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Take part in research - list of UK studies

Want to take part in a Parkinson's research project? Browse our list of UK research studies below to find one that suits you.

Researchers need both people with and without Parkinson's to take part in clinical research studies. Without volunteers, progress in Parkinson’s research would be impossible. 

There are many types of opportunity available - from studies testing new treatments to studies focusing on understanding the condition better. Use our list to find a study that suits you.

Taking part

"It was interesting and exciting to be doing something completely different. You're made to feel that you are contributing.

"You can pick and choose - there's lots of projects. It's something that anybody can do."

List of UK research studies

Our list highlights Parkinson's research studies that are open for people to take part in.

Anyone who is considering taking part in research should speak to the professionals managing the project for more in-depth information.

Our list is provided for information only. It should not be treated as advice or a recommendation to participate in any of the studies.

Non-motor symptoms in early Parkinson's (England)

This international study is investigating when symptoms such as sleep problems, fatigue, pain and depression occur during Parkinson's, how they develop and how they respond to treatments.

  • What: Participants will be asked to complete questionnaires about a wide range of symptoms and their quality of life at 6 month intervals.
  • Where: London, Kent, Norwich, Yeovil, Harrogate, Lincoln, Macclesfield and Grantham
  • Who: 1000 people diagnosed with Parkinson's for 5 years or less
  • Deadline: Ongoing
  • Funded by: Parkinson's Disease Non-Motor Group

Read more about the study in the information sheet: 
Non-motor symptoms in early Parkinson's - study information sheet (PDF, 80KB)

If you're interested in taking part, please contact
Ms Alex Rizos, King's College Hospital, London
0203 299 7153
[email protected]

Parkinson's Families Project (UK-wide)

The researchers are studying people with early onset and familial Parkinson's and related affected and unaffected family members to understand more about the symptoms and genetics of the condition.

  • Where: UK-wide
  • Who: 1000 families with Parkinson’s (either early onset before the age of 45 or familial)
  • Deadline: Ongoing
  • Funded by: Parkinson's UK and the Medical Research Council

Read more about the study here: 
Parkinson's Families Project- participant information sheet (PDF,322KB)

If you're interested in taking part, please contact
Ms Manuela Tan, UCL Institute of Neurology, Royal Free Hospital
020 7794 0500 ext. 37032
[email protected]

Investigating changes in thinking in Parkinson's (England)

This project will investigate mental processing in Parkinson's. The researchers will study how people with Parkinson's choose the right thing to do at the right time compared to people without the condition.

  • What: Participants will be asked to do a range of tasks and undergo brain scans.
  • Where: Eastern England
  • Who: 40 people with Parkinson's and 40 people without any neurological condition
  • Deadline: December 2017
  • Funded by: The Wellcome Trust

Read more about the study here: 
Understanding cognition and action in Parkinson's

If you're interested in taking part, please contact
Dr James Rowe, University of Cambridge
01223 273630
[email protected]

Parkinson's Progressive Markers Initiative (London)

The Parkinson's Progression Markers Initiative (PPMI) aims to identify biomarkers for Parkinson's that could be used to diagnose and monitor the condition.

  • What: Participants will undergo a comprehensive series of assessments including brain scans; collection of blood, cerebral spinal fluid, and urine samples; as well as cognitive and motor evaluations.
  • Where: London
  • Who: People with or without Parkinson's who have a family history of Parkinson's, or are from Eastern European (Ashkenazi) or Basque background, or already have a known genetic mutation for Parkinson's.
  • Deadline: January 2018
  • Funded by: Michael J Fox Foundation

Read more about the study here: 
Parkinson's Progression Markers Initiative

If you're interested in taking part, please contact
Laura Payne, Charing Cross Hospital
020 3311 1714
[email protected]

Representing action in Parkinson's (Manchester)

The research team are interested in how people with Parkinson's respond to different objects and movements in their environment and how well they can communicate.

