Katherine Crawford, Services Director at Parkinson's UK, shares an update on coronavirus for health and social care professionals. In this challenging time we appreciate all that you’re doing to continue providing care to your patients with Parkinson’s.
This page was originally published on 23 March 2020. It was updated in November 2020.
During the coronavirus (COVID-19) outbreak, we recognise the extremely challenging conditions that you as health and social care professionals are working in. We appreciate all that you’re doing to continue providing care to your patients with Parkinson’s.
Our priority at the charity is to continue to do all we can to support people affected by Parkinson’s. I want to share with you the information and support that we’re offering to people living with the condition, their supporters and our volunteers at this time, as well as the ways that we can support you in your role.
Our advice for people with Parkinson’s
Information on coronavirus and Parkinson’s is available on our dedicated Parkinson’s UK news update page. This page is updated regularly as new information becomes available, in line with the latest NHS and government advice. The page links to the NHS and Government websites for each UK country with the most up to date information and advice.
We’ve developed this advice based on government guidance, with input from Dr Donald Grosset, Consultant Neurologist at Glasgow’s Queen Elizabeth University Hospital and Excellence Network Clinical Director.
All our volunteers have been advised to cancel all Parkinson’s UK local group events. They are being supported to do this by their staff contacts and our volunteering team. We have advised all volunteer educators, who speak to care home staff, to stop in-person sessions until further notice.
Our helpline is available
Our helpline number is 0808 800 0303. It’s the first port of call for advice or to be put in touch with a local adviser. This may also be a good time for people to discover the support of our online community via our forum. Keeping our information and support services running is a priority for us, and we’re working to support people as flexibly as we possibly can.
You might want to point people to our Parkinson's Facebook community group. This group is a place for people with Parkinson’s, and their family and friends to connect while spending less time with others.
Our professional events are postponed
To help you to meet the needs of people affected by Parkinson’s at this time, we have postponed all Excellence Network events until September 2020. Please refer to your own Trust guidelines, and NHS guidance for clinicians, concerning your attendance at any other external meetings.
For any professionals who would like to keep a planned event date in the diary for urgent coronavirus communications, or otherwise, we can facilitate remote conferencing, via Zoom (video and telephone accessible). To discuss, please contact [email protected]
Medication supply issues
We are in contact with The Department of Health and Social Care (DHSC) around medication supply issues. Many medications are manufactured in Wuhan, China and Northern Italy. If you encounter shortages of Parkinson’s medication, whether relating to coronavirus or otherwise, please report these to our Policy and Campaigns team via [email protected]
Remember to include:
The medication name and dosage
The location (collection point).
Keeping in touch
We will do all that we can to assist you and your patients during this time. We will keep you updated through Excellence Network communications channels: Basecamp - our online collaboration platform, our newsletter, and the Excellence Network twitter account.
We will discuss with the Excellence Network’s clinical leadership team how we can best support you at this time.
Please do contact me, Katherine Crawford, if you'd like to talk about anything raised in this update [email protected].
Coronavirus (COVID-19) information and resources for professionals
This page links to Parkinson's UK coronavirus (COVID-19) updates for professionals, people affected by Parkinson's and researchers, and lists coronavirus related resources for professionals.
Understanding coronavirus and Parkinson’s
Our priority remains supporting people living with Parkinson’s. That’s why we’ve gathered the facts and guidance to help answer some of your most common questions about coronavirus and Parkinson’s.