Parkinson's support networks
If you have Parkinson's, or you know
someone who has, you probably have a lot of questions and perhaps
some worries. You can turn to us.
We provide a number of ways to access information and
support and share experiences with others.
Finding out about Parkinson's
Learn more about Parkinson's and what's it's like to live
with it:
We also have a wide range of publications about all aspects of
Parkinson's that are free to download or order.
Helpline and Peer Support Service
Very friendly and supportive. Made me feel better!
Our helpline 0808 800 0303 is a free
and confidential service. Our specialist nurses and advisers can
provide information about living with Parkinson's.
This includes managing symptoms and medication, tips for daily
living, social care, employment, benefits, and much more.
You can also get in touch if you just want to talk about living
with Parkinson's or if you know someone with the condition.
Our Peer Support Service can
put you in touch with a trained volunteer who has a personal
experience of Parkinson's that's similar to yours.
Just call the helpline on 0808 800 0303 and ask for the Peer
Support Service. The service is for people with Parkinson's and
carers.
Website forum
You've come to the right place for support.
We're all willing to share good times and bad, so do keep visiting.
Our discussion
forum is a great way to share experiences of Parkinson's and
chat to others affected by the condition.
The forum is for people with Parkinson's, carers, family and
friends. Everyone affected by Parkinson's is welcome to join.
If you're not sure about posting straight away, you can take a
look around first. You only need to sign up when you're ready to
post.
Local information and support workers
Our network of information and support
workers provide one-to-one information and emotional support to
people with Parkinson's, their families and carers across the
UK.
You can arrange a face-to-face visit at home, in hospital or in
residential nursing care. Or you can speak to your local
information and support worker over the phone.
They can help you access local support services and liaise with
health and social care professionals if needed.
Diane Benali - one of our information and support workers
- tells us how the service can also help people with Parkinson's and their carers
access benefits and support.
Local groups
Find support and friendship - and meet other people
affected by Parkinson's - at one of our
local groups.
Local groups come in all shapes and sizes, and there are some
groups specifically for younger people with
Parkinson's.
Many groups offer a range of activities, such as exercise
classes, day trips and talks about Parkinson's.
Another great way to get information and meet others is to go
along to information events and other activities organised by your
local Parkinson's UK team.
Self management and care courses
There are a number of self care and self
management courses throughout the UK that offer support for
people living with long-term conditions and their carers.
We offer information and advice
for carers, partners and family of people with
Parkinson's.
Parkinson's UK membership
If you'd like us to get in touch regularly with information,
support and news, why not become a member of
Parkinson's UK? It costs just £4 a year.
Our membership magazine, The
Parkinson, is full of stories and experiences of people living
with Parkinson's.
In this section
- email
-
Share