  • What: Participants will be asked to watch some video clips and look at pictures while the team measures reaction times and eye and hand movements.
  • Where: Greater Manchester
  • Who: 25 people with Parkinson's and 25 people without Parkinson's, all aged 50-75
  • Deadline: June 2017
  • Funded by: The University of Manchester

Read more about the study in the information sheet: 
Representing action - study leaflet (people with Parkinson's) (PDF, 185KB)
Representing action - study leaflet (people without Parkinson's) (PDF, 143KB)
Representing action - participant information leaflet (PDF, 151KB)

If you're interested in taking part, please contact
Ellen Poliakoff, University of Manchester
0161 275 7333
[email protected]

Vision and sense of smell in Parkinson's (South West England)

This study aims to explore the relationship between vision and sense of smell in people with Parkinson's.

  • What: Participants will take part in sight and smell tests and share details of their Parkinson's through questionnaires.
  • Where: Bournemouth, Poole, Christchurch and surrounding areas
  • Who: People with Parkinson's
  • Deadline: Ongoing
  • Funded by: NA

Read more about the study in the information sheet: 
Visual perception and sense of smell - patient information sheet (Word, 228KB)

If you're interested in taking part, please contact
Professor Ahmed Khattab, Bournemouth University
01202 967281
[email protected]

Developing the best care possible for Parkinson’s (UK-wide)

This study aims to see if specialist palliative care can improve the control of symptoms and provide support for people with Parkinson’s and those close to them.

  • What: You'll need to complete questionnaires during 5 home visits over 24 weeks. Participants will also receive short-term palliative care.
  • Where: Brighton, Cardiff, South London, Liverpool, Nottingham and Chertsey. Participants must live within the catchment areas of trial sites. You can find more information on catchment areas here.
  • Who: People with Parkinson’s who are not currently receiving palliative care
  • Deadline: 31 October 2017

Read more about the study in the information sheet:
OPTCARE Participant Information Sheet (PDF,378KB)

If you're interested in taking part, please contact 
Zaynah Sheikh, King's College London
0207 848 5578
[email protected]

Learning new movements with Parkinson’s (West Midlands)

This study aims to understand how people with Parkinson’s learn new movements. The researchers will investigate the ability of people with Parkinson’s to remember new movements.

  • What:  The study will involve up to 3 sessions, lasting no more than 90 minutes each. Participants will be asked to perform simple tasks that involve hand, arm and eye movements during these sessions.
  • Where: Birmingham or the West Midlands.
  • Who: People with and without Parkinson’s
  • Deadline: 31st September 2018
  • Funded by: Parkinson’s UK

Read more about the study in the information sheet:
Motor Control- Participant Information Sheet (PDF,234KB)

If you’re interested in taking part, please contact:
Sarah Voets, University of Birmingham
07823615520
[email protected]

Hallucinations in people with Parkinson’s (England)

This study aims to improve our understanding of visual hallucinations in people with Parkinson’s.

  • What: You’ll be invited to take part in an eye examination as well as 3 face-to-face and 4 follow-up over the phone assessments over a period of 91 weeks.
  • Where: London, Cambridge or Newcastle
  • Who: People with Parkinson’s who are over 60 and have also been diagnosed with dementia. The research team will ask you to choose someone who knows you well- such as a partner, carer or friend- to also take part as a study partner. 
  • Deadline: February 2018
  • Funded by: National Institute for Health Research (NIHR)

Read more about the study in the information sheet:
Shaped- Participant Information Sheet (PDF,332KB)
Shaped- Study Partner Information Sheet (PDF, 329KB)

If you’re interested in taking part, please contact:
Dr Rebecca Pinto, Kings College London 
0207 848 0297 
[email protected]

STEPS: Can electrical stimulation improve walking in Parkinson's? (England)

This research is investigating whether electrical stimulation devices can be used to improve walking in people with Parkinson's.

