Information and support workers
Our UK-wide network of information and support workers offers
one-to-one information and emotional support to people with
Parkinson's, their families and
carers.
My local information and support worker helped me fill in my Disability Living Allowance application, which made sure I was paid without delay.
Claire Andrew, person with Parkinson's
Information and support workers are trained to provide:
- up-to-date information on Parkinson's
- emotional support to you and your family
- information about benefits and help with the application
process
- information about and links to your local services
- a supporting voice if you need to complain or are having
problems getting your needs assessed
You can arrange a home, hospital, or residential nursing care
visit from an information and support worker or phone them for
support and information.
Find out more about the service from Diane Benali, one of our information and support
workers.
Contact your local information and support
worker
We have around 120 information and support workers,
covering every primary care trust and health board area in the
UK:
You can also phone our helpline 0808 800
0303 and we can put you in touch with your nearest information
and support worker.
Ensuring access to benefits
In 2009 our network of information and support workers
doubled the amount of benefits received by people with Parkinson's
and their carers the previous year.
News story: £7million in unclaimed
benefits accessed in 2009
Image right: Kay Andrews, Information and Support Worker,
with a couple affected by Parkinson's
Nottinghamshire Information and Support Worker Pat Lower
recently helped a couple, one of whom has Parkinson's.
Neither thought social services was something they could access,
despite being in need of support.
Pat persuaded them to let her contact social services. While
sitting in on an assessment meeting, Pat was able to explain the
day-to-day effect of the condition.
The assessor was then able to take the couple's needs into full
consideration.
Grants for people with Parkinson's
Our Mali
Jenkins Fund gives financial assistance towards equipment,
adaptations and respite breaks that improve the quality of life for
people with Parkinson's.
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