Tracking Parkinson's will be the world's largest ever in-depth study of people with Parkinson's. We need thousands of people with Parkinson's across the UK to get involved.
This ambitious 5-year project, fully funded by Parkinson's UK, aims to speed up our search for a cure by finding 'biomarkers'. Watch our short film to find out more.
Duration: 3 minutes 41 seconds
Identifying biomarkers is key and would revolutionise the diagnosis and management of Parkinson's.
We believe that finding biomarkers is crucial to finding a cure for Parkinson's.
Biomarkers are small changes in the body that can be measured to show how severe your Parkinson's is. But no biomarkers have yet been found for Parkinson's.
Without a reliable biomarker we cannot diagnose Parkinson's accurately or measure how it progresses - which is a massive barrier to testing new treatments.
Having a biomarker for Parkinson's would also help us diagnose Parkinson's earlier, when people are most likely to benefit from the new treatments scientists are working on.
We need thousands of people with Parkinson's across the UK to get involved to make Tracking Parkinson's a success.
We're looking for:
We'll also be asking a smaller number of brothers and sisters of people with Parkinson's (who are enrolled in the study) to participate.
The study is happening in a network of more than 50 study centres across the UK.
So hopefully it should be possible for most people to find a local study centre and take part in Tracking Parkinson's.
Taking part involves:
The information and blood samples collected in the study will be anonymised and made available to researchers studying Parkinson's all over the world free of charge.
This will create a lasting legacy that future generations of people with Parkinson's will benefit from.
If you've been diagnosed with Parkinson's in the last 3 years or were diagnosed before the age of 50, you should be eligible to take part.
Please check the list of hospitals involved in the study to see whether there is a centre near enough to you.
If there is, and you feel you can travel to it please discuss taking part in the study with your Parkinson's nurse or specialist.
If you decide you'd like to take part ask your specialist or Parkinson's nurse to contact the hospital team directly for further information.
Please help us spread the word to people who might be interested in participating.
If you know someone recently diagnosed with Parkinson's, or someone who was diagnosed before the age of 50, please tell them about the study.
Please email us at email@example.com