  • What: 4 assessment sessions lasting around 90 minutes each
  • Where: London and Salisbury
  • Who: People with Parkinson’s who have difficulty with aspects of their walking but are able to walk 10 metres without the assistance of another person. Participants must not have cardiac pacemakers or other active implanted medical devices and should not have other medical conditions that affect walking or the lower leg area.
  • Deadline: September 2017
  • Funded by: National Institute of Health Research (NIHR)

Read more about the study in the information sheet:
STEPS Information Sheet for participants based in London (PDF,586KB)
STEPS Information Sheet for participants based in Salisbury (PDF,396KB)

If you’re interested in taking part, please contact:
Paul Taylor, Salisbury District Hospital
01722 429119
[email protected]

UCL BioResource (London)

This research aims to create a pool of volunteers with and without health conditions who can be contacted about taking part in research.

  • What: Short questionnaire and blood sample
  • Where: London
  • Who: People who are over five years old and live within the catchment area of either the UCLH or Royal Free Hospital in London
  • Deadline: Ongoing
  • Funded by: National Institute of Health Research (NIHR)

Read more about the study in the information sheet:
The UCL BioResource- volunteer information sheet (PDF, 74KB)

If you’re interested in taking part, please contact:
Lucy Woolven, University College London
020 3447 5369
[email protected]

The 100,000 Genomes Project (England)

The 100,000 Genomes Project aims to transform NHS healthcare by integrating genomic medicine in the diagnosis and treatment of health conditions. The researchers are studying people with early onset and familial Parkinson's and related affected and unaffected family members to understand more about the condition and help develop new tests and treatments.

  • Where: England
  • Who: 1000 people with Parkinson’s (either early onset before the age of 45 or familial)
  • Deadline: December 2017
  • Funded by: Department of Health- Genomics England

Read more about the study in the information sheet:
Information Sheet for adults with genetic conditions (PDF, 737KB)
Information Sheet for family members (PDF, 737KB)

If you’re interested in taking part, please contact:
Katrin Hoffmann, University College London
07557 238 796
[email protected]

Investigating early signs of Parkinson’s (England)

This study aims to identify potential early indicators of Parkinson’s in people with REM Sleep Behaviour Disorder.

  • What: Assessments or interviews every 18 months for a period of 5 years.
  • Where: Thames Valley, Cambridge or Sheffield
  • Who: 300 people who are over 18 and have been diagnosed with REM Sleep Behaviour Disorder. The researchers are also looking for people without REM Sleep Behaviour Disorder to take part.
  • Deadline: Ongoing

Read more about the study in the information sheet: 
Information sheet for people with REM Sleep Behaviour Disorder (PDF,181KB)
Information sheet for people without REM Sleep Behaviour Disorder (PDF, 227KB)

If you’re interested in taking part visit the study website

For more information please contact:
Oxford Parkinson's Disease Centre
01865 223166
[email protected]

PD STAT: Statins as a treatment for Parkinson’s (UK-wide)

The team want to understand if Simvastatin can protect brain cells in Parkinson’s.

  • What: You will be asked to take either Simvastatin or a placebo treatment daily and attend 8 research visits over 2 years.
  • Where: Over 20 hospitals across the UK. Find out more.
  • Who: People with Parkinson's who are not taking Statins, have never taken them and do not medically need them.
  • Deadline: July 2017

Read more about the study in the information sheet:
PD STAT participant information sheet (PDF,556KB)

If you’re interested in taking part contact
[email protected]

OxQUIP: Developing tests to measure symptoms (UK-wide)

This research aims to develop sensitive tests to measure the symptoms of Parkinson's and Progressive Supranuclear Palsy (PSP).

