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Take part in Parkinson's research - list of UK studies

Clinical research simply means any study that involves people taking part.

Research does not always involve taking pills and going to hospitals. Much of the research I have been involved in was done at home!

John Whipps, who has Parkinson's

Clinical research normally makes people think of drug research and trials that test new treatments.

But many clinical research studies focus on helping us understand the condition better.

Clinical research can only happen because of the goodwill of people taking part-without people like you, progress in Parkinson’s research would be impossible.

UK research studies that need participants

Our list highlights Parkinson's research projects in the UK that are looking for participants.

Anyone who is considering taking part in research should speak to the professionals managing the project for more in-depth information.

Our list is provided for information only. It should not be treated as advice or a recommendation to participate in any of the studies.

PDSAFE: can physiotherapy prevent falls?

PDSAFE is a personalised physiotherapy programme which aims to help with balance and movement. The purpose of this trial is to see if PDSAFE can help people with Parkinson's to fall less often and to assess whether it is cost-effective.

  • What: Participants will either receive PDSAFE personalised physiotherapy or remain on their usual care. All participants will have regular assessments and be asked to keep a diary of any falls they have.
     
  • Where: Newcastle, Hampshire, Plymouth and Cornwall
     
  • Who: 600 people with Parkinson's, living at home who have fallen at least once in the last year
     
  • Deadline: 31st August 2016
     
  • Funded by: National Institute for Health Research Health Technology Assessment Programme

Read more about the study in the information sheet:
PDSAFE to prevent falls among people with Parkinson's - patient information sheet (PDF, 239KB)

If you're interested in taking part, please contact
Dr Kim Seymour, University of Southampton
023 8120 4943
[email protected]

Developing ways to measure pain in Parkinson's

This study aims to develop and test the first ever pain scale specific to Parkinson's.


  • What: Participants will be asked to complete a number of scales already in use as well as the PD pain scale with a doctor or nurse.
     
  • Where: London, Edinburgh, Sidcup, Bromley, Macclesfield, Salford and Plymouth
     
  • Who: People with Parkinson's who experience pain which is unrelated to other conditions
     
  • Deadline: December 2023
     
  • Funded by: Parkinson's UK

Read more about the study in the information sheet:
PD pain scale - patient information sheet (PDF, 65KB)

If you're interested in taking part, please contact
Ms Alex Rizos, King's College Hospital, London
0203 299 7153
[email protected]

Non-motor symptoms in early Parkinson's

This international study is investigating when symptoms such as sleep problems, fatigue, pain and depression occur during Parkinson's, how they develop and how they respond to treatments.

  • What: Participants will be asked to complete questionnaires about a wide range of symptoms and their quality of life at 6 month intervals.
     
  • Where: London, Kent, Norwich, Yeovil, Harrogate, Lincoln, Macclesfield and Grantham
     
  • Who: 1,000 people diagnosed with Parkinson's for 5 years or less
     
  • Deadline: Ongoing
     
  • Funded by: Parkinson's Disease Non-Motor Group

Read more about the study in the information sheet:
Non-motor symptoms in early Parkinson's - study information sheet (PDF, 80KB)

If you're interested in taking part, please contact
Ms Alex Rizos, King's College Hospital, London
0203 299 7153
[email protected]

Parkinson's Families Project

The researchers are studying people with early onset and familial Parkinson's and related affected and unaffected family members to understand more about the symptoms and genetics of the condition.

  • Where: UK-wide
     
  • Who: 1000 families with Parkinson’s (either early onset before the age of 45 or familial)
     
  • Deadline: Ongoing
     
  • Funded by: Parkinson's UK and the Medical Research Council

Read more about the study here: 

Parkinson's Families Project- participant information sheet (PDF,322KB)

If you're interested in taking part, please contact
Ms Manuela Tan, UCL Institute of Neurology, Royal Free Hospital
020 7794 0500 ext. 37032
[email protected]

Investigating changes in thinking in Parkinson's

This project will investigate mental processing in Parkinson's. The researchers will study how people with Parkinson's choose the right thing to do at the right time compared to people without the condition.


  • What: Participants will be asked to do a range of tasks and undergo brain scans.
     
