted an event that highlighted the need to act to make sure people got their medication on time in hospital. Vikki vowed to continue supporting our work.
Paula Bradshaw, MLA and member of the Northern Ireland health committee, noted that with such a high number of people with Parkinson’s not getting their medication on time in hospital, she will be taking the petition back to the health committee. She intends to encourage the Department of Health to take action.
Volunteers share their experiences
Two fantastic volunteers, both living with Parkinson’s, shared the work they’ve been doing locally as part of the Get It On Time campaign.
Ruth Brinkler-Long, from Peterborough, shared how she’d been involved in the campaign. Her activities included getting signatures on the petition. The most memorable was an event in Peterborough hospital where local MP Paul Bristow also came along. She commented:
“Our campaign is having an impact. A member from our group went into hospital recently and, as soon as he told the nurses he had Parkinson’s, they checked his medications and fast-tracked him. It’s great to see the message is getting out there”.
Garth Ravenhill used to be a nurse. He shared his experience of the campaign and meeting his local MP, Chloe Smith. He added:
“As a nurse I had no understanding of the consequences of not getting medication on time. However, now living with the condition, I recognise how important it is.
“Meeting Chloe was great, we outlined the campaign, what the local hospital could do and she really listened and took on board how they could improve hospital care for people with Parkinson’s.”
Benali Hamdache, Campaigns Manager at Parkinson’s UK thanked everyone for coming to the event:
“This year has been one of the toughest years faced by the NHS. But for people with Parkinson’s, getting their medication on time in hospital has been a challenge for years and there's still a long way to go.
“We believe introducing mandatory training on the condition, and educating professionals about medication management will make a huge difference.
“We’re really encouraged by the support we’ve received for our campaign and want to thank everyone for signing our petition, and the fantastic volunteers for their activity. We’ll continue to press Governments, NHS and regulators across the UK to work with us to ensure everyone with Parkinson’s gets their medication on time, every time.”