Compulsive behaviour

 

There are several categories of drugs for the treatment of Parkinson's and it is thought that there may be a connection between some dopamine agonists (one class of drugs that can be used to treat Parkinson's) and the incidence of compulsive behaviour.

 

However, clinical studies have shown this to be an uncommon side effect, currently estimated to occur in up to 14% of people taking dopamine agonists to varying degrees. Some studies have suggested that other types of anti-Parkinson's medication can produce similar effects.

 

What is compulsive behaviour?

 

Compulsive disorders are associated with a person's inability to resist a temptation or impulse that may ultimately cause harm to themselves or others. In a lot of cases, this behaviour may be out of character for the person. These can be expressed in a number of ways and here are just a few examples:

  • Pathological (addictive) gambling
  • Hypersexuality
  • Compulsive (binge) eating
  • Compulsive shopping
  • Punding or 'compulsive hobbyism'
  • Addiction to anti-Parkinson's medication

 

What can be done to help?

 

It is important to realise that this behaviour, which is known as Impulse Control Disorder (ICD), is abnormal and a person experiencing it should seek help from a Parkinson's nurse, neurologist or hospital physician urgently.

 

As the person themselves may not realise that there is a problem, it is key that carers and family members note any abnormal behaviour and discuss it with the appropriate professional at the earliest possible stage.

 

Treatment strategies

 

Treatment strategies can involve reducing the dose of Parkinson's medication, undertaking psychotherapy and also considering whether other types of medication should be introduced.

 

The Parkinson's Disease Society does not advise anyone to stop taking their Parkinson's drugs without seeking the advice of their health professional. Changes to a Parkinson's medication regimen should only be made with the advice of a Parkinson's specialist.

 

As well as discussing medication concerns with a Parkinson's nurse, neurologist or hospital physician, appropriate action should be taken immediately to limit the impact of these compulsive behaviours. For example, you may need to seek financial advice if compulsive gambling has led to financial difficulties, or speak to a relationship counsellor if your relationships are being affected by your libido.

 

Real life stories

 

Several people have decided to share their experiences of how the compulsive behaviours they developed after taking anti-Parkinson's drugs affected them. They hope that their stories will help others identify any potential issues, and take action immediately.

 

 

PDS Helpline

 

Advisors on the Parkinson's Disease Society Helpline (freephone 0808 800 0303) can offer information and support to people who are worried they are displaying signs of compulsive behaviours and signpost them to other support organisations who can help.

 

All calls to the Helpline are confidential.

 

Advice for professionals

 

Compulsive behaviour: information for healthcare professionals

 

Further information

 

Frequently Asked Questions on compulsive behaviour

 

We also have the following information sheets, available from our information sheets page.

  • Compulsive behaviour and Parkinson's information sheet
  • Gambling and Parkinson's information sheet
  • Hypersexuality and Parkinson's information sheet

 

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