  • What: Nine visits over a 2 year period. Each visit will last around 2 hours.
  • Where: UK-wide
  • Who: 200 people with Parkinson's or PSP based in the UK
  • Deadline: October 2019

Read more about this study in the information sheet:
OxQUIP information sheet (PDF,1510KB)

If you’re interested in taking part contact:
Prof Chrystalina Antoniades
01865 234 728
[email protected]

Understanding fatigue in Parkinson's (South England)

This research will explore the features of fatigue in people with Parkinson's.

  • What: A 15-20 minute questionnaire
  • Where: Hampshire, Dorset, Isle of Wight, Wiltshire, Sussex, Surrey, Berkshire
  • Who: 150-200 people with Parkinson's
  • Deadline: 30 September 2017

Read more about this study in the information sheet:
Fatigue Questionnaire Information Sheet (PDF, 51KB)

If you’re interested in taking part contact:
Veena Agarwal
023 8120 6379
[email protected]

Investigating care for Parkinson's (South England)

Improving memory and thinking in people with dementia with Lewy bodies (UK-wide)

The researchers want to see if the drug RVT-101 can improve memory and thinking in people with dementia with Lewy bodies. Find out more about this study at www.lewybodystudy.com.

  • What: You will be asked to take either the drug or a placebo and attend 10 visits over 32 weeks.
  • Where:  Dundee, Essex, London, Newcastle and Southampton
  • Who: People aged between 50-85 who have been diagnosed with dementia with Lewy bodies. You can find out if this study is suitable for you by answering some questions on the study website

Read more about this study in the information sheet:
Information sheet for participants (PDF, 391KB)

If you’re interested in taking part contact:

Dundee
Adele Maxwell, Ninewells Hospital
01738 414535  [email protected]

Essex
Lean Lee, North Essex Partnership University NHS Foundation
01279 827894  [email protected]

London
Kavya Devaraju, Guy’s and St Thomas’ NHS Foundation Trust
020 7848 8185  [email protected]
Sarah Gregory, West London Mental Health NHS Trust
020 8483 1833  [email protected]

Manchester
Rebecca Davies, North Manchester General Hospital
0161 276 3324 [email protected]

Newcastle
Dr. Barbara Wilson, Newcastle University 
0191 208 1337  [email protected]

Southampton
Suzanne Dodge, Moorgreen Hospital  
02380 475206  [email protected]

Exploring anxiety in Parkinson's (London)

This Parkinson's UK-funded project aims to understand factors that may influence anxiety and worry in Parkinson's and use this information to identify new approaches for treatment. 

  • What: A session lasting approximately 2 hours. You will need to visit the study site and complete questionnaires and some computer-based tasks.
  • Where: London
  • Who: 104 people with Parkinson's based in London or surrounding areas

Read more about this study in the information sheet:
Exploring anxiety in Parkinson's- participant information sheet (PDF, 236KB)

If you're interested in taking part contact:
Lonneke van Tuijl
0207 848 0365
[email protected]

Investigating a new treatment for Parkinson's (England)

Research suggests that iron can build up in the brains of people with Parkinson's. The SKY study is looking at whether a drug, that can help to remove iron from the body, could improve symptoms or even slow the progression of Parkinson's.

  • What: You will be asked to take either the drug or a placebo twice a day for a period of nine months. You'll need to make nine monthly visits to the trial site lasting approximately 3-4 hours as well as weekly visits for blood testing.
  • Where: Bury, Exeter, Newcastle and Plymouth
  • Who: People with Parkinson's who were diagnosed within the last three years and have been on stable medication for at least three months.

If you're interested in taking part contact:

Bury
The Research Team, Fairfield General Hospital
0161 778 3879 [email protected]

Exeter
Rob James, Royal Devon and Exeter NHS Foundation Trust
01392 408145  [email protected]

Newcastle
Ann McNichol, Newcastle University
0191 2081250 [email protected]

Plymouth
Sandra Morgan, Plymouth Hospitals NHS Trust
01752 431807 [email protected]

London

Emmima Angelina Manoharan, Charing Cross Hospital

020 3311 1714 [email protected]

 

Investigating the role of inflammation in Parkinson's (London)

Researchers at King's College London wants to understand how inflammation - one of the body’s natural defences - could be involved in Parkinson's. This study will test a new imaging technique that could be used to look at inflammation in the brain.