  • Where: Eastern England
     
  • Who: 40 people with Parkinson's and 40 people without any neurological condition
     
  • Deadline: December 2017
     
  • Funded by: The Wellcome Trust

Read more about the study here:
Understanding cognition and action in Parkinson's

If you're interested in taking part, please contact
Dr James Rowe, University of Cambridge
01223 273630
[email protected]

Parkinson's Progressive Markers Initiative

The Parkinson's Progression Markers Initiative (PPMI) aims to identify risk factors for Parkinson's and ultimately lead to the development of tests that can be used to accurately diagnose and monitor the condition.


  • What: Participants will undergo a comprehensive series of assessments including brain scans; collection of blood, cerebral spinal fluid, and urine samples; as well as cognitive and motor evaluations.
     
  • Where: London
     
  • Who: People who are of Eastern European (Ashkenazi) Jewish descent with Parkinson's (of any age) and without Parkinson's (over the age of 50 and related to someone who has Parkinson's)
     
  • Deadline: Ongoing
     
  • Funded by: Michael J Fox Foundation

Read more about the study here:
Parkinson's Progression Markers Initiative

If you're interested in taking part, please contact
Bina Shah, Charing Cross Hospital
020 3311 1714
[email protected]

Representing action in Parkinson's

The research team are interested in how people with Parkinson's respond to different objects and movements in their environment and how well they can communicate.


  • What: Participants will be asked to watch some video clips and look at pictures while the team measures your reaction times, eye and hand movements.
     
  • Where: Greater Manchester
     
  • Who: 25 people with Parkinson's and 25 people without Parkinson's, all aged 50-75
     
  • Deadline: December 2016
     
  • Funded by: The University of Manchester

Read more about the study in the information sheet:
Representing action - study leaflet (people with Parkinson's) (PDF, 185KB)
Representing action - study leaflet (people without Parkinson's) (PDF, 143KB)
Representing action - participant information leaflet (PDF, 151KB)

If you're interested in taking part, please contact
Ellen Poliakoff, University of Manchester
0161 275 7333
[email protected]

Examining eye movements in people with Parkinson's

In this study, the research team will explore whether eye movement responses to different stimuli are affected in people with Parkinson's.


  • What: Participants will be asked to undergo tests of their eye movement responses to different stimuli.
     
  • Where: Oxford
     
  • Who: 400 people diagnosed with Parkinson's for 5 years or less and 200 people who do not have Parkinson's (or any other neurodegenerative condition)
     
  • Deadline: December 2016
     
  • Funded by: The Wellcome Trust


If you're interested in taking part, please contact
Dr Chrystalina Antoniades, John Radcliffe Hospital, Oxford University
01865 234728
[email protected]

Vision and sense of smell in Parkinson's

This study aims to explore the relationship between vision and sense of smell in people with Parkinson's.


  • What: Participants will take part in sight and smell tests and share details of their Parkinson's through questionnaires.
     
  • Where: Bournemouth, Poole, Christchurch and surrounding areas
     
  • Who: People with Parkinson's
     
  • Deadline: Ongoing
     
  • Funded by: NA

Read more about the study in the information sheet:
Visual perception and sense of smell - patient information sheet (Word, 228KB)

If you're interested in taking part, please contact
Professor Ahmed Khattab, Bournemouth University
01202 967281
[email protected]

Developing the best care possible for Parkinson’s

This study aims to see if specialist care can improve the control of symptoms and provide support for people with Parkinson’s and those close to them.

 

  • What: Questionnaires and short-term palliative care lasting up to 24 weeks
     
  • Where: Brighton, Cardiff, South London, Liverpool and Nottingham. Participants must live within the catchment areas of trial sites. You can find more information on catchment areas here: http://bit.ly/1RoQu4m
     
  • Who: People with Parkinson’s who are not currently receiving palliative care
     
  • Deadline: 31st December 2016
     
  • Funded by: NIHR Health Services & Delivery Research Programme

Read more about the study in the information sheet:

OPTCARE Participant Information Sheet (PDF,379KB)

 

If you're interested in taking part, please contact
Debbie Tonkin, King's College London
0207 848 5578
[email protected]

Learning new movements with Parkinson’s

This study aims to understand how people with Parkinson’s learn new movements. The researchers will investigate the ability for people with Parkinson’s to remember new movements.

