Parkinson’s UK PPI Contributor Survey

  • Your experience as a PPI contributor
  • About you
  • Complete

This survey is for Parkinson’s UK patient and public involvement (PPI) contributors. Your responses will help us improve our PPI programme, for example the support and training we offer.

The information provided by you in this survey will be used by the Research Involvement team at Parkinson’s UK. It will not be used in a manner which would allow identification of your individual responses. The data will be shared with Parkinson’s UK staff and members of the Involvement Steering Group.

We’ll share the findings from this survey and how we are going to act on them with you in a future PPI newsletter (this will be completely anonymous). 

Completing this survey takes approximately 15 minutes.

The survey will remain open until Monday 30 March

If you have any questions about the survey or how the information will be used please email Anne at [email protected] 

Thank you and we look forward to reading your responses!

How long have you been a PPI Contributor with Parkinson's UK?
How satisfied are you with the PPI Contributor role in general?
Do you feel you’ve made a difference in your role as a PPI contributor?
For this question, please assume that the activity focuses on a research topic that you find important and interesting. This question will help us understand where we might need to develop more resources or support.
Are there any types of opportunities you’d like to be involved in more?
Tick all that apply
For example plain English summaries, study documents

This year we started running online meet ups for PPI contributors called PPI Quarterly Connections. We’d like to understand your views on it.

Have you attended PPI Quarterly Connections
Why haven’t you attended PPI Quarterly Connections?
If not, please leave blank.