Parkinson's support networks
Finding the right support and information is an important part
of getting through any difficult period.
You've come to the right place for support and advice. We're all willing to share good times and bad, so do keep visiting. And keep on keeping on.
As well as your family and friends, GP or consultant there are
other people and support networks you can turn to for help,
information and support.
Helpline
Our helpline 0808 800 0303 is a free
and confidential service providing support and information to
anyone affected by Parkinson's.
Our trained nurses and advisors can provide information about
Parkinson's, employment and benefit rights, and help you find
services in your area.
Information and support workers
Our UK-wide network of information and
support workers can provide one-to-one information and
emotional support to people with Parkinson's, their families and
carers, including:
up-to-date information on
Parkinson's- emotional support to you and your family
- information about benefits and help with the application
process
- information about and links to your local services
- a supporting voice if you need to complain or are having
problems getting your needs assessed
You can arrange a home, hospital, or residential nursing care
visit by an information and support worker or phone them for
support and information.
Diane Benali tells us how information and support
workers help people with Parkinson's
and their carers access benefits and support.
Meeting locally
At your local Parkinson's UK group
you can meet other people with Parkinson's in your area for
support, friendship, information and activities.
Activities can include monthly meetings, exercise classes,
talks, day trips and dancing, as well as fundraising events.
There are also younger people's
groups specifically for people of working age affected by
Parkinson's.
And we have staff teams across the UK
who can tell you about local services and support.
Online forum
Our discussion
forum lets you share your experiences of living with
Parkinson's, and chat to other people affected.
The forum is a place for people with Parkinson's, carers, family
and friends. Everyone affected by Parkinson's is welcome to
join.
Self management and care courses
There are a number of self care and self management courses
throughout the UK that offer support for people living with
long-term conditions.
Self management and self
care courses or programmes aim to increase the confidence of people
living with Parkinson's and their carers, to help them take more
control of their own condition.
Read more about courses for people with
Parkinson's and carers.
In this section
Parkinson's carers
Our carers' section offers
information and advice for the family, friends and
partners of people with Parkinson's.
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