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Take part in Parkinson's research - list of UK studies

Clinical research simply means any study that involves people taking part.

Research does not always involve taking pills and going to hospitals. Much of the research I have been involved in was done at home!

John Whipps, who has Parkinson's

Clinical research normally makes people think of drug research and trials that test new treatments.

But many clinical research studies focus on helping us understand the condition better.

Clinical research can only happen because of the goodwill of people taking part-without people like you, progress in Parkinson’s research would be impossible.

UK research studies that need participants

Our list highlights Parkinson's research projects in the UK that are looking for participants.

Anyone who is considering taking part in research should speak to the professionals managing the project for more in-depth information.

Our list is provided for information only. It should not be treated as advice or a recommendation to participate in any of the studies.

Developing ways to measure pain in Parkinson's (UK-wide)

This study aims to develop and test the first ever pain scale specific to Parkinson's.


  • What: Participants will be asked to complete a number of scales already in use as well as the PD pain scale with a doctor or nurse.
     
  • Where: London, Edinburgh, Sidcup, Bromley, Macclesfield, Salford and Plymouth
     
  • Who: People with Parkinson's who experience pain which is unrelated to other conditions
     
  • Deadline: December 2023
     
  • Funded by: Parkinson's UK

Read more about the study in the information sheet:
PD pain scale - patient information sheet (PDF, 65KB)

If you're interested in taking part, please contact
Ms Alex Rizos, King's College Hospital, London
0203 299 7153
[email protected]

Non-motor symptoms in early Parkinson's (England)

This international study is investigating when symptoms such as sleep problems, fatigue, pain and depression occur during Parkinson's, how they develop and how they respond to treatments.

  • What: Participants will be asked to complete questionnaires about a wide range of symptoms and their quality of life at 6 month intervals.
     
  • Where: London, Kent, Norwich, Yeovil, Harrogate, Lincoln, Macclesfield and Grantham
     
  • Who: 1,000 people diagnosed with Parkinson's for 5 years or less
     
  • Deadline: Ongoing
     
  • Funded by: Parkinson's Disease Non-Motor Group

Read more about the study in the information sheet:
Non-motor symptoms in early Parkinson's - study information sheet (PDF, 80KB)

If you're interested in taking part, please contact
Ms Alex Rizos, King's College Hospital, London
0203 299 7153
[email protected]

Parkinson's Families Project (UK-wide)

The researchers are studying people with early onset and familial Parkinson's and related affected and unaffected family members to understand more about the symptoms and genetics of the condition.

  • Where: UK-wide
     
  • Who: 1000 families with Parkinson’s (either early onset before the age of 45 or familial)
     
  • Deadline: Ongoing
     
  • Funded by: Parkinson's UK and the Medical Research Council

Read more about the study here: 

Parkinson's Families Project- participant information sheet (PDF,322KB)

If you're interested in taking part, please contact
Ms Manuela Tan, UCL Institute of Neurology, Royal Free Hospital
020 7794 0500 ext. 37032
[email protected]

Investigating changes in thinking in Parkinson's (England)

This project will investigate mental processing in Parkinson's. The researchers will study how people with Parkinson's choose the right thing to do at the right time compared to people without the condition.


  • What: Participants will be asked to do a range of tasks and undergo brain scans.
     
  • Where: Eastern England
     
  • Who: 40 people with Parkinson's and 40 people without any neurological condition
     
  • Deadline: December 2017
     
  • Funded by: The Wellcome Trust

Read more about the study here:
Understanding cognition and action in Parkinson's

If you're interested in taking part, please contact
Dr James Rowe, University of Cambridge
01223 273630
[email protected]

Parkinson's Progressive Markers Initiative (London)

The Parkinson's Progression Markers Initiative (PPMI) aims to identify biomarkers for Parkinson's that could be used to diagnose and monitor the condition.

  • What: Participants will undergo a comprehensive series of assessments including brain scans; collection of blood, cerebral spinal fluid, and urine samples; as well as cognitive and motor evaluations.
     
  • Where: London
     
  • Who: People with or without Parkinson's who have a family history of Parkinson's, or are from Eastern European (Ashkenazi) or Basque background, or already have a known genetic mutation for Parkinson's.  
     
  • Deadline: January 2018
     
  • Funded by: Michael J Fox Foundation

Read more about the study here:
Parkinson's Progression Markers Initiative

If you're interested in taking part, please contact
Laura Payne, Charing Cross Hospital
020 3311 1714
[email protected]

Representing action in Parkinson's (Manchester)

The research team are interested in how people with Parkinson's respond to different objects and movements in their environment and how well they can communicate.


  • What: Participants will be asked to watch some video clips and look at pictures while the team measures your reaction times, eye and hand movements.
     