  • What: 2 hospital visits involving assessments, providing a blood sample and brain scans.
  • Where: London Who: People with Parkinson's who were diagnosed less than two years ago and are not currenly taking levodopa or were diagnosed over eight years ago and are on stable medication.
  • Deadline: July 2019 Read more about this study in the information sheet Participant Information Sheet (PDF, 276KB)

If you're interested in taking part contact:
Dr George Dervenoulas, King's College London
07931509277 
[email protected]

Steady together: A guide to help people with Parkinson’s who fall (South England)

Charlotte Owen at the University of Southampton wants to design a guide to help people with Parkinson's who fall and those close to them. 

  • What: Two questionnaires, taking no longer than 30 minutes to complete, asking about your experiences of falling. Some participants will be invited to take part in an interview at home, lasting no more than one hour.
  • Where: Hampshire, Isle of Wight, Wilshire, Dorset, Berkshire, West Sussex and Surrey
  • Who: 30-40 people with Parkinson’s who are living in their own home and have had at least one fall in the past year. We are also interested in the experiences of close friends and relatives of people with Parkinson’s.
  • Deadline: August 2017

Read more about the study in the information sheet:
Download the participant information sheet (PDF, 186KB) to find out more.

If you're interested in taking part contact:
Charlotte Owen
[email protected] 
07824 895791

Cognitive Stimulation Therapy (CST) and people with Parkinson’s-related dementia (North East London)

Jacki Stansfeld at the North East London NHS Foundation Trust would like people with a Parkinson's-related dementia and their partner/caregiver to help her understand if tailored, one-to-one sessions of Cognitive Stimulation Therapy (CTS) can help with memory and movement problems. 

  • What: A trained professional will visit your home to deliver CST training to your partner/caregiver. Your caregiver will then deliver the therapy at home over a period of 10 weeks, with regular phone support from the CST professional. You will be asked to complete research questionnaires on your experiences of the therapy.

  • Where: North East London NHS Boroughs of Redbridge, Havering, Waltham Forest or Barking and Dagenham

  • Who: 20 people diagnosed with either Parkinson’s with Mild Cognitive Impairment, Parkinson’s Disease Dementia or Lewy Body Dementia, and their partner/carer.

  • Deadline: 31 August, 2017

If you're interested in taking part contact:
Jacki Stansfeld
[email protected] 
0300 555 1200 ext: 64479

ImPROve: Improving Parkinson’s Related Overactive Bladder (North East England)

Research suggests that a combination of exercises and relaxation techniques, known as bladder training, may help people to control their bladder and reduce urinary incontinence. Around 7 in 10 people with Parkinson’s experience urinary problems or incontinence - this study will test a new bladder control programme designed specifically for people with Parkinson's.  

  • What: Complete an online survey which should take no longer than 30 minutes. The questionnaire is also available in paper form and can be requested from Dr Young and the team. 

  • Where: UK wide

  • Who: 300 people with Parkinson’s who are able to walk, or attempt to walk on a daily basis, and 300 people without Parkinson’s as a comparison to the above sample.

  • Deadline: 1 November, 2017

Read more about the study in the information sheet:
Download the participant information sheet (PDF, 244KB) to find out more.

If you're interested in taking part contact:
Claire McDonald
[email protected] 
0191 208 1295

Understanding the relationship between anxiety, attention and walking ability (UK-wide)

Dr Will Young at Brunel University London wants to understand how anxiety may affect attention and walking in people with and without Parkinson’s. The aim of the research is to understand if psychological factors are linked to increased movement difficulties.

  • What: Three visits to the research centre over 20 weeks. You will be randomised either into the treatment group or the control group and each visit will include a range of questionnaires and assessments.