 

  • What:  The study will involve up to 3 sessions, lasting no more than 90 minutes each. Participants will be asked to perform simple tasks that involve hand, arm and eye movements during these sessions.
     
  • Where: Birmingham or the West Midlands.
     
  • Who: People with and without Parkinson’s
     
  • Deadline: 31st September 2018
     
  • Funded by: Parkinson’s UK

Read more about the study in the information sheet:

Motor Control- Participant Information Sheet (PDF,234KB)

 

If you’re interested in taking part, please contact:

Sarah Voets, University of Birmingham
07823615520
[email protected]

Hallucinations in people with Parkinson’s

This study aims to improve our understanding of visual hallucinations in people with Parkinson’s.

 

  • What: Participants will be invited to take part in face-to-face and follow-up over the phone assessments
     
  • Where: London, Cambridge or Newcastle
     
  • Who: People with Parkinson’s with and without experience of hallucinations
     
  • Deadline: 31st December 2016
     
  • Funded by: National Institute for Health Research (NIHR)

Read more about the study in the information sheet:

Shaped- Participant Information Sheet (PDF,332KB)

 

If you’re interested in taking part, please contact:

London- Dr Rebecca Pinto, Kings College London 
0207 848 0297 
[email protected]

Cambridge- Kate Harris, University of Cambridge 
01223 331141 
[email protected]

Newcastle- Kirsty Olsen, University of Newcastle 
0191 208 1344 
[email protected]

100 for Parkinson's

This research study aims to find out if daily health tracking via a smartphone and/or tablet can improve the quality of people’s lives.

 

  • What: Participants will be asked to use a new mobile application (app) for a period of 100 days
     
  • Where: UK-wide
     
  • Who: People with and without Parkinson's who have access to a smartphone and/or tablet on a daily basis
     
  • Deadline: November 2016
     
  • Funded by: UMotif Ltd and its partners
     

Read more about the study in the information sheet:

100forParkinson's Information Sheet (PDF,455KB)

If you’re interested in taking part, please visit the UMotif website www.100forparkinsons.com 

Recognising emotions with Parkinson's

This research study, led by a team at Newcastle University, is investigating how easy it is for people with Parkinson’s to recognise different emotions.

 

  • What: Participants will be asked to make several visits to the university lasting between 2-4 hours. Sessions will involve looking at a series of photographs on a computer screen.
     
  • Where: Newcastle upon Tyne and surrounding areas
     
  • Who: People with and without Parkinson's who are over 50 and are not blind or sight impaired
     
  • Deadline: 1st December 2016
     
  • Funded by: National Institute of Health Research (NIHR)
     

Read more about the study in the information sheet:

SPiEs Participant Information Sheet (PDF,1.74MB)

If you’re interested in taking part, please contact:
Dr Joanna Wincenciak, Newcastle University
0191 208 1289 
[email protected]

A therapy for Parkinson's-associated dementias

This research study, led by a team at the University of Manchester, aims to understand if a talking and activity-based therapy can benefit people with Parkinson’s-associated dementias.

 

  • What: Participants will be invited to take part in 2-3 therapy sessions per week for a period of 10 weeks.
     
  • Where: Greater Manchester
     
  • Who: People with Parkinson's who have been diagnosed with Parkinson’s dementia or Dementia with Lewy bodies and their carers
     
  • Deadline: June 2017
     
  • Funded by: National Institute of Health Research (NIHR)
     

Read more about the study in the information sheet:

Information Sheet for Person with Parkinson's (PDF,448KB)

Information Sheet for Carers (PDF,448KB)

If you’re interested in taking part, please contact:
Sheree McCormick, University of Manchester
0161 3067494 
[email protected]

The Oxford Participation & Activities Questionnaire (Ox-PAQ)

The researchers want to understand how health can affect the way people take part in everyday activities.

 

  • What: An online survey to be completed twice, now and in 6 months’ time
     
  • Where: UK-wide
     
  • Who: People with Parkinson’s who are English-speaking and have access to the internet
     
  • Deadline: November 2016
     
  • Funded by: The European Brain Council and Actelion Pharmaceuticals
     

Read more about the study in the information sheet:

OxPaq Survey Information Sheet (PDF,178 KB)

If you’re interested in taking part, please contact:
Mrs Sarah Dummett, University of Oxford
[email protected]

Investigating pain in Parkinson’s

This project aims to understand pain responses in people with and without Parkinson’s.

  • What: One visit lasting 3-4 hours.
     
  • Where: Manchester
     
  • Who: People without Parkinson’s aged between 55 and 85. Participants must not suffer from chronic pain or have been diagnosed with a neurological condition.
     
  • Deadline: September 2016
     
  • Funded by: Parkinson’s UK
     

Read more about the study in the information sheet:

Pain in Parkinson's Information Sheet (PDF,231 KB)

If you’re interested in taking part, please contact:
Sarah Martin, University of Manchester
0161 2064529
[email protected]

STEPS: Can electrical stimulation devices improve walking in Parkinson's?

This research is investigating whether electrical stimulation devices can be used to improve walking in people with Parkinson's.

  • What: 4 assessment sessions lasting around 90 minutes each
     
  • Where: London and Salisbury
     
  • Who: People with Parkinson’s who have difficulty with aspects of their walking but are able to walk 10 metres without the assistance of another person. Participants must not have cardiac pacemakers or other active implanted medical devices and should not have other medical conditions that affect walking or the lower leg area.
     
  • Deadline: September 2017
     
  • Funded by: National Institute of Health Research (NIHR)

Read more about the study in the information sheet:

STEPS Information Sheet for participants based in London (PDF,586KB)

STEPS Information Sheet for participants based in Salisbury (PDF,396KB)

If you’re interested in taking part, please contact:

Paul Taylor, Salisbury District Hospital
01722 429119
[email protected]

UCL BioResource

This research aims to create a pool of volunteers with and without health conditions who can be contacted about taking part in research.

  • What: Short questionnaire and blood sample
     
  • Where: London
     
  • Who: People who are over five years old and live within the catchment area of either the UCLH or Royal Free Hospital in London
     
  • Deadline: March 2017
     
  • Funded by: National Institute of Health Research (NIHR)

Read more about the study in the information sheet:

The UCL BioResource- volunteer information sheet (PDF, 74KB)

If you’re interested in taking part, please contact:

Rema Khanom, University College London
020 3447 5369
[email protected]

The 100,000 Genomes Project

The 100,000 Genomes Project aims to transform NHS healthcare by integrating genomic medicine in the diagnosis and treatment of health conditions. The researchers are studying people with early onset and familial Parkinson's and related affected and unaffected family members to understand more about the condition and help develop new tests and treatments.

  • Where: England
     
  • Who: 1000 people with Parkinson’s (either early onset before the age of 45 or familial)
     
  • Deadline: December 2017
     
  • Funded by: Department of Health- Genomics England

Read more about the study in the information sheet:

Information Sheet for adults with genetic conditions (PDF, 737KB)

Information Sheet for family members (PDF, 737KB)

If you’re interested in taking part, please contact:

Katrin Hoffmann, University College London
07557 238 796
[email protected]

Investigating symptoms and side effects of Parkinson’s medication

The research team want to understand the links between Parkinson’s medication, symptoms and side effects. They are particularly interested in looking at changes in behaviour, memory and thinking.

  • What: An online survey
     
  • Where: UK-wide and overseas
     
  • Who: 100 people with Parkinson’s
     
  • Deadline: October 2016
     

If you’re interested in taking part, please contact:

Raluca-Mihaela Șișu, University of Medicine and Pharmacy of Craiova
[email protected]

Caring for Me and You: A toolkit for carers of people with dementia

This research aims to understand if an online programme of Cognitive Behaviour Therapy (CBT) can improve mood and reduce stress for carers of people with dementia.

  • What: 20 online sessions lasting around 20 minutes each. You will have up to 26 weeks to complete these sessions.
     
  • Where: UK-wide
     
  • Who: 750 people who have experience of caring for a person with dementia and are experiencing mild of moderate symptoms of anxiety or depression
     
  • Deadline: September 2016

Read more about the study in the information sheet:

Caring for Me and You- Participant Information sheet (PDF,232KB)

If you’re interested in taking part visit the study website

For more information please contact:

Jo-Ann Fowler, Oxford Health NHS Foundation Trust

0777 5578327

[email protected]

Other ways to get involved in research

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