  • Where: Greater Manchester
     
  • Who: 25 people with Parkinson's and 25 people without Parkinson's, all aged 50-75
     
  • Deadline: June 2017
     
  • Funded by: The University of Manchester

Read more about the study in the information sheet:
Representing action - study leaflet (people with Parkinson's) (PDF, 185KB)
Representing action - study leaflet (people without Parkinson's) (PDF, 143KB)
Representing action - participant information leaflet (PDF, 151KB)

If you're interested in taking part, please contact
Ellen Poliakoff, University of Manchester
0161 275 7333
[email protected]

Vision and sense of smell in Parkinson's (South West England)

This study aims to explore the relationship between vision and sense of smell in people with Parkinson's.


  • What: Participants will take part in sight and smell tests and share details of their Parkinson's through questionnaires.
     
  • Where: Bournemouth, Poole, Christchurch and surrounding areas
     
  • Who: People with Parkinson's
     
  • Deadline: Ongoing
     
  • Funded by: NA

Read more about the study in the information sheet:
Visual perception and sense of smell - patient information sheet (Word, 228KB)

If you're interested in taking part, please contact
Professor Ahmed Khattab, Bournemouth University
01202 967281
[email protected]

Developing the best care possible for Parkinson’s (UK-wide)

This study aims to see if specialist palliative care can improve the control of symptoms and provide support for people with Parkinson’s and those close to them.

 

  • What: You'll need to complete questionnaires during five home visits over 24 weeks. Participants will also receive short-term palliative care.
     
  • Where: Brighton, Cardiff, South London, Liverpool and Nottingham, Chertsey and Sheffield. Participants must live within the catchment areas of trial sites. You can find more information on catchment areas here.
     
  • Who: People with Parkinson’s who are not currently receiving palliative care
     
  • Deadline: June 2017

Read more about the study in the information sheet:

OPTCARE Participant Information Sheet (PDF,378KB)

If you're interested in taking part, please contact
Zaynah Sheikh, King's College London
0207 848 5578
[email protected]

Learning new movements with Parkinson’s (West Midlands)

This study aims to understand how people with Parkinson’s learn new movements. The researchers will investigate the ability for people with Parkinson’s to remember new movements.

 

  • What:  The study will involve up to 3 sessions, lasting no more than 90 minutes each. Participants will be asked to perform simple tasks that involve hand, arm and eye movements during these sessions.
     
  • Where: Birmingham or the West Midlands.
     
  • Who: People with and without Parkinson’s
     
  • Deadline: 31st September 2018
     
  • Funded by: Parkinson’s UK

Read more about the study in the information sheet:

Motor Control- Participant Information Sheet (PDF,234KB)

 

If you’re interested in taking part, please contact:

Sarah Voets, University of Birmingham
07823615520
[email protected]

Hallucinations in people with Parkinson’s (England)

This study aims to improve our understanding of visual hallucinations in people with Parkinson’s.

 

  • What: You’ll be invited to take part in an eye examination as well as 3 face-to-face and 4 follow-up over the phone assessments over a period of 91 weeks.
     
  • Where: London, Cambridge or Newcastle
     
  • Who: People with Parkinson’s who are over 60 and have also been diagnosed with dementia. The research team will ask you to choose someone who knows you well- such as a partner, carer or friend- to also take part as a study partner. 
     
  • Deadline: February 2018
     
  • Funded by: National Institute for Health Research (NIHR)

Read more about the study in the information sheet:

Shaped- Participant Information Sheet (PDF,332KB)

Shaped- Study Partner Information Sheet (PDF, 329KB)

 

If you’re interested in taking part, please contact:

Dr Rebecca Pinto, Kings College London 
0207 848 0297 
[email protected]

A therapy for Parkinson's-associated dementias (England)

This research study, led by a team at the University of Manchester, aims to understand if a talking and activity-based therapy can benefit people with Parkinson’s-associated dementias.

 

  • What: Participants will be invited to take part in 2-3 therapy sessions per week for a period of 10 weeks.
     
  • Where: Derby, Manchester or London
     
  • Who: People with Parkinson's who have been diagnosed with Parkinson’s dementia or Dementia with Lewy bodies and their carers
     
  • Deadline: June 2017
     
  • Funded by: National Institute of Health Research (NIHR)
     

Read more about the study in the information sheet:

Information Sheet for Person with Parkinson's (PDF,448KB)

Information Sheet for Carers (PDF,448KB)

If you’re interested in taking part, please contact:
Sheree McCormick, University of Manchester
0161 3067494 
[email protected]

Investigating pain in Parkinson’s (Manchester)

This project aims to understand pain responses in people with and without Parkinson’s.

