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Alcohol and Parkinson’s

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Wildrover
Alcohol and Parkinson’s

I would love to know what everybodys attitudes are towards alcohol. Personally I love a few beers but not had a drink for nearly 3 months. I was newly diagnosed a month ago but the months leading up to my diagnosis I had some really bad experiences whilst drinking alcohol or I should say after drinking it. It was mainly that I simply could not sleep at all leading me to be awake for most of the night. The last time I did have a drink I felt i was having an outer body experience, could hardly walk and just felt generally bad. In affect it was making what I now know to be my Parkinson’s symptoms 10 times worse. I haven’t touched alcohol since. A friend of a friend who has Parkinson’s did say red wine is our medicine!

would love to know if fellow-sufferers have had adverse effects to alcohol and what their general opinon is towards drinking with Parkinson’s

Jusu
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Jusu

Hi Wildrover

In a way I was glad to read your post - it makes me realise I’m not the only one! I had put the symptoms of sleeplessness and feeling bad down to mixing alcohol with medications ( am on Sinemet and nefopam ).

Like you I have virtually cut out alcohol but I do miss the occasional glass ( or 2!) of wine !

 

Divine1

Hi.

This is always a tricky one because it depends on alot of factors. What meds your on. How much you drink. What effect it has on you. I think most people when trying to manage their health cut out or cut down on alcohol.

I personally like a glass of wine every so often and according to my consultant that's fine. I'm on a dopamine agonist. Too much ie 2 glasses these days is a big night out and I am sluggish next day. So that doesn't happen any more.

Like Parkinsons, everyone is different. 

Martini

I consider myself lucky.  I can, and do, drink a whole bottle of red wine in an evening, about once per week.  My wife doesn't drink and I feel it is a crime to put a cork back into a wine bottle.  The day after, I feel fine and am sometimes surprised at how mobile I am.

If, however, I eat a large steak with the wine, I am an absolute wreak the following day.  But once or twice per year I think it's worth it.

Martini

I should have said "wreck" not "wreak".  Maybe it's the wine.

Wildrover

Hi Martini,

The steak thing is an interesting twist, I wonder why that is?? Must admit I do enjoy a bottle of red, however I am reluctant at the moment to try it as 24 hours of mysery is not worth the 2 or 3 hours of pleasure.. Interesting though to hear about other peoples take on the subject

Martini

It's the protein.  If you take anything containing levodopa, the protein interferes with its absorption.

TeeHee

My pd nurse says take meds an hour before protein or 3 hrs after to avoid protein absorption competing with dopamine. 

Red wine and aged cheese contain some substances that can alter/interfere with  meds so I have swopped to white wine, and anything with bubbles. Added boost is after an evening out , no longer look like a vampire.

 

TeeHee

Sorry levodopa which is of course converted to dopamine.

Wildrover

Hi Martini, protein yes of course, you will have to forgive my ignorance, still on a learning curve with this Parkinson’s thing.

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