  • Where: North East England

  • Who: 72 people diagnosed with Parkinson’s who have troublesome bladder symptoms.

  • Deadline: 13 September, 2017

Read more about the study in the information sheet:
Download the participant information sheet (PDF, 150KB) to find out more.

If you're interested in taking part:
Complete the online survey here.

Or request a paper version from Dr Young by email ([email protected]k).

Brain training for Parkinson's (South England)

Aileen Ho at the University of Reading wants to understand if thinking performance may be improved by playing a training programme in the form of a computer game.

  • What: Attending 2 face to face visits at Reading University (lasting approximately 2 hours each). At each visit you will complete questionnaires and thinking tasks and have an MRI where you will need to lie still for up to 45 minutes. You will also be asked to take home an electronic game device and play two 30 minute sessions, 5 days a week for a month.

  • Where: South England

  • Who: 36 people diagnosed with Parkinson’s who currently don’t play many electronic or computer games but are happy to do so.

  • Deadline: 30 September, 2017

Read more about the study in the information sheet:
Download the participant information sheet (PDF, 88KB) to find out more.

If you're interested in taking part contact:
Aileen Ho
[email protected] 
0118 378 8523

Factors that may improve or worsen reaction times and memory in Parkinson's (London)

A research team based at the Institute of Neurology and the National Hospital for Neurology & Neurosurgery in London are studying how Parkinson's alters reaction times and memory.

  • What: A 1.5 hour test session involving completing questionnaires and reaction time tasks. Travel expenses will be reimbursed.

  • Where: The Institute of Neurology, University College London.

  • Who: 15 people with Parkinson’s and 30 health controls.

  • Deadline: August, 2017

Read more about the study in the information sheet:
Download the patient information sheet (PDF, 195KB) to find out more.

If you're interested in taking part contact:
Jessica Maxwell
[email protected]
07807582074

Understanding the loss of brain cells in Parkinson's through PET scans (London & South East England)

Dr Gennaro Pagano at Kings College, London wants to try to understand the mechanism behind the loss of brain cells in Parkinson’s through PET brain scans. PET scans are powerful and safe brain scans and allow researchers to witness very small chemical changes taking place in the brain.

  • What: 3 visits to Kings College: one involving consent, clinical assessments and blood tests (3 hours) and the following two will consist of the scans (each scan will take approx 1.5 hours)

  • Where: Kings College, London

  • Who: 6 people who were diagnosed with Parkinson’s in the last 2 years, who are not taking Parkinson’s medication and who are between 40-80 years of age.

  • Deadline: September 2020

Read more about the study in the information sheet:

Download the participant information sheet (PDF 333KB) to find out more.

If you're interested in taking part contact:
Dr Gennaro Pagano
[email protected] 
07949805013

Understanding the experience of male carers (Northern Ireland)

Anne Fee, at the University of Ulster, wants to explore if there is appropriate support for male carers in the community.

  • What: A one hour interview exploring your experiences as a care giver. 

  • Where: Your home or your local centre. 

  • Who: 20 male carers who look after a spouse or partner with a long term condition at home.

  • Deadline: November 2017

Read more about the study in the information sheet:
Download the participant information sheet (PDF 269KB) to find out more.

If you're interested in taking part contact:
Anne Fee
[email protected] 
07907579875

Investigating falls in people with Parkinson's (Worldwide)

Dale Harris, at Deakin University in Melbourne, wants to better understand how, where and why falls happen. The information will be used to develop rehabilitation care to help falls prevention. 

  • What: A one-off online questionnaire that should take 20-30 minutes to complete. 

  • Who: 500 people with Parkinson's who have experienced a fall in the past year. A family member or carer may help you complete the questionnaire. 

  • Deadline: April 2018

To complete the questionnaire, or for more information: 
Go to the online questionnaire  

If you have any problems accessing the questionnaire contact:
Dale Harris
[email protected]

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