  • What: One visit lasting 3-4 hours.
     
  • Where: Manchester
     
  • Who: People without Parkinson’s aged between 55 and 85. Participants must not suffer from chronic pain or have been diagnosed with a neurological condition.
     
  • Deadline: January 2016
     
  • Funded by: Parkinson’s UK
     

Read more about the study in the information sheet:

Pain in Parkinson's Information Sheet (PDF,231 KB)

If you’re interested in taking part, please contact:
Sarah Martin, University of Manchester
0161 2064529
[email protected]

STEPS: Can electrical stimulation improve walking in Parkinson's? (England)

This research is investigating whether electrical stimulation devices can be used to improve walking in people with Parkinson's.

  • What: 4 assessment sessions lasting around 90 minutes each
     
  • Where: London and Salisbury
     
  • Who: People with Parkinson’s who have difficulty with aspects of their walking but are able to walk 10 metres without the assistance of another person. Participants must not have cardiac pacemakers or other active implanted medical devices and should not have other medical conditions that affect walking or the lower leg area.
     
  • Deadline: September 2017
     
  • Funded by: National Institute of Health Research (NIHR)

Read more about the study in the information sheet:

STEPS Information Sheet for participants based in London (PDF,586KB)

STEPS Information Sheet for participants based in Salisbury (PDF,396KB)

If you’re interested in taking part, please contact:

Paul Taylor, Salisbury District Hospital
01722 429119
[email protected]

UCL BioResource (London)

This research aims to create a pool of volunteers with and without health conditions who can be contacted about taking part in research.

  • What: Short questionnaire and blood sample
     
  • Where: London
     
  • Who: People who are over five years old and live within the catchment area of either the UCLH or Royal Free Hospital in London
     
  • Deadline: March 2017
     
  • Funded by: National Institute of Health Research (NIHR)

Read more about the study in the information sheet:

The UCL BioResource- volunteer information sheet (PDF, 74KB)

If you’re interested in taking part, please contact:

Lucy Woolven, University College London
020 3447 5369
[email protected]

The 100,000 Genomes Project (England)

The 100,000 Genomes Project aims to transform NHS healthcare by integrating genomic medicine in the diagnosis and treatment of health conditions. The researchers are studying people with early onset and familial Parkinson's and related affected and unaffected family members to understand more about the condition and help develop new tests and treatments.

  • Where: England
     
  • Who: 1000 people with Parkinson’s (either early onset before the age of 45 or familial)
     
  • Deadline: December 2017
     
  • Funded by: Department of Health- Genomics England

Read more about the study in the information sheet:

Information Sheet for adults with genetic conditions (PDF, 737KB)

Information Sheet for family members (PDF, 737KB)

If you’re interested in taking part, please contact:

Katrin Hoffmann, University College London
07557 238 796
[email protected]

A toolkit for carers of people with dementia (UK-wide)

This research aims to understand if an online programme of Cognitive Behaviour Therapy (CBT) can improve mood and reduce stress for carers of people with dementia.

  • What: 20 online sessions lasting around 20 minutes each. You will have up to 26 weeks to complete these sessions.
     
  • Where: UK-wide
     
  • Who: 750 people who have experience of caring for a person with dementia and are experiencing mild of moderate symptoms of anxiety or depression
     
  • Deadline: January 2017

Read more about the study in the information sheet:

Caring for Me and You- Participant Information sheet (PDF,232KB)

If you’re interested in taking part visit the study website

For more information please contact:

Jo-Ann Fowler, Oxford Health NHS Foundation Trust

0777 5578327

[email protected]

Investigating early signs of Parkinson’s (England)

This study aims to identify potential early indicators of Parkinson’s in people with REM Sleep Behaviour Disorder.

  • What: Assessments or interviews every 18 months for a period of 5 years.
     
  • Where: Thames Valley, Cambridge or Sheffield
     
  • Who: 300 people who are over 18 and have been diagnosed with REM Sleep Behaviour Disorder. The researchers are also looking for people without REM Sleep Behaviour Disorder to take part.
     
  • Deadline: Ongoing

Read more about the study in the information sheet: 

Information sheet for people with REM Sleep Behaviour Disorder (PDF,181KB)

Information sheet for people without REM Sleep Behaviour Disorder (PDF, 227KB)

If you’re interested in taking part visit the study website

For more information please contact:

Oxford Parkinson's Disease Centre

01865 223166

[email protected]

PD STAT: Statins as a treatment for Parkinson’s (UK-wide)

The team want to understand if Simvastatin can protect brain cells in Parkinson’s.

  • What: You will be asked to take either Simvastatin or a placebo treatment daily and attend 8 research visits over 2 years.
     
  • Where: Over 20 hospitals across the UK. Find out more.
     
  • Who: People with Parkinson's who are not taking Statins, have never taken them and do not medically need them.
     
  • Deadline: January 2017

 

Read more about the study in the information sheet:

PD STAT participant information sheet (PDF,556KB)

If you’re interested in taking part contact

[email protected]

OxQUIP: Developing tests to measure symptoms (UK-wide)

This research aims to develop sensitive tests to measure the symptoms of Parkinson's and Progressive Supranuclear Palsy (PSP).

  • What: Nine visits over a two year period. Each visit will last around two hours.
     
  • Where: UK-wide
     
  • Who: 200 people with Parkinson's or PSP based in the UK.
     
  • Deadline: October 2019
     

Read more about this study in the information sheet:

OxQUIP information sheet (PDF,1510KB)

If you’re interested in taking part contact:

Prof Chrystalina Antoniades

01865 234 728

[email protected]

    Understanding fatigue in Parkinson's (South England)

    This research will explore the features of fatigue in people with Parkinson's

    • What: A 15-20 minute questionnaire
       
    • Where: Hampshire, Dorset, Isle of Wight, Wiltshire, Sussex, Surrey, Berkshire
       
    • Who: 150-200 people with Parkinson's
       
    • Deadline: June 2017
       

    Read more about this study in the information sheet:

    Fatigue Questionnaire Information Sheet (PDF, 51KB)

    If you’re interested in taking part contact:

    Veena Agarwal

    023 8120 6379

    [email protected]

    Investigating care for Parkinson's (South England)

    Improving memory and thinking in people with dementia with Lewy bodies (UK-wide)

    The researchers want to see if the drug RVT-101 can improve memory and thinking in people with dementia with Lewy bodies. Find out more about this study at www.lewybodystudy.com.

    • What: You will be asked to take either the drug or a placebo and attend 10 visits over 32 weeks.
       
    • Where:  Dundee, Essex, London, Newcastle and Southampton
       
    • Who: People aged between 50-85 who have been diagnosed with dementia with Lewy bodies. You can find out if this study is suitable for you by answering some questions on the study website

     

    Read more about this study in the information sheet:

    Information sheet for participants (PDF, 391KB)

     

    If you’re interested in taking part contact:

    Dundee

    Adele Maxwell, Ninewells Hospital

    01738 414535  [email protected]

    Essex

    Lean Lee, North Essex Partnership University NHS Foundation

    01279 827894  [email protected]

    London

    Kavya Devaraju, Guy’s and St Thomas’ NHS Foundation Trust

    020 7848 8185  [email protected]

    Sarah Gregory, West London Mental Health NHS Trust

    020 8483 1833  [email protected]

    Manchester

    Rebecca Davies, North Manchester General Hospital

    0161 276 3324 [email protected]

    Newcastle

    Dr. Barbara Wilson, Newcastle University 

    0191 208 1337  [email protected]

    Southampton

    Suzanne Dodge, Moorgreen Hospital  

    02380 475206  [email protected]

      Exploring anxiety in Parkinson's (London)

      This Parkinson's UK-funded project aims to understand factors that may influence anxiety and worry in Parkinson's and use this information to identify new approaches for treatment. 


      • What: A session lasting approximately 2 hours. You will need to visit the study site and complete questionnaires and some computer-based tasks.

      • Where: London

      • Who:104 people with Parkinson's based in London or surrounding areas.

      Read more about this study in the information sheet:

      Exploring anxiety in Parkinson's- participant information sheet (PDF, 236KB)

      If you're interested in taking part contact:

      Lonneke van Tuijl

      0207 848 0365

      [email protected]

      Investigating a new treatment for Parkinson's (England)

      Research suggests that iron can build up in the brains of people with Parkinson's. The SKY study is looking at whether a drug, that can help to remove iron from the body, could improve symptoms or even slow the progression of Parkinson's.

       

      • What: You will be asked to take either the drug or a placebo twice a day for a period of nine months. You'll need to make nine monthly visits to the trial site lasting approximately 3-4 hours as well as weekly visits for blood testing.

      • Where: Exeter, Newcastle and Plymouth

      • Who: People with Parkinson's who were diagnosed within the last three years and have been on stable medication for at least three months.

       

      If you're interested in taking part contact:

      Exeter

      Rob James, Royal Devon and Exeter NHS Foundation Trust

      01392 408145  [email protected]

      Newcastle

      Ann McNichol, Newcastle University

      0191 2081250 [email protected]

      Plymouth

      Sandra Morgan, Plymouth Hospitals NHS Trust

      01752 431807